Patients and Caregivers Forums

Hi! I recently received a heart transplant(!!!) and I have 24 extra driveline management 'kits' available. See picture below of 1 of the kits, they are all exactly the same. If someone can use these I am willing to ship them to you free of charge(within USA only, please). Leave a reply here if...

Today was my education day with my LVAD coordinator, Social worker, pharmist and finance. Of course at this point I am overwhelmed with all the information and such that I got today. My LVAD surgeon will meet with his team next Tuesday to discuss my case, but according to him there is no other...

Hello everyone! My husband is getting the LVAD this Friday. We knew about his heart failure but getting the VAD this early was a surprise, his condition has declined quickly. I'm nervous about a lot of things but would love advice from younger couples/families (older couples too if you have advice!)...

Hi, hello, good afternoon! My husband is jumping through the hoops to get qualified for the Heartmate II. We're just about done and meeting with the LVAD surgeon in just a week. I don't see many recent posts and it concerns me dearly. My husband is not a bridge to transplant due to his age (73) and...

Now at age 70, living in the USA, I have to let my ten-year level term insurance expire because the rates were set to climb rapidly anyway. I have to search for a new company, maybe with much less coverage to keep my monthly or quarterly fees affordable, but I don't know if any company would take me...

I am a recipient for an LVAD before I decide whether I'm going to do it or not I really wanna know about it and I have some questions here's the first question that comes to mind...... Will I have a pacemaker and defibrillator with my LVAD or will they take the pacemaker and defibrillator out and...

Hello all, So my boyfriend is currently in the hospital due to water retention from congestive heart failure, at first they had discussed putting in a difibulator in. A couple days later he was transfered to a larger hospital to have said difibulator put in. Days later and like what seemed to be a...

Hello everyone. My husband has had two lvads. The first was a heart ware .And the second is a heart mate three. The first one ended up giving him a blood clot inside the lvad. Two strokes and two brain bleeds. He has come back for the most part . Right side weakness, short term memory loss . Doing...

Hello everybody, Just wondering if anyone here has ever had success with Weight Loss Cognitive Behavioral Therapy?. I read that if you can change the way your mind thinks about eating food (then you can lose weight by doing so, by convincing yourself you only need to eat a little instead of alot)...

Hi all, well I got "that" phone call the other day and my admission date to the hospital is April 12, 2021. Insurance has approved either/or pumps. Either the LVAD (HeartMate3) or the new LVAS (EvaHeart). I am in the clinical trials for the Evaheart so we will see what they decide to do. Also got my...

Hi Everyone, My name is Arthur Canga, I'm from Brazil. My dad got the heartmate 3 this past July and i would like to get a few tips or some suggestions to protect his driveline during the shower. What kind of bandage is more secure to avoid his driveline of getting wet? He is starting to get some...

Just wondering if anyone else have ongoing scabs around the drive line my doctor says the site looks good no infections and it would never heal because no matter how secure the line is it still moves. Had my lvad since Aug 2018 doing well even went to my winter camp for ice fishing and my inverter...

Hi! I recently lost my brother after the LVAD extended his life for 5 years. I had the pleasure of adding pockets to clothing for his batteries. I have a pair of bib overall with the pockets added that he did not have the opportunity to wear. I would love to pass them along to someone. They are size...

Many of you have probably seen this. For those who haven’t, Google the title above. All the best!

My husband recently passed away due to many different health issues. I don’t have a lot but I do have some bandaging supplies diabetic paraphernalia including insulin that is good until 2022. I would be more than happy to give it to someone instead of throwing it away. let me know if you’re...

Any news of development of smaller batteries and if so when are they likely to be implemented - Thanks

My Husband had LVAD surgery on Friday 1/8/2021. About 10 pm that night they had to put a tube down his throat to see what was going wrong. By 1:00am Saturday Morning I had to consent again for them to go back in him because the right side of the heart wasn't strong enough. Well Sunday the nurse told...

My mom had an lvad and she passed away. I have a bunch of equipment I would rather donate than just getting rid of. I would love to hear any ideas. I can send pictures if needed. Email me. Klwatk2@gmail.com

I just want to know if it's normal....when i grow up the stairs... my lvad made a bizarre sound like :crunch... crunch ?? it is normal... ? I am a French person ...sorry for my english language.

I want to know if it's normal to listen the Lvad whwn i sleep