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Profile picture for user sandraharm@yahoo.com
Sandra K.
Equipment

Batteries all the time!

Last activity 1 week
I got my LVAD July 2021, Heartmate III. I found that using wall power made me nervous overnight, after the power went out. I find it easier to use batteries day and night now. Anyone else do this?
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Profile picture for user RichmondLVAD
Henry R.
Tips and Tricks

FREE LVAD VEST INSTRUCTIONS. My Wife Made Me a Wonderful LVAD Vest! Email us For FREE INSTRUCTIONS at hankpattyrichmond@sbcglobal.net Updated 2023

Last activity 1 week 3 days
PLEASE EMAIL US DIRECTLY FOR INSTRUCTIONS at Hankpattyrichmond@sbcglobal.net. We have received and filled hundreds of requests for the LVAD vest instructions. We hope that you were able to make your vest and are enjoying its benefits. My name is Hank Richmond. I received my LVAD on Friday the 13th...
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Profile picture for user Kristi
Kristi W.
Equipment

Equipment donation

Last activity 2 weeks 2 days
My mom had an lvad and she passed away. I have a bunch of equipment I would rather donate than just getting rid of. I would love to hear any ideas. I can send pictures if needed. Email me. Klwatk2@gmail.com
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Profile picture for user thomasjpello
Thomas P.
Equipment

Wall charger, Extra batteries, and Others HeartMate III stuffs

Last activity 2 weeks 2 days
Hi all, We have some pieces of equipment that we do not use anymore. 1. 4 batteries 2. Batteries Charging station 3. Driveline wall power device 4. Unopen dressings for the driveline 5. 9x9 Shower Shields 6. 2 Shower bags (1 unused) 7. 2 Travel bags (both unused) We are in the Seattle area. Contact...
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Profile picture for user chillios
Chris H.
Clothing Options

VAD WEAR is having a LABOR DAY Sale!

Last activity 3 weeks
VAD Wear is having a Labor Day sale! August 31st through September 5th. Save 10% off site wide. VAD Wear Vests . com Etsy shop: VADWear
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Profile picture for user joemanuola
Joe M.
Clothing Options

HeartMate III Mens Clothing

Last activity 3 weeks
I received a HeartMate III LVAD on 1/25/19. I have been home from the hospital for 5 days and I am using a Thoratec vest that was given to me at the hospital.I am ready to order mens clothing to accommodate my LVAD and would appreciate some advice. The batteries are now hanging on my side and the...
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Profile picture for user PhilInMS1985
Phillip M.
Exercise and Physical Activity

Chiropractor

Last activity 3 weeks 2 days
Has anyone tried using a chiropractor?
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Anonymous
Caregiver Support

Home health for dementia and lvad

Last activity 1 month 2 weeks
My husband has a lvad and his dementia is getting worse. Has anyone gone through this?
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Profile picture for user srkasten
Steve K.
Living with an LVAD

Nerve pain from lvad pump

Last activity 1 month 2 weeks
Any one suffer nerve pain in chest due to lvad pressing on nerve. I've had lvad since Jan 2019 and and gone through many issues. New issue as of March 2023 is lvad pressing on nerve. Some times it's very painful. Lvad team suggested a nerve block procedure as sometimes they work. I hate to have to...
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Profile picture for user tigerchar
Charlotte T.
Patient and Caregiver Forums

harness

Last activity 1 month 3 weeks
Is there anyone that uses the harness system? If you do what do you do with the wires??
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Profile picture for user Joan56
Joan K.
Equipment

LVAD anchor - what is everyone using?

Last activity 1 month 3 weeks
We are having problems getting the anchor that my husband has been using since he received his LVAD. He’s using the Hollister 9781. What is everyone else using? Maybe there’s an alternative that is more readily available for us. Thank you for your help with our search.
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MATHEW M.
Exercise and Physical Activity

Beautiful day for a trike ride!

Last activity 2 months
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Profile picture for user Kim Biondo
Kim B.
Financing and Insurance

Coping with Reality

Last activity 2 months 1 week
How do others do it? My husband had a heart attack end of January 2022 and received an LVAD on Valentines Day. He is home and going through cardiac rehab but because there was a head injury, injury to femoral artery and now he has neuropathy in his feet bad, he can't work again. This was supposed to...
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Profile picture for user mattkerrybritt@msn.com
Matthew B.
New to LVADs

Monthly out of pocket cost for LVAD patient

Last activity 2 months 1 week
Good Evening, So I am assuming that most patients here are on medicare medical insurance. Can anyone share what the monthly out of pocket cost are for someone who has an LVAD unit? Hospital staff is not really giving me a straight answer. Should be pretty straight forward. Anyone have any financial...
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Profile picture for user ELJ
Emma K.
Exercise and Physical Activity

Unwanted Pins and needles

Last activity 2 months 2 weeks
Hi, Has anyone been having pins and needles in their ankles at night since having their LVAD fitted? It’s really annoying and stopping me from sleeping Emma knight
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Profile picture for user ELJ
Emma K.
Diet

Diet

Last activity 2 months 2 weeks
Is anyone struggling with eating? Since coming out of hospital, may this year, my appetite has really gone. I hope it will come back in time because I love my food normally. I am worried as if I don’t put any weight on I won’t be able to have a transplant in the future. Emma
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Profile picture for user Smiley
Angela B.
Inspiration and Encouragement

Everyday Is A New Day

Last activity 2 months 2 weeks
Hello LVAD Family, I hope you all are reading this in the best of spirits. Just felt like uplifting someone day and to let you know that you are NOT ALONE! I know things get hard, you get sad, you get depressed and you may even want to give up but please please stay in the fight! Continue to put one...
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Profile picture for user PhilInMS1985
Phillip M.
Equipment

New Product to Secure Driveline

Last activity 2 months 2 weeks
I have always had issues securing the driveline to my stomach using anchors or tape. It always seems to pull off or get stuck on my shirt. I found adhesive patches for insulin arm sensors. Amazon has waterproof adhesives. They flex so if there's any movement of the driveline the entire patch doesn't...
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Profile picture for user Kim Biondo
Kim B.
Clothing Options

HOMEMADE LVAD SHIRTS

Last activity 2 months 3 weeks
I asked my husband who has a Heartmate 3 to dig out ten old t shirts he will still wear. THis is all he used to wear so he is comfortable in them. Then I got donations of old t shirts from our children and cut them up to make pockets to go on his old t shirts. I sew two pockets under the arms and...
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Profile picture for user Brant
Brant S.
Living with an LVAD

Home INR testing

Last activity 2 months 4 weeks
Does anyone here do their own INR testing at home. If so how did your team approach it, does the tester work well and what brand if tester do you use. Getting lab work is expensive with the co pay and I am personally sick of being a pin cushion lol Thank you for any help.
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Topics

Caregiver Support
Research Participation Opportunities
Clothing Options
Congestive Heart Failure
Diet
Driveline Management
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Financing and Insurance
Inspiration and Encouragement

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Most Commented

Where are the recent posts, I am scared!!
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HeartMate III Mens Clothing
112 replies
9 years today (20th Oct 2020) living with LVAD
86 replies
FREE LVAD VEST INSTRUCTIONS. My Wife Made Me a…
80 replies
Equipment donation
79 replies

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FREE LVAD VEST INSTRUCTIONS. My Wife Made Me a…
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LVAD supplies--- Who supplies them for you ?
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Tactile holster T shirt for carrying LVAD items
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Facebook Groups

  • MyLVAD
    MyLVAD
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    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
  • LVAD Connection
    LVAD Connection
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    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
  • LVAD Recipients
    LVAD Recipients
    2722+ likes
    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

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