Community Forums

I am the proud owner of a Heartmate 3 LVAD. I have had it for 15 months now and have has an interesting ride, but that is for a later post. My issues have been with driveline management and skin rashes. My skin is very sensitive to tape and adhesives and it has been a challenge to find the most...

Hello everyone. I am just now beginning to discuss the option on an LVAD with my cardiologist. I have had Dilated Cardiomyopathy for 15 years. Life was a breeze, cruising along at 35% EF, up from 20% at dx. However, the last year has been tough. My EF is now back to 20% and I've been hospitalized...

Hi my ex husband is having an LVAD this wk. He has asked me to be a caregiver. I have researched much information, however I have not been able to find out much about what role caregiver takes. If anyone could tell me what to expect I would greatly appreciate it and any advice. Thank-you

my husband is 72 end stage chf he had LVAD surgery fri morn it’s now tues and is still Intubated . Whenever the drs try to wake him up he gets very agitated and stressed. So the have to re intubate him. I am very scared for him. Is the confusion he is experiencing normal. ?

My husband had his LVAD placed on February 11, 2019. Right now we should be experiencing a lot of then things you all are posting about. What to wear, what can he do, what has it been like etc. We had plans. Unfortunately for me, God had other plans. My beloved died on February 13, 2019. See he...

I have recently 'celebrated' 10 years of living with an 'antiquated' Ventrassist LVAD in the UK. Life has not been easy with the heavy batteries and so on, but the 'behaviour' of the pump itself has been exemplary! We are getting to the stage where getting batteries for it can be quite difficult....

Bivad anyone have them? Them?

It has now been eight weeks since my LVAD implantation and life has been going reasonably well since my surgery. Two weeks in the hospital, one week in a motel adjacent to the hospital, five weeks at home. My caregiver returned to his family last week so I am now on my own. I will be starting back...

I received a HeartMate III LVAD on 1/25/19. I have been home from the hospital for 5 days and I am using a Thoratec vest that was given to me at the hospital. I am ready to order mens clothing to accommodate my LVAD and would appreciate some advice. The batteries are now hanging on my side and the...

Hi, am I able to ride a bike?, where live now I can ride one around and not worry getting hurt or hit by a car. Thank you for your time and Peace be with you all.

My husband and I have a motorhome and would like to resume travelling. Since we enjoy state and federal parks which often have no electric hookups we will have problems with charging batteries and using the mobile power unit. There must be others out there who can help us with an answer to this...

Hi. I am new here. I received my Lvad on December 29, 2017 after 20 years with congestive heart failure. In early 2016 my heart started getting extremely worse. in 7 months I was hospitalised 8 times. After 5 days the drs said i was ready to go home. I have had no problems so far. My question is...

This is my first post. My husband has had his LVAD for five weeks now, and I want to share this web site with you all for making your life easier with a LVAD. My husband is so grateful to discover how this shirt gave him freedom to do daily life activities. Take a peek and see if it is something you...

The most favorite Lvad t-shirt now available on black friday https://www.facebook.com/LVADshirt/posts/1973147372701194

Hi, my name is phil lay and I've been the care giver for a grouchy old man since he received his first lvad (he's on his third one now). I've been fired several times, mind you I've never been hired or paid. I do it outta love for the old fart. So here's my question: he's in Sutter again, and this...

My husband was diagnosed with CHF in 2014. In 2017 he had a stroke and his heart enlarged and as time went on, his heart health declined a lot. Last week, while I was pumping gas, my husband, son (5 yrs) and daughter (2yrs) were in the car and my husbands ICD fired. HIs ICD fired a total of 54 in 40...

hi, I’ve had my lvad for 8months, had the surgery in Canada, then I’ve recently moved back to the u.k. I’ve not really met anyone with the lvad, it would be nice to swap stories, tips and chat about living with the device would be nice.

Has anyone used a NMES unit for foot drop on a person with an HVAD in place?

Hi everybody, I'm hope one of you all have or had this problem. I am having trouble getting my doppler to get to 80 to 85 and I'm having trouble to get the right blood pressure meds. I will get some that doesn't work,or I get one that I' m have an allergy to..... that is the problem I am having. My...