Coping with RealityTue, 11/01/2022 - 2:12PM
How do others do it? My husband had a heart attack end of January 2022 and received an LVAD on Valentines Day. He is home and going through cardiac rehab but because there was a head injury, injury to femoral artery and now he has neuropathy in his feet bad, he can't work again. This was supposed to be MY year to retire but I keep going, paying the mortgage, all the bills and today trying to find a better insurance plan to cover his OUT OF NETWORK hospital and LVAD clinic visits. I am tired of fighting to get his visits, medicine, therapy, etc covered as the only hospital that can see him with the LVAD is out of network. The only other option we have is four hours away and we can't move.
I have to work...... we are just shy of being eligible for medicare due to our age, and I don't make very much money.. I make sure he is fed the right food for his INR readings to stay consistent, but I go days without eating lunch or breakfast at work. We don't have car payments and our vehicles are OLD. We live day to day. He feels like he is burdening me, and when I help him with his dressing changes, he has tremors. Last night i mentioned getting a kitten as his rehab will be over soon and it would give him something to do, he said he doesn't have long to live. This bothers me to the core, and I cried all night. This is my love of 40 years. We have been through hell this year, but he is alive.
I just don't know how to cope with all of this. I am the strongest person I know but I am weakening daily.