Patients and Caregivers Forums

I am a new patient to the LVAD and I need or I guess I want some shirts but but they were 100 bucks or close to that, that is far out of my price range

Hello everyone you helped us soo much with vaccine information so I wanted to reach out to you again. We just made one year with his LVAD! I’m very proud.. it’s been very tough, especially with Covid. What kind of activities do you recommend! Right now my husband walks with a cane. We are looking...

My mom had an lvad and she passed away. I have a bunch of equipment I would rather donate than just getting rid of. I would love to hear any ideas. I can send pictures if needed. Email me. Klwatk2@gmail.com

Any news of development of smaller batteries and if so when are they likely to be implemented - Thanks

My dad had an Lvad implanted exactly 6 weeks ago today, However the doctors are saying his right side simply is not doing its job, and being that he has been in the hospital so long he is not strong enough to be considered for an Rvad surgery making it a Bivad. Due to his age AND undiagnosed spot on...

Hello everyone! My husband is getting the LVAD this Friday. We knew about his heart failure but getting the VAD this early was a surprise, his condition has declined quickly. I'm nervous about a lot of things but would love advice from younger couples/families (older couples too if you have advice!)...

Hello everyone! I was interested to know if anyone received the Covid vaccine and has an LVAD Can you share your story .. side effects and any advice

INVITATION TO PARTICIPATE: VAD WEARABLES RESEARCH PROJECT https://www.surveymonkey.com/r/VAD-wearables We are currently inviting Ventricular Assist Device patients globally to participate in an online questionnaire about their experience with their VAD wearable systems. The aim of the questionnaire...

Hello! My dad 80 is still in ICU for the last 6 days. He was closed on last Monday. He is still intubated and they are slowly trying to wake him up. They have started nose feeding and has the temp RVAD on. I was wondering if anyone in the group went through the same experience? How long it took you...

I received my Lvad early March and still just using the bag to hold my batteries etc. How do you use your seat belt to support bag and not disturb your driveline?

Hi. I have some LVAD equipment. I got another heart, three months ago. I would love to give away to anyone who needs it. I have some pictures if you want to see them. I live in Laurel, MD I had a Lvad Heartmate 3. Go Gear Battery Holster 2 Shower Bags one consolidated bag Battery Holster Dressing...

Hi! My research team at Baylor College of Medicine in Houston, TX is working to understand how LVAD patients and caregivers are responding to the COVID-19 pandemic and feel about COVID vaccines. Your responses can help tailor important health information to the LVAD community! We are pleased to...

Would like to donate some of my husbands equipment. He went to rest with the Lord.

Hi I was wondering has there been anyone who has traveled/flown since they have had thier l.v.a.d? And if so how did you do it with your equipment ( wall power,battery backups, dressing kits,etc )did you put that in your carry on or stow it underneath. Any help would be greatly appreciated.

My name is Bill. I have had my VAD for three years and I was wondering if there are any dating sites for VAD recipients. I would like to find out if there is one. Thanks Bill

Hi! I recently lost my brother after the LVAD extended his life for 5 years. I had the pleasure of adding pockets to clothing for his batteries. I have a pair of bib overall with the pockets added that he did not have the opportunity to wear. I would love to pass them along to someone. They are size...

Hi there! I hope everyone is safe and doing well, and for those who are not you are in my prayers. I was hoping I could find out where I could get a reasonably cost doppler for blood pressure checks. Cheapest I have found is $120 but wanted to see if someone was maybe selling one or knew of a...

Is anyone aware of a watch that might be worn that will vibrate if there is an lvad alarm?

Love the new styles for both men and women! Comfortable and stylish LVAD vests for HeartMate 2 & 3’s. www.vadwearvests.com

I've tried the Yoga CD but I was unable to do alot of the exercises;it was for beginners . So I've decided to do some thing else. I going to my walks again. I was doing two miles a day and it was getting to hot during the summer. I'm going do do my walks in the morning and do some of my leg...