Community Forums

Hello, My name is Meghan and my boyfriend, Chris, recently received a HeartMate 3 on December 27th. I am 25 years old and my boyfriend is only 30. He was diagnosed with dilated cardiomyopathy on Halloween, so this process came very quickly for us. Chris has been medically sedated since December 14th...

Any tips on playing golf with HeartMate II and equipment ideas. I just put batteries in cargo shorts pockets with controller around my waist. Any other ideas?

Hello, My dad just got his HeartMate 3 six days ago. He obviously has a long road ahead of him, but I am trying to gather as much info and get things as ready as I can before he comes to live with me. My dad is a jack of all trades - he was a cop, a machinist, pilot, can build anything etc. My...

Hi Everyone, Not sure if this is of help to anyone... I have been concerned about my HeartMate plug being accidentally pulled out of the wall socket. Not usually something to worry about. However, I have had another plug separated enough from the scocket to turn off a light when my cat jumped over...

I've got to assume there is some backup equipment out there that one can purchase; whether it be from a heart transplant patient or from someone whose family member has unfortunately passed away? We would like not to lug equipment back and forth between two homes. Does anyone have an information on...

I am the proud owner of a Heartmate 3 LVAD. I have had it for 15 months now and have has an interesting ride, but that is for a later post. My issues have been with driveline management and skin rashes. My skin is very sensitive to tape and adhesives and it has been a challenge to find the most...

Hi, hello, good afternoon! My husband is jumping through the hoops to get qualified for the Heartmate II. We're just about done and meeting with the LVAD surgeon in just a week. I don't see many recent posts and it concerns me dearly. My husband is not a bridge to transplant due to his age (73) and...

FOR FASTEST RESPONSE, Please email for instructions directly at hankpattyrichmond@sbcglobal.net We have received and filled more than 200 requests for the LVAD vest instructions. We hope that you were able to make your vest and are enjoying its benefits. If you would like to email us pictures of...

I have an ICD as well as my LVAD. Can the two affect each other. I had three alarms on my control unit but I felt like I do before getting a shock. I am interested in knowing if anyone else is having this outcome ?

Upload a picture and show us how you wear your equipment!

I am 49 and got my lvad in September 2017, I have been playing guitar since I was 10 . Now the problem is my electric guitar picks up the pump and transmits it through the amp to the point of not being able to play. I don't think there is going to be any solution to this but I thought I would throw...

This is my first post. My husband has had his LVAD for five weeks now, and I want to share this web site with you all for making your life easier with a LVAD. My husband is so grateful to discover how this shirt gave him freedom to do daily life activities. Take a peek and see if it is something you...

My journey began in December 2015. I had to have a pacemaker implanted. I thought that had solved my heart problem. Not until I arrived in GA did I eventually learn that I had chronic heart failure. I was sent to a Heart Failure Clinic in Atlanta. My cardiologist suggested that I get on the heart...

I am writing this in hope of finding someone with some advice. Perhaps someone out there has experienced the following sympoms and has found healing. My father, is currently in the hospital and his team doesn't know for sure what is causing his constant dizziness and low PI. He has also experienced...

My husband got a HeartMate3 on Sept 13, 2018 - his 76th birthday. He went from final stages of heart failure - basically send him home on a drip to die - to a remarkable recovery. Other than his heart, he has always been physically fit. After surgery and adjustment, he went home after 2 weeks, weak...

Hello everyone! As a cardiac rehab nurse supervisor I want you to know nurses understand your journey from heart failure - meds- hospitalizations and decreased quality of life leading to decision of LVAD. Cardiac rehabs can help you in your recovery we monitor you and we help you regain your muscle...

I am preparing for my LVAD surgery next month. Other than clothing, what types of supplies will I likely need to purchase for myself (not covered by insurance)? Are there additional products that people have made your life with a VAD easier that were not mentioned by your medical team?

My brother passed away in November he had a spare lvad I am trying to sell it to pay for his final expenses does anyone need a spare?

Hi all! I am new to the LVAD caregiver community. My Father-in-law has his LVAD surgery this Wednesday. He is a BIG lover of the outdoors so I want to get him a fishing style vest to haul around his equipment in (his backup equipment will be in a bag). Can anyone with a HeartMate 3 tell me the...