Welcome to MyLVAD!
For many years, physicians, engineers and scientists have worked tirelessly to develop solutions for advanced congestive heart failure. We have achieved a breakthrough in technology that we hope will change thousands of lives -- left sided artificial hearts known as left ventricular assist devices, or LVADs. Since the initiation of the use of this technology, a need arose for an Internet based community for LVAD recipients, their families and friends -- to reach out, network and better understand their new lives through their connections with others. It is our hope that mylvad.com meets these needs.
The site is a resource for LVAD patients and for their loved ones. For recipients, it will provide information through social connectivity, written content, and webinars which we hope will help to maximize your quality of life. For caregivers and loved ones, it is our hope that this site will provide you with the resources and support necessary to help you adjust, not only to your loved ones needs, but to yours as well.
We welcome you to the site as family. Your valuable feedback is vital to improve upon our efforts. You and your loved ones are the heroes, and we take our hats off to you.
Live long, live well and enjoy!
Steven W. Boyce, M.D.
Dawn M. Christensen, MS, FNP-BC, ACNP-BC
Funding for MyLVAD is provided by private donors. Without their generous support, we would not be able to provide this resource.
MyLVAD Foundation, LTD.
Collection of your Personal Information
To better provide you with products and services offered on our Site, MyLVAD may collect personally identifiable information such as your:
- First and Last Name
- Mailing Address
- Email Address
- Phone Number
- Job Title
- MCS Device Name
- MCS Device Implant Center
- MCS Device Implant Date
- Role in the MCS and HF community
MyLVAD may also collect anonymous demographic information, which is not unique to you.
Please keep in mind that if you directly disclose personally identifiable information or personally sensitive data through MyLVAD’s public message boards, this information may be collected and used by others.
We do not collect any personal information about you unless you voluntarily provide it to us. However, you may be required to provide certain personal information to us when you elect to use certain products or services available on the Site. These may include: (a) registering for an account on our Site; (b) entering sweepstakes or contest sponsored by us or one of our partners; (c) signing up for special offers from selected third parties; (d) sending us an email message; (e) submitting your credit card or other payment information when ordering and purchasing products and services on our Site. To wit, we will use your information for, but not limited to, communicating with you in relation to services and/or products you have requested from us. We also may gather additional personal or non-personal information in the future.
Use of your Personal Information
MyLVAD collects and uses your personal information to operate its website(s) and deliver the services you have requested.
MyLVAD may also use your personally identifiable information to inform you of other products or services available from MyLVAD and its affiliates.
Sharing Information with Third Parties
MyLVAD does not sell, rent or lease its customer lists to third parties.
MyLVAD may share data with trusted partners to help perform statistical analysis, send you email or postal mail, provide customer support, or arrange for deliveries. All such third parties are prohibited from using your personal information except to provide these services to MyLVAD, and they are required to maintain the confidentiality of your information.
MyLVAD may disclose your personal information without notice if required to do so by law or in the good faith belief that such action is necessary to: (a) conform to the edicts of the law or comply with legal process served on MyLVAD or the Site; (b) protect and defend the rights or property of MyLVAD; and/or (c) act under exigent circumstances to protect the personal safety of users of MyLVAD, or the public.
Tracking User Behavior
MyLVAD may keep track of the websites and pages our users visit within MyLVAD, in order to determine what MyLVAD services are the most popular. This data is used to deliver customized content and advertising within MyLVAD to customers whose behavior indicates that they are interested in a particular subject area.
Automatically Collected Information
Information about your computer hardware and software may be automatically collected by MyLVAD. This information can include your IP address, browser type, domain names, access times, and referring website addresses. This information is used for the operation of the service, to maintain quality of the service, and to provide general statistics regarding use of the MyLVAD website.
The MyLVAD website may use “cookies” to help you personalize your online experience. A cookie is a text file that is placed on your hard disk by a web page server. Cookies cannot be used to run programs or deliver viruses to your computer. Cookies are uniquely assigned to you and can only be read by a web server in the domain that issued the cookie to you.
One of the primary purposes of cookies is to provide a convenience feature to save you time. The purpose of a cookie is to tell the Web server that you have returned to a specific page. For example, if you personalize MyLVAD pages, or register with MyLVAD site or services, a cookie helps MyLVAD to recall your specific information on subsequent visits. This simplifies the process of recording your personal information, such as billing addresses, shipping addresses, and so on. When you return to the same MyLVAD website, the information you previously provided can be retrieved, so you can easily use the MyLVAD features that you customized.
You have the ability to accept or decline cookies. Most Web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. If you choose to decline cookies, you may not be able to fully experience the interactive features of the MyLVAD services or websites you visit.
This website contains links to other sites. Please be aware that we are not responsible for the content or privacy practices of such other sites. We encourage our users to be aware when they leave our Site and to read the privacy statements of any other site that collects personally identifiable information.
Security of your Personal Information
MyLVAD secures your personal information from unauthorized access, use or disclosure. MyLVAD uses SSL Protocol for this purpose. When personal information (such as a credit card number) is transmitted to other websites, it is protected through the use of encryption, such as Secure Sockets Layer (SSL) protocol.
We strive to take appropriate security measures to protect against unauthorized access to or alteration of your personal information. Unfortunately, no data transmission of the Internet or any wireless network can be guaranteed to be 100% secure. As a result, while we strive to protect your personal information, you acknowledge that: (a) there are security and privacy limitation inherent to the Internet which are beyond our control; and (b) security, integrity, and privacy of any and all information and data exchanged between you and us through this Site cannot be guaranteed.
Right to Deletion
Subject to certain exceptions set out below, on receipt of a verifiable request from you, we will:
- Delete your personal information from our records; and
- Direct any service providers to delete your personal information from their records.
Please note that we may not be able to comply with requests to delete your personal information if it is necessary to:
- Complete the transaction for which the personal information was collected, fulfill the terms of a written warranty or product recall conducted in accordance with federal law, provide a good or service requested by you, or reasonably anticipated within the context of our ongoing business relationship with you, or otherwise perform a contract between you and us;
- Detect security incidents, protect against malicious, deceptive, fraudulent, or illegal activity; or prosecute those responsible for that activity;
- Debug to identify and repair errors that impair existing intended functionality;
- Exercise free speech, ensure the right of another consumer to exercise his or her right of free speech, or exercise another right provided for by law;
- Comply with the California Electronic Communications Privacy Act;
- Engage in public or peer-reviewed scientific, historical, or statistical research in the public interest that adheres to all other applicable ethics and privacy laws, when our deletion of the information is likely to render impossible or seriously impair the achievement of such research, provided we have obtained your informed consent;
- Enable solely internal uses that are reasonably aligned with your expectations based on your relationship with us;
- Comply with an existing legal obligation; or
- Otherwise use your personal information, internally, in a lawful manner that is compatible with the context in which you provided the information.
Children Under Thirteen
MyLVAD does not knowingly collect personally identifiable information from children under the age of thirteen. If you are under the age of thirteen, you must ask your parent or guardian for permission to use this website.
From time to time, MyLVAD may contact you via email for the purpose of providing announcements, promotional offers, alerts, confirmation, surveys, and/or other general communication. In order to improve our Services, we may receive a notification when you open an email from MyLVAD or click on a link therein.
If you would like to stop receiving marketing or promotional communications via email from MyLVAD, you may opt-out of such communications by clicking on the UNSUBSCRIBE button.
External Data Storage Sites
We may store your data on servers provided by third party hosting vendors with whom we have contracted.
Changes to this Statement
MyLVAD welcomes your questions or comments regarding this Statement of Privacy. If you believe that MyLVAD has not adhered to this Statement, please contact MyLVAD at:
MyLVAD Foundation, LTD
66 Cardinal Road
Pine Grove, PA. 17963
Email Address: firstname.lastname@example.org
Telephone Number: +1 570-573-1277
Effective as of January 1, 2020