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  • Congestive Heart Failure
    Last activity 1 month 4 weeks
    My Dad received a heart transplant in 2015. We believed that he would make it through. All through FAITH in God knowing that there would be a reason. I am grateful to God everyday for also renewing him heart, mind, and soul to know who God is in his life!! Stay strong and believe!!
  • New to LVADs
    Last activity 1 month 4 weeks
    I was disappointed to hear from my doctor that right now I'm not a candidate for an LVAD. I didn't know until my doctor informed us that your heart has to be enlarged and you have to have a certain Ejection fraction in order to get an LVAD.
  • Living with an LVAD
    Last activity 2 months 5 hours
    The Freedom Undervest keeps your LVAD equipment safe all day. We recommend sleeping in your Freedom Undervest, so that your LVAD equipment stays secure at night, and you remain comfortable.
  • Last activity 2 months 2 days
    i know this might seem well selfish but being almost 80 and haveing parkinson and also working 40-50 hrs per week full time would like to know if others have a simular experince. guess im looking for a thank you me so slfish
  • Last activity 2 months 4 days
    What are patients using to pack their Power Modules, Battery Charger and batteries to fly?
  • Recipient Support
    Last activity 2 months 4 days
    To anyone interested if you have a "Heartmate 2", You can find a very comfortable undershirt to wear to carry you equipment under your clothing @ www.lvadshirt.com. It comes in Black or White
  • Recipient Support
    Last activity 2 months 4 days
    I have had an LVAD for 8 years. The new daily cleaning of my driveline is a pre-packaged kit, which includes an effective infection prevention disk called biopatch. Because of skin issues, I am unable to use them. Every day I have a new disk to add, and have a good-sized bag now.
  • Last activity 2 months 4 days
    We have received lots of inquiries about our product, and we are grateful for the opportunity to serve LVAD patients. Here's a post with our FAQs so that you can learn more about the Freedom Undervest:
  • Recipient Support
    Last activity 2 months 2 weeks
    I'm so proud of the Freedom Undervest because it solves a real problem. As many of my colleagues know, driveline infections are a serious risk for LVAD patients, and the Freedom Undervest addresses their need to protect the driveline exit site.
  • Last activity 2 months 2 weeks
    I am 43 yr old.....I have had care taker (family member) stay with me since implant 10 months ago.....my strength, confidence in device, and new dressing procedure of twice a week versus daily have let me make decision to live alone while I wait for transplant.
  • Recipient Support
    Last activity 2 months 2 weeks
    Hello I am a new lvad recipient, I had my surgery on september 19 . Everything seems to be going well except for the fact that i can hear the pump running . It is very annoying and I was wondering if anyone else has this issue?
  • Last activity 2 months 3 weeks
    Hi I am new to this forum so bear with me. My husband has been ill for 11 years and had his LVAD 2 years ago. He has had many complications such as GI bleeding, MRSA, 2 ileus and required many blood transfusions. He has been in the nursing home two times to get IV antibiotics for the MRSA.
  • Last activity 2 months 3 weeks
    My husband has a low platelet count and has had for awhile we are waiting for a heart transplant but the low platelets are an extreme worry for bleeding. Has anyone tried increasing foods recommended to increase platelet count with luck.
  • Clothing Options
    Last activity 2 months 3 weeks
    I'm happy to announce the launch of the Freedom Undervest, a garment designed to free you from your VAD bag. Medi-Materials has worked with LVAD patients and doctors to develop a comfortable vest that secures your external equipment in a completely hands-free manner.
  • Living with an LVAD
    Last activity 2 months 3 weeks
    Lets get to it. The worst thing that can happen to an LVAD user is a drive line infection. It can put you in the hospital many times over and cures with the various antibiotics may or may not work for you. It can lead to extra surgeries for debridement and in some cases make it worse.
  • Last activity 3 months 5 days
    any recommendations on medicare plans
  • Living with an LVAD
    Last activity 3 months 5 days
    I am 49 and got my lvad in September 2017, I have been playing guitar since I was 10 . Now the problem is my electric guitar picks up the pump and transmits it through the amp to the point of not being able to play.
  • New to LVADs
    Last activity 3 months 3 weeks
    Hello, I am new to this forum . I had my lvad surgery on September 19 . Everything seems to be going good except for the fact that i can hear the high pitched hum of the pump .H as anyone else had this problem?
  • Caregiver Support
    Last activity 3 months 3 weeks
    My husband had his LVAD op October 2017 10 days later he developed bowed ischaemia and had life saving surgery again, he had bowel resection and an illeostomy. He is lucky to have survived.
  • Last activity 3 months 3 weeks
    I have been an LVAD patient since Feb. 1, 2010 and can truly say I have been blessed. It started when I was referred to Mayo for a consolation but while waiting to be called by a doctor while sitting in the waiting room I passed out and was taken right away to the emergency room.

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