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  • Posted 07/12/2012 - 2:05pm | Last activity 5 days 7 hours
    The Canadian Cardiovascular Society has put out an updated position statement regarding their recommendations for allowing LVAD Recipients to drive.
  • Posted 09/10/2011 - 4:45pm | Last activity 5 days 7 hours
    It would be nice if you also included EX- Vadders.
  • Posted 09/08/2016 - 1:04pm | Last activity 5 days 7 hours
    Can any of you give me advice on international air travel with an LVAD? I live in South Africa but travel fairly regularly for work to the rest of Africa, Europe and the Middle East.
  • Posted 07/13/2014 - 4:18pm | Last activity 5 days 7 hours
    My husband had his LVAD since January and I noticed his temper is much shorter since he's been home. He does all his stuff on his own too and once in a while he will ask for help but not often. Mine is a case of mental abuse.
  • Posted 01/14/2013 - 6:38pm | Last activity 5 days 7 hours
    After mom had her vad put in on Dec 10 we have been very involved with her care. She is still in hospital with some complications but did spend a few days home and we realized the Vest and the Purse were way to cumbersome and heavy for her. She is 76 and very weak.
  • Posted 03/07/2012 - 9:58am | Last activity 5 days 7 hours
    This month the MyLVAD Community Spotlight features Angie and Tim. Tim was implanted with an LVAD in his early 30's due to idiopathic (unknown cause) cardiomyopathy. Angie, his wife, not only cared for him but also cared for their three young children and worked to help support their family.
  • Posted 04/03/2016 - 10:13pm | Last activity 5 days 7 hours
    Hi I am Robert Kiesewetter I just received my lvad just welcoming myself and saying hello.
  • Posted 10/21/2013 - 5:09pm | Last activity 5 days 7 hours
    Here is a new site made up by the LVAD community and for the LVAD community. There is an extensive library on what to wear, travel tips, Heart links, heart organizations and all things heart related. Please come and see. it is a closed group, so discussions are always kept private.
  • Posted 10/27/2012 - 10:56am | Last activity 5 days 7 hours
    I had a aicd replaced as the battery was low.(this was the same day I had a colonoscopy)for a bleeding problem that was corrected.The new aicd was a Medtronic device.After spending the night in the hospital I was discharged.Two days later I heard a low musical signal from somewhere in my body.
  • Posted 12/16/2011 - 2:02pm | Last activity 5 days 7 hours
    I wanted to address this because some of our LVAD friends do take showers.
  • Posted 05/31/2016 - 6:23pm | Last activity 5 days 7 hours
    My name is Wayne Guynn and I had my LVAD surgery on May 5, 2016. I hope I will learn how to live with it with the help of others who know what I'm going through.
  • Posted 02/27/2014 - 3:04am | Last activity 5 days 7 hours
    It is day 6 after a successful heart transplant as i sit wide awake at 3am in the ICU at Montefiore Hospital in the Bronx, NY. Tomorrow I go for my first biopsy to check rejection levels then head on home if coast is clear.
  • Posted 10/28/2013 - 11:37am | Last activity 5 days 7 hours
    Hi, I'm a new caregiver. My husband (49) got his VAD Aug 21 and is doing well except for dizzy spells and one really scarey pass out for 15 seconds. Is anyone experiencing these things and how are you dealing with it? We've done a right cath and echos and they are normal.
  • Posted 11/02/2012 - 9:00pm | Last activity 5 days 7 hours
    My father had his LVAD implanted on October 11, 2012. He has lost at least 50lbs and is unable to eat very much. He has good days and bad days with food. His biggest complaint is a pounding like sensation in his stomach. You can actually see what looks like a strong heartbeat in his stomach.
  • Posted 01/01/2012 - 11:29am | Last activity 5 days 7 hours
    I am looking forward to this year after getting my lvad in August.. It was rough the first few months, but I .am feeling better and can't wait for spring to arrive(do I sound like I'm in a hurry?) I hope all will be well for all of you in 2012!
  • Posted 07/06/2015 - 3:02pm | Last activity 5 days 7 hours
    What anchor does everyone use for their LVAD? I've been using the Centurion foley anchor. Anyone found anything better?
  • Posted 05/24/2013 - 10:45pm | Last activity 5 days 7 hours
    I AM NEW TO THE LVAD FAMILY! I GOT MY LAVD AUGUST 3,2012 AND IT HAS CHANGED MY LIFE!I HAVE SO MUCH ENERGY! I COULD NOT WALK AND BREATHE AT THE SAME TIME. BUT LIFE IS VERY GOOD NOW.THIS HAS HELP ME SO MUCH WITH MY CHF.I AM MY OWN CAREGIVER AND IT IS NOT HARD AT ALL.
  • Posted 07/31/2012 - 3:05pm | Last activity 5 days 7 hours
    Has anyone solved the problem of excessive sweating loosening the driveline dressing? Whenever my husband works outside when it is hot, he sweats so much that his driveline dressing loosens.
  • Posted 09/26/2011 - 12:40pm | Last activity 5 days 7 hours
    Since I got my LVAD my wife has washed my hair and I would like to start washing it my self. I am looking for tips.to wash it.
  • Posted 01/06/2017 - 4:47pm | Last activity 5 days 7 hours
    I think generators should be included in the package with batteries, charging station, and other accessories. Does anyone know of any programs that will help LVAD patients get one?

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