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  • Posted 09/09/2011 - 1:07pm | Last activity 5 days 7 hours
    Congratulations on all the work and efforts. The site is beautiful and informative.
  • Posted 12/14/2012 - 4:17pm | Last activity 5 days 7 hours
    I recieved my hii in aug of 2010. Life was good till feb of 2012 ldh went out of wack but I had no other symtems. In sept of 2012 I got infection after moving a hot dog mach witch I finely had to let the Dr replace pump.
  • Posted 02/24/2012 - 9:45am | Last activity 5 days 7 hours
    Today is my husband, Jerry's 2nd LVAD Birthday. I call it a Birthday instead of an anniversary since the LVAD gave him life. Although there he has had ups and downs on the past two years, I am so thankful that he has his LVAD.
  • Physical Activity
    Posted 09/05/2013 - 8:59am | Last activity 5 days 7 hours
    Any tips on playing golf with HeartMate II and equipment ideas. I just put batteries in cargo shorts pockets with controller around my waist. Any other ideas?
  • Posted 10/08/2012 - 9:00am | Last activity 5 days 7 hours
    I was a 4.19 handicap and got the lvad in july, how long till i can play again? so far its saved my life, but still recuperating and endurance is not stellar. Any advice
  • Posted 12/14/2011 - 7:29pm | Last activity 5 days 7 hours
    Which patient inspires you the most?
  • Posted 04/10/2013 - 10:04am | Last activity 5 days 7 hours
    Mom was diagnosed with Cardiomyopathy in 1996. She had a terrible virus and the words made us sick to our stomach. You see my father was diagnosed several years prior and died in 1995 from complications of a Heart Transplant. So here our Journey begins.....
  • Posted 07/12/2012 - 2:05pm | Last activity 5 days 7 hours
    The Canadian Cardiovascular Society has put out an updated position statement regarding their recommendations for allowing LVAD Recipients to drive.
  • Posted 09/10/2011 - 4:45pm | Last activity 5 days 7 hours
    It would be nice if you also included EX- Vadders.
  • Posted 01/14/2013 - 6:38pm | Last activity 5 days 7 hours
    After mom had her vad put in on Dec 10 we have been very involved with her care. She is still in hospital with some complications but did spend a few days home and we realized the Vest and the Purse were way to cumbersome and heavy for her. She is 76 and very weak.
  • Posted 03/07/2012 - 9:58am | Last activity 5 days 7 hours
    This month the MyLVAD Community Spotlight features Angie and Tim. Tim was implanted with an LVAD in his early 30's due to idiopathic (unknown cause) cardiomyopathy. Angie, his wife, not only cared for him but also cared for their three young children and worked to help support their family.
  • Posted 10/21/2013 - 5:09pm | Last activity 5 days 7 hours
    Here is a new site made up by the LVAD community and for the LVAD community. There is an extensive library on what to wear, travel tips, Heart links, heart organizations and all things heart related. Please come and see. it is a closed group, so discussions are always kept private.
  • Posted 10/27/2012 - 10:56am | Last activity 5 days 7 hours
    I had a aicd replaced as the battery was low.(this was the same day I had a colonoscopy)for a bleeding problem that was corrected.The new aicd was a Medtronic device.After spending the night in the hospital I was discharged.Two days later I heard a low musical signal from somewhere in my body.
  • Posted 12/16/2011 - 2:02pm | Last activity 5 days 7 hours
    I wanted to address this because some of our LVAD friends do take showers.
  • Posted 10/27/2015 - 2:53pm | Last activity 5 days 7 hours
  • Inspiration and Encouragement
    Posted 03/28/2017 - 7:22am | Last activity 5 days 7 hours
  • Posted 10/14/2014 - 8:24pm | Last activity 5 days 7 hours
    Hi, my name is Amanda. I feel like I'm in a terrible position--I am the primary caregiver to my father (56 yrs, widowed) who has severe heart failure. He was diagnosed in 1995 and nearly died then. He was managing until 2009 when he needed an ICD/Defib inserted. He had to retire early.
  • Posted 08/19/2016 - 2:05pm | Last activity 5 days 7 hours
    Hi everybody, I have my LVAD since 2 years and Doing extremly well. I was a Runner before and now After a lot of training I will start to 'compete' again in my first 5000 m run. I was Doing half Marathons before I had my Heart attack.
  • Posted 06/03/2014 - 9:38am | Last activity 5 days 7 hours
    Hello everyone!! I am Thomas Martin, LVAD implant and explant patient. I am an author of two books, speaker and blogger on alternative health. I would like to write a book on the LVAD experience. I need the participation of LVAD patients and their caregivers.
  • Posted 01/25/2016 - 6:46pm | Last activity 5 days 7 hours
    My son received his Bilateral VADS the end of November. Does anyone else on the forum have bilateral VADS and if so any information or tips are greatly appreciated, Thanks