LVAD Daily LifeSat, 11/05/2022 - 11:19AM
My daily routine:
1. Do a self-check of the controller, check the readings, and check for alarms (low flow and power).
2. Disconnect from remote power; connect to the batteries.
3. If staying-in-the house, use controller bag supplied by the hospital.
4. If going out, use fishing vest purchased from Bass Pro Shop.
5. If going out take backup bag with me. (extra controller and batteries).
6. If returning home switch to controller bag.
6. Before bed, switch out batteries with ones in backup bag.
7. Put fresh batteries in backup bag.
8. Put discharged batteries in charger.
9. To bed, disconnect from controller bag batteries to remote power.
Note: if I'm going out to get testing, I'll usually use controller bag; wires in the fishing vest will interfere with chest xrays.
Note2: I normally use wipes to clean myself; taking a shower is not easy with the shower bag and tagamart covering my driveline dressing; I have to change out the driveline dressing after shower because the tagamart sticks to the dressing.
Note3: I change my driveline dressing on Sunday morning.
Note4: Even though it is rare, I sometimes lose power, usually in the middle of the night. I had an emergency standby power generator installed ($8500.00); it cycles power within 10 secods. In 6 months this has only happened once.