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Maggie55's picture Maggie55
Husband just had lvad fitted
Sun, 11/05/2017 - 5:48pm

My husband has recently been given a lvad . He has suffered with cardiomyopathy for a number of years but this last year he has been going down hill. So the specialist decided to fit a lvad as he couldn't wait for a heart transplant. Since his operation he has been having major problems with fast heart rates it's now over 3weeks and he still have problems. It's been a very stressful time for both of us .

willhyland's picture willhyland
recent LVAD implant
Mon, 12/04/2017 - 11:07am

I know it is terribly on both of you, but it will get better. The more positive images you can come up with the better. I am a very optimistic person and my wife is the ultimate pessimist, so I guess we balance each other. After my operation (Sept 10, 2013) I had an infection called C-diff three times which you can only get in the hospital. It took almost three months to recover. I am now out in the woods metal detecting and fishing --from the bank. So hang in there and the Docs will make sure you make it to that transplant day. Please keep us posted on your husband's progress.

Maggie55's picture Maggie55
New to group
Tue, 12/05/2017 - 1:11pm (Reply to #2)

Thank you for your reply. Glad to hear there is light at the end of the tunnel. My husband is now home and we are learning how to cope with lvad on a day to day bases. Wil keep you posted many thanks

memerson2000@gmail.com's picture memerson2000@gm...
I don't know if I'm the most
Mon, 12/04/2017 - 1:35pm

I don't know if I'm the most supportive person on this site....my husband had LVAD and RVAD place June 2 and never left the hospital, he was too unstable--he remained in ventricular tachycardia with a rate of 285 until transplantation--initially, they tried to shock him out of it but finally gave up. The way it was explained to me: the heart is going to do what the heart is going to do; we are relying on the LVAD to keep him properly perfused. Ignore the heart rate. They finally turned the monitor off. The VADs didn't restore any quality of life to my husband, but they let him limp along--just barely--until he got the heart. He's doing fine now, transplanted August 15, long rehab and then home, readmitted for CMV, now on the mend for real. I am sorry you are going through this--I'd say "thoughts and prayers" but that's sort of lost its meaning. A GoFundMe that a family friend set up for us was the most help--financial strain on top of abject terror would have killed me.

My husband's surgeon looked at him a couple of months after the surgery and said: "You have no idea what you have been through." Then he turned and locked eyes with me and said, "You know exactly what he has been through." For the bulk of the ordeal, my husband was so near death that he remembers very little--I am all PTSD'd over the whole thing, though. I was holding his hand as his internal defibrillator was firing, I saw the life drain out of him when he went into ventricular fibrillation, before the VADs were placed. I cleaned him over and over again when he had diarrhea from the gastrointestinal bleeding caused by the anticoagulants he needed for the VADs. It's a lot. It's a lot to go through. I'm a different person, in a different life.

Maggie55's picture Maggie55
New to group
Tue, 12/05/2017 - 1:13pm (Reply to #4)

Many thanks for your reply pleased to know I am not alone. My husband is home now and we are learning to cope with lvad on a day to day bases many thanks.

bfast's picture bfast
Fast Heart Rates
Mon, 12/04/2017 - 4:12pm

I would say be patient. LVAD's are great but not perfect. They have limitations but things do get better. Just give the technology time to work, it's a big adjustment for his body as well as for both of you personally. There is some fine tuning that MD's can do to make you feel better. Sometimes the fast heart rate can be attributed to stress or anxiety over wondering if everything is going to be ok and work as planned. The stress can diminish over time as you both adjust to your "New Normal" as I like to call it. I hope that the fast heart rates have been resolbed by now and that you can enjoy a better quality of life that you have over the last year.

Maggie55's picture Maggie55
New to group
Tue, 12/05/2017 - 1:15pm (Reply to #6)

Thank you for your reply so nice to know there is someone else out there. My husband is now home and we are learning to cope with lvad on a day to day bases many thanks for your reply.

Maggie55's picture Maggie55
New to group
Tue, 12/05/2017 - 1:24pm (Reply to #7)

Many thanks for your reply. My husband is now home and we are learning to cope with lvad on a day to day bases many thanks.

klm1569's picture klm1569
Count your Blessings!
Tue, 12/05/2017 - 6:28am

My husband had his LVAD implanted on August 10th, 2017 and never got out of the CVICU. He passed away on October 18th.

Be thankful that your experience's as difficult as they are, were successful!

Maggie55's picture Maggie55
New to group
Tue, 12/05/2017 - 1:17pm (Reply to #9)

I am sorry to hear of your loss . I was only asking if there was any out there as felt bit out of depths. But many thanks for your reply

klm1569's picture klm1569
Hi Maggie,
Tue, 12/05/2017 - 5:33pm (Reply to #10)

Hi Maggie,
I'm so sorry if you felt that my post was directed at anyone
. That was not my intention. I wish the best for you and completely understand your pain and fears.
Prayers!

Pat300's picture Pat300
died
Sat, 01/13/2018 - 2:45pm (Reply to #11)

Kim, I am so sorry, I too lost my husband in August 2017. He was implanted in April 2017. We were just starting to believe he could make it, when an unresolved GI bleed led to his death. It was horrible .

Crush's picture Crush
Husband just had lvad fitted.
Mon, 12/04/2017 - 10:00pm

I have an LVAD. I had a Myocardial Infarction January 29th, 2015. I do not remember a lot of what happened to me. My wife had to fill me in on the events which transpired. She told me about the LVAD and I asked, "When am I having the surgery?" She said, "Honey, you've already had it!"
I also have a pace maker/ defibrillator. It regulates my heart rate from AFIB. There have been many hurdles to climb but I have survived. I believe you and your husband will too. It is hard to put into words what I wish to say to you to help. Emotions play a large part in recovery. Be strong for you and your husband. My wife took very good care of me until I could gain my strength back.
Last year I was able to attend a conference on LVADs by the manufacturer HeartWare. It was a true milestone in my comeback to be able to accomplish attending the event.
Stay strong!

Keverdawg's picture Keverdawg
Great attitude
Tue, 12/05/2017 - 12:23am (Reply to #13)

I had my LVAD since April 2011. I can relate to the problems most of you recipients have had and some real strange ones. The first year was the worst. I was in back in the hospital at least once a month. The second much better and so on. I want to add that I was given nearly 7 years that I would not have had without the LVAD. That has been a gift. The best present a man can get. Forget the problems and take the bad with the fantastic. Life with your family and a very, very supportive wife.

Keep a positive attitude and live life like it would be the last day you have. Do everything you can for your caregiver. Live life to the fullest and when you wake up the next morning thank God and your wife/caregiver and your LVAD team and start your last day again!

Keverdawg

Maggie55's picture Maggie55
New to group
Tue, 12/05/2017 - 1:19pm (Reply to #14)

Thank you for your reply so nice to know there is someone else out there. My husband is now home and we are learning how to cope with lvad on a day to day bases many thanks.

Maggie55's picture Maggie55
New to group
Tue, 12/05/2017 - 1:21pm (Reply to #15)

Many thanks for your reply. My husband is now home and we are learning to cope with lvad on a day to day bases many thanks.

Maggie55's picture Maggie55
New to group
Tue, 12/05/2017 - 1:22pm (Reply to #16)

Many thanks for your reply. My husband is now home and we are learning to cope with lvad on a day to day bases many thanks.