My son is an LVAD recipient. He is 26 years old and has been going strong for the majority of his 2 1/2 years since his surgery. Recently we have run into a wall with dressing supplies. His supplies used to be covered by a state insurance (medicaid) which we have been very thankful for. Now his coverage has switched due to being approved for medicare. The problem we have run into with this change is that his supplies are no longer covered. According to what we have been told by several wound care suppliers and by his VAD coordinators, medicare has decided it will not cover these costs for home wound care supplies. While I am extremely grateful the state insurance covered his VAD surgery and saved my sons' life (litterally by just a day or two), we suddenly find it very stressful and discouraging in our struggle to cover this, now vital, out of pocket expense. I have chronic systolic heart failure myself and our combined incomes consist of only our social security disability. Anyone know of wound care suppliers with really great prices? The worrying is slowly beginning to wear on us.
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