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  • Posted 01/16/2016 - 11:02am | Last activity 5 days 7 hours
    I've been living with an LVAD for four years and nine months.
  • Living with an LVAD
    Posted 06/02/2017 - 4:01pm | Last activity 5 days 7 hours
    If a LVAD recipient is doing some heavy physical activity like running, gyming or playing any sport, how does LVAD, which runs at constant speed, going to match the demand of blood supply. If it doesn't able to fulfill the requirement how does it going the affect the recipient?
  • Posted 12/23/2014 - 8:20pm | Last activity 5 days 7 hours
    <p>Johnny has had his lvad for 4 years now,&nbsp; This past April (2014) while in Florida he got the pseudomonas infection.&nbsp; He is now on infusions 3x a day.&nbsp; Would like to know if any one has or had this infection and does it ever go dormat?&nbsp; Any information
  • Posted 08/30/2016 - 7:43pm | Last activity 5 days 7 hours
    We have a hospital 10 minutes from our house that installs LVADs. Medicare supplement is with Humana and hospital doesn't accept Humana. We are now looking at going out of state to get the LVAD. Has anyone had a similar experience?
  • Posted 06/12/2014 - 9:27pm | Last activity 5 days 7 hours
    LVADers from Michigan, Ohio, Kentucky, Indiana, etc are having a picnic again this year. For more information to go to this event please click on the link below, Everyone is welcome, LVADers, Caretakers, Transplants, Doctors and Nurses. Equal Opportunity Picnic.
  • Posted 02/17/2016 - 2:07pm | Last activity 5 days 7 hours
    I am curious about the monthly costs associated with the LVAD once it is implanted. My only insurance is Medicare, and my Doctor also expressed concern about what Medicare will cover, what they won't cover and if I'll be able to afford the costs for supplies.
  • Posted 04/04/2015 - 1:42pm | Last activity 5 days 7 hours
    Hi all, anyone have any advice/ experience on stopping GI bleeding from LVAD?
  • Posted 09/16/2016 - 6:16pm | Last activity 5 days 7 hours
    I'm about to have a LVAD fitted and I'm extremely of the operation having had major surgery before I think I know what to expect and that's what scares me so much
  • Posted 07/24/2014 - 7:37pm | Last activity 5 days 7 hours
    HAS ANYONE HAD THE PSEUDOMONAS INFECTION, WE WERE ON VACATION IN FL. WHEN JOHN GOT IT, HE WAS IN THE HOSPITAL IN FL, GOT HIM BACK TO ROCHESTER, NY, HE WAS IN FOR 20 DAYS AND 2 SURGERS LATER. WOULD LIKE ANYONES INTAKE ON THIS. THANKS.
  • Posted 05/31/2016 - 6:23pm | Last activity 5 days 7 hours
    My name is Wayne Guynn and I had my LVAD surgery on May 5, 2016. I hope I will learn how to live with it with the help of others who know what I'm going through.
  • Posted 02/27/2014 - 3:04am | Last activity 5 days 7 hours
    It is day 6 after a successful heart transplant as i sit wide awake at 3am in the ICU at Montefiore Hospital in the Bronx, NY. Tomorrow I go for my first biopsy to check rejection levels then head on home if coast is clear.
  • Posted 07/06/2015 - 3:02pm | Last activity 5 days 7 hours
    What anchor does everyone use for their LVAD? I've been using the Centurion foley anchor. Anyone found anything better?
  • Posted 01/06/2017 - 4:47pm | Last activity 5 days 7 hours
    I think generators should be included in the package with batteries, charging station, and other accessories. Does anyone know of any programs that will help LVAD patients get one?
  • Posted 09/04/2014 - 12:25am | Last activity 5 days 7 hours
    My sister in Italy can't turn her pump speed up becuase she experiences: -Pressure headaches -Oppresive feelings behind the sternum -Nausea -Blacking out feeling
  • Posted 07/06/2016 - 2:03pm | Last activity 5 days 7 hours
    We are just getting our LVAD program starting and I need some IT help!!!! They are reaching out to Epic for help but wanted me to reach out to other programs. We are working on our reporting needs and need help with how and where to capture data, associating reporting and reporting templates.
  • Posted 04/02/2014 - 9:58am | Last activity 5 days 7 hours
    I have been trying to loose the weight that i gained back after i got home from the hospital in 2011. I finally threw my salt away and working on getting away from the salt products and start to eat better.
  • Posted 10/26/2015 - 2:54pm | Last activity 5 days 7 hours
  • Posted 02/12/2017 - 11:37am | Last activity 5 days 7 hours
    Does anyone have experience with LVAD & dialysis? My husband had to have right kidney removed in AUGUST of 2016 due to tumor. LVAD placement was 11/30. His left kidney, as expected, took a huge hit. He is currently on dialysis 3 days/ week at Hershey Medical Center.
  • Posted 10/10/2014 - 12:26pm | Last activity 5 days 7 hours
    You can still move freely and do many routine activities if you have an LVAD. But you’ll need to take some precautions to protect the driveline that exits your body and connects your LVAD to your controller.
  • Posted 05/03/2013 - 4:46pm | Last activity 5 days 7 hours
    HY MY NAME IS JENNY AND I AM 30 YEARS OLD, MY MOTHER RECENTLY HAD AN LVAD IMPLANT TO BE EXACT ON 4/9/13 AFTER YEARS OF SUFFERING WITH HEART FAILURE. ITS BEEN ALMOST A MONTH AND SHE IS DOING GREAT. WE HAVE GONE SHOPPING AND GO FOR LONG WALKS IN THE EVENING.

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