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Profile picture for user Anonymous
Anonymous
Living with an LVAD

Traveling to the Grand Canyon.

Last activity 1 day 12 hours
Actually I am a caregiver. My husband is the VAD recipient. We are on a 2 week trip at the Grand Canyon then on to Denver to visit our son and daughter in law. Having a great time. The altitude has reduced his breathing comfort. We are staying on paved pathways and do not plan to hike! At 78 Ned is...
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Profile picture for user marcan74
Mary C.
Clothing Options

Heart ware lvad shirts

Last activity 1 day 13 hours
My husband recently passed away. I have 4 lvad vest shirts (3 black, 2white, size medium). They work really well and are comfortable with a Heartware lvad. I would like to donate them since I know they are costly to buy.
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Profile picture for user Patty F
Patricia F.
Clothing Options

LVAD Gear to share

Last activity 6 days 10 hours
I have two LVAD Gear tank tops that we no longer need. One 3X in black and one 4X in black. They were used for the Heartmate III system. Used, but still in reasonable condition. No charge... just clearing items we no longer need. Please let me know if you can use them. Also have the shower bags...
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Profile picture for user COLLEENH
colleen h.
Caregiver Support

Pain from driveline

Last activity 1 week 3 days
My husband had Lvad surgery 6/2/22. He has the Heartmate 3. Today finally he got up and walked a little. But he is having excruciating pain at the drive line site when he stands and sits. He says it hurts all the time but not as bad as when he stands and sits. He says it feels like someone is...
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Profile picture for user Cat Shaw
Cat S.
New to LVADs

Where are the recent posts, I am scared!!

Last activity 1 week 3 days
Hi, hello, good afternoon! My husband is jumping through the hoops to get qualified for the Heartmate II. We're just about done and meeting with the LVAD surgeon in just a week. I don't see many recent posts and it concerns me dearly. My husband is not a bridge to transplant due to his age (73) and...
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Profile picture for user Patty F
Patricia F.
Driveline Management

LVAD Weekly Change Kits

Last activity 2 weeks
Hello... I have 9 Centurion Driveline Management System Kits. Part number DT17415. If you can use these please let me know; no charge, of course. I also have a few extra foley anchors. Just cleaning out supplies we no longer need.
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Profile picture for user presbytal
Sravasti T.
Equipment

Equipment & Dressing to give away

Last activity 2 weeks 1 day
Hi All After 2&1/2 years of using HVAD (Heartwear from Medtronics), my husband passed due to device malfunction (they gave him impella as a temporary device, but this time it didnt work). He fought valiantly for 2 months, and did recover his cognition etc. (was able to remember everything, follow...
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Profile picture for user presbytal
Sravasti T.
Equipment

Equipment & Dressing to give away

Last activity 2 weeks 1 day
Hi All After 2&1/2 years of using HVAD (Heartwear from Medtronics), my husband passed due to device malfunction (they gave him impella as a temporary device, but this time it didnt work). He fought valiantly for 2 months, and did recover his cognition etc. (was able to remember everything, follow...
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Profile picture for user RichmondLVAD
Henry R.
Tips and Tricks

My Wife Made Me a Wonderful LVAD Vest! Email us For FREE INSTRUCTIONS at hankpattyrichmond@sbcglobal.net New 2021

Last activity 2 weeks 3 days
PLEASE EMAIL US DIRECTLY FOR INSTRUCTIONS at Hankpattyrichmond@sbcglobal.net. We have received and filled hundreds of requests for the LVAD vest instructions. We hope that you were able to make your vest and are enjoying its benefits. My name is Hank Richmond. I received my LVAD on Friday the 13th...
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Profile picture for user LilMsMisses
Brittney M.
Patient and Caregiver Forums

My Mom

Last activity 3 weeks 3 days
I haven’t written anything on this forum since my mom got her LVAD that back in 2019. The circumstances Nat my mom received her LVAD that in were not ideal. I took her for an appointment, as I have been doing many times since her heart failure diagnosis, and we were told that if she left she would...
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Profile picture for user kimelliott
Kim E.
Exercise and Physical Activity

Cardiac Rehab

Last activity 4 weeks
Hello everyone! As a cardiac rehab nurse supervisor I want you to know nurses understand your journey from heart failure - meds- hospitalizations and decreased quality of life leading to decision of LVAD. Cardiac rehabs can help you in your recovery we monitor you and we help you regain your muscle...
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Profile picture for user COLLEENH
colleen h.
Caregiver Support

colleen h

Last activity 4 weeks 1 day
I want to thank everyone for looking and responding to my posts. It makes me feel better to know that I am not alone in this. Good news my husband is coming home today from the hospital, he was denied a rehab facility because he walked 160 ft. He is still very weak and I'm not gonna lie but I am...
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Profile picture for user Cklymec
Candace K.
Clothing Options

LVAD Tshirts to give

Last activity 1 month
Hello, I have 9 LVAD tshirts that I would like to donate. 7 are white 2 are black all size Mens XL. Please let me know if you or someone you know could really use them. I know they are pricey!
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Profile picture for user stonks123
P K.
New to LVADs

Destination therapy LVAD not available in UK?

Last activity 1 month
Hi everyone, My father, 67 is in hospital in the UK with heart failure and poor output and heart stability (he's had stents and a pacemaker fitted in the past). He seems the perfect candidate for a LVAD as destination therapy but the heart doctor stated that the UK only did LVADs as bridge to...
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Profile picture for user jlarndt
James A.
Exercise and Physical Activity

Concept 2 rowering

Last activity 1 month
7I am a 70 yr old male almost eight weeks post surgery (HeartMate 3) and starting to exercise. Previous to my surgery I exercised with a Concept 2 rowing machine a few times a week, interspersed with treadmill and weights. In cardio rehab we are using free weights and treadmill/bicycling/recumbent...
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Profile picture for user tully
Ron T.
Equipment

LVAD connectors?

Last activity 1 month 1 week
Does anyone have extra driveline connectors? The line that goes from the driveline to the controller? My dad is always out tinkering and this part of the cord likes to fall out of the bottom of his shirt (he tries to tuck, tape, and cover it) last week he almost cut it in half with a car hood? The...
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Profile picture for user ronhays2711
Ronald H.
Equipment

LVAD Vest

Last activity 1 month 2 weeks
I have an LVAD Heartmate III Holster Vest, Medium Thoratec Heartmate GoGear Holster Vest. New, only tried on. I found the medium to very small, not realizing that it was a medium. I am a 3X...Needless to say, It has not been worn. Asking $80.00, will ship for free. (Tried to load Pic's but they are...
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Profile picture for user jamysond
Jamyson D.
Equipment

Equipment

Last activity 1 month 2 weeks
Hello everyone, My father recently passed away and the hospital sent me home with all of his LVAD equipment for the Heartmate 3. He only had the LVAD procedure done about a year ago so there are many pieces that are brand new or like new. I was hoping to list them for sale here in case anyone was...
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Profile picture for user GALONG
Talmadge L.
Driveline Management

Dressing change in Corpus Christi, TX

Last activity 1 month 2 weeks
Hello, does anyone know of a nurse or where I can go for a dressing change in Corpus Christi, TX? I am traveling there soon for a couple of weeks and will not have my caregiver with me that does my changes. Any help is appreciated!
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Profile picture for user COLLEENH
colleen h.
Caregiver Support

Colleen

Last activity 1 month 3 weeks
My husband received the HeartMate3 6/2/22. He is has been in the hospital since 5/12/22 and now they want to send him to a rehab facility. It seems that his 30 day hospital stay is approaching and they just need to discharge him. Has anyone had a similar situation ?
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Topics

Caregiver Support
Research Participation Opportunities
Clothing Options
Congestive Heart Failure
Diet
Driveline Management
Equipment
Exercise and Physical Activity
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Most Commented

Where are the recent posts, I am scared!!
187 replies
HeartMate III Mens Clothing
106 replies
My Wife Made Me a Wonderful LVAD Vest! Email us…
77 replies
Shower Protection
75 replies
9 years today (20th Oct 2020) living with LVAD
66 replies

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Most Viewed

My Wife Made Me a Wonderful LVAD Vest! Email us…
61,138 views
Discouraged
50,550 views
LVAD supplies--- Who supplies them for you ?
50,031 views
Attitude is Everything
49,239 views
Tactile holster T shirt for carrying LVAD items
43,189 views

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Facebook Groups

  • MyLVAD
    MyLVAD
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    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
  • LVAD Connection
    LVAD Connection
    566+ likes
    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
  • LVAD Recipients
    LVAD Recipients
    2722+ likes
    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

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