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Ashley X. Medical Professional

Are you a caregiver? Would you like to voice your opinions and thoughts? - Please Participate in The LVAD Caregiver Study

--Invitation to Participate--
We would like to better understand the experience of providing care to a family member or friend with an LVAD. If you are a caregiver of someone with a LVAD, we invite you
to copy paste on the following link to see if you are eligible to participate in our study.

https://ashleyxujhu.github.io/LVAD-Caregiver-Study/

SURVEY PassWord: lvadislife

To be included in the study, you must:
• Primary caregivers of individuals who have undergone LVAD implantation.
• 18 years of age or older.
• Ability to read, speak and understand English
• Able to use computer and navigate the Internet.

Your opinions are important and could help us in developing ways to better support those who care for people with LVADs!

Ashley Xu 
Nurse PhD Student
Johns Hopkins University

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Ashley X.

As a token of appreciation, you will receive $10 gift card for completing the survey and $15 for attending the focus group. If you have any questions, don’t hesitate to contact me. Thank you for all the supports so far! Stay strong. 

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Ashley X.

Thank you LVADers and caregivers for your continuing support! In just one month we have reached almost the halfway mark for our study participants requirement:) Looking forward to the finish line and presenting the results to everyone. 

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Bernita D.

My husband had his LVad implanted 8/28. His recovery went well. Was discharged after 15 days and it’s been a roller coaster since then. He stayed home not even a full week and then had to be readmitted because of low flow alarms. Now he’s about to have another procedure that’s gonna have him in ICU for the next 48 hours. He’s not getting enough fluid. Sodium low. I know everything will be alright. Just wondering if anyone else has experienced this.

 

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Steven R.

He probably needs more fluid.  I had low flows when I first started also.  I was told to drink at least 64oz of water  a day.   That’s a 2 liter bottle.  Another thing that helps is gator aid.  It helps you retain water because of the sodium in the drink.  Is he on a fluid pills I.e. lasix, entresto, spironolactone?  If he takes anyone of these he will pee out all the time because these remove fluid from the body and sodium.

 

Hope this helps.

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Kevin B.

I would like to participate in the caregiver survey but are unable to use password given.

AMB

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Cheryl G.

I would like to do the survey but it says I need a password.