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Discussions: Caregiver Support

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Profile picture for user Rissa1974
CRIs S.
Caregiver Support

Nervous Wreck

Last activity 11 hours 55 minutes
My Husband had LVAD surgery on Friday 1/8/2021. About 10 pm that night they had to put a tube down his throat to see what was going wrong. By 1:00am Saturday Morning I had to consent again for them to go back in him because the right side of the heart wasn't strong enough. Well Sunday the nurse told...
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Bernita D.
Caregiver Support

L-VAD Failure

Last activity 3 weeks 4 days
My husband, Michael had his LVAD implanted in August 2019 after much discussion and lots of defib shocks. He has been in heart failure since his heart attack in 2017... well as of June 2020 it has been determined by his team that a heart transplant will not happen for him. He hasn’t been able to...
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Dee G.
Caregiver Support

Husband had surgery today

Last activity 2 months 1 week
First time posting but I’ve been lurking for a while. My husband had his lvad surgery today and although the left side of his heart is responding positively, his right side is functionIng worse than before surgery. He spent a week in the hospital with a balloon pump and his right side responded well...
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Dee G.
Caregiver Support

Any experience with Gabapentin and Seroquel

Last activity 2 months 1 week
My husband started on these two recently. Seroquel last Thursday and the Gabapentin on Saturday. They are to help with his delirium/encephalopathy. I have heard negative things about this drug combination- especially Seroquel. Anyone have experience with either of these working or not working? Thank...
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Roberta B.
Caregiver Support

Involuntary shaking

Last activity 2 months 1 week
My husband experiences involuntary shaking like he had a fever or something. He doesn’t have a fever so I’m wondering what could cause this?
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Jessica B.
Caregiver Support

Trauma around driveline @ 5 days post-op!!!

Last activity 3 months 1 week
My husband received his Heartware lvad on Oct 1, 2020. (Stemi heart attack Aug 4, 2020) Monday, (10/5/2020), two nurses & my hubby set off out to walk a few 'laps' around the cicu wing. Having previously walked behind a different 3some on Sat & Sun, rolling his chair directly behind them in case he...
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Maureen R.
Caregiver Support

Ischaemia

Last activity 3 months 2 weeks
My husband had his LVAD op October 2017 10 days later he developed bowed ischaemia and had life saving surgery again, he had bowel resection and an illeostomy. He is lucky to have survived. Now over year later he has had drive line infection, regular low magnesium and potassium also, he looses fluid...
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Osman A.
Caregiver Support

How to measure the blood pressure of an lvad patient?

Last activity 3 months 3 weeks
Hello everyone. My mother has been having LVAD for 6 years. We cannot measure his blood pressure in any way, sometimes it can be measured on the monitors in the hospital. There is a thrombus shortage in both the pump and the default. For this reason, we want to observe the blood pressure in some way...
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ulric k.
Caregiver Support

perfume

Last activity 3 months 4 weeks
WOODY SMELL is a masculine woody perfume for contemporary men, the notes include white spruce, amber, musk, violet leaves and blossoms, aquatic accord, woody vetiver and cedar.
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Linda H.
Caregiver Support

CAREGIVER ADVICE FOR SOMEONE WHO'S "GIVEN UP"

Last activity 4 months
My significant other had LVAD implantation last year in May. Before he had the surgery his heart function was at 15% and he had prepared himself that he was going to die. His children and I talked to him about pursuing LVAD surgery and he seemed receptive. We went to Mayo and they said he would be a...
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Katie P.
Caregiver Support

Younger VAD Couple

Last activity 5 months 4 weeks
Hello everyone! My husband is getting the LVAD this Friday. We knew about his heart failure but getting the VAD this early was a surprise, his condition has declined quickly. I'm nervous about a lot of things but would love advice from younger couples/families (older couples too if you have advice!)...
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Valerie L.
Caregiver Support

Introduction

Last activity 8 months 3 weeks
Hello all. I recently joined this forum because my husband has end stage congestive heart failure. I feel like this has happened so fast. He had a massive heart attack in May 2019 and his EF is 20%. He has been in and out of the hospital multiple times, many times for fluid retention. He has an ICD...
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Megan J.
Caregiver Support

Becoming a caregiver of a parent while having a husband and child

Last activity 9 months 3 weeks
Hello. I honestly just wanted some advice and knowledge on what to expect if my Mom ends up getting one. They are discussing it during this hospital admission. I have been looking after both of my parents for the past three months as my Mom has been in and out of the hospital and my Dad has...
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Beth D.
Caregiver Support

LVAD clothing

Last activity 1 year
My brother received his LVAD on 02/02/2015. We went through the same search. The vest he received in hospital was uncomfortable for him. At one of his therapy sessions we found the answer. I replicated an idea a fellow patient's wife devised for him. We use mans tank tops which I modify. Turn shirt...
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echo s.
Caregiver Support

caregiver

Last activity 1 year
Hi my ex husband is having an LVAD this wk. He has asked me to be a caregiver. I have researched much information, however I have not been able to find out much about what role caregiver takes. If anyone could tell me what to expect I would greatly appreciate it and any advice. Thank-you
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Nicole M.
Caregiver Support

Energy and weight loss after LVAD surgery

Last activity 1 year
Hello All, My father just had the LVAD surgery on October 12, 2017. I was wondering if anyone experienced weight loss or loss of energy after the surgery. If so, how long did it take for your weight loss to level out.
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Robin C.
Caregiver Support

Anxiety Attack???

Last activity 1 year 1 month
Hello All! My Dad had his LVAD surgery on the 6th of March, 2019. I believe he had an anxiety attack today but wanted to see if anyone else had any of the same symptoms. He's 79 and had a heart attack in 2015. Was told February 6th he had 3-6 months to live if he didn't try to qualify for the LVAD...
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Samantha B.
Caregiver Support

LVAD Failure

Last activity 1 year 2 months
This may not be the forum for this question, but who better to answer my questions than those living with an LVAD and the people who care for them. My fathers LVAD (Heart Mate II) was implanted August 2015. When he had his heart attack we were literally told to take him home so he could die, as the...
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Scott M.
Caregiver Support

Stephanie

Last activity 1 year 5 months
My wife of 37 years is the entire reason for my survival. I had a heart mate 2 put in in January 2019. She has been by my side the entire 2 months in hospital. God bless her. Love you Steph!!
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Channing R.
Caregiver Support

ICU Psychosis

Last activity 1 year 6 months
My father had LVAD surgery on June 11th since then things have moved more slowly with his recovery than we had hoped. For the last 7-8 days has been suffering from low sodium levels, low oxygen levels, and bouts of what they are calling ICU Psychosis. He either is disoriented and unsure of where he...
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Topics

Caregiver Support
Research Participation Opportunities
Clothing Options
Congestive Heart Failure
Diet
Driveline Management
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Exercise and Physical Activity
Financing and Insurance
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Most Commented

Where are the recent posts, I am scared!!
136 replies
HeartMate III Mens Clothing
93 replies
My Wife Made Me a Wonderful LVAD Vest! Email us…
70 replies
Shower Protection
57 replies
Ongoing scabs driveline
55 replies

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Most Viewed

My Wife Made Me a Wonderful LVAD Vest! Email us…
58,985 views
Discouraged
49,946 views
LVAD supplies--- Who supplies them for you ?
48,905 views
Attitude is Everything
48,793 views
Tactile holster T shirt for carrying LVAD items
42,468 views

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Facebook Groups

  • MyLVAD
    MyLVAD
    1892+ likes
    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
  • LVAD Connection
    LVAD Connection
    566+ likes
    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
  • LVAD Recipients
    LVAD Recipients
    2722+ likes
    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

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