Patients and Caregivers Forums

Nine years ago today, Prof Phil Spratt and the wonderful, dedicated Heart team from St. Vincent's Hospital in Sydney (Australia) inserted my Heartware LVAD and consequently extended my life another 9 years to date. I have been very fortunate to have used this time wisely and to the maximum with...

Thought I’d let you know about a new “GO Bag” backpack from VAD Wear®️. It’s on sale for Father’s Day. Holds all equipment securely. Quick battery access port. Plenty of room for additional gear and even a laptop! https://www.etsy.com/listing/1029233329/new-lvad-go-bag-backpack?ref=shop_home_active...

Hello All, My father just had the LVAD surgery on October 12, 2017. I was wondering if anyone experienced weight loss or loss of energy after the surgery. If so, how long did it take for your weight loss to level out.

My name is Barbara, I've had my Lvad Heartmate 3 over 3 years. So far I haven't experienced any major issues thank God! My question is regarding medication sensitivity and high PI's. Can anyone share regarding their experience with medicatons and High PI with Heartmate 3?

Any news of development of smaller batteries and if so when are they likely to be implemented - Thanks

Hi, hello, good afternoon! My husband is jumping through the hoops to get qualified for the Heartmate II. We're just about done and meeting with the LVAD surgeon in just a week. I don't see many recent posts and it concerns me dearly. My husband is not a bridge to transplant due to his age (73) and...

To Fellow LVAD users who must swim, snorkel, or dive some questions: 1. Do you participate in all the water sport activities mentioned above? 2. If so, how did you size yourself to best fit in a dry suit and what brand did you buy? I am 5'10" and 210# My device is a Heart Mate III. 3. Did you get a...

I am looking for a tharotec heartmate 3 holster vest thank you jeff

Hi I was wondering has there been anyone who has traveled/flown since they have had thier l.v.a.d? And if so how did you do it with your equipment ( wall power,battery backups, dressing kits,etc )did you put that in your carry on or stow it underneath. Any help would be greatly appreciated.

I am a new patient to the LVAD and I need or I guess I want some shirts but but they were 100 bucks or close to that, that is far out of my price range

INVITATION TO VOICE YOUR EXPERIENCE IN ORDER TO IMPROVE THE NEXT GENERATION OF LVAD WEARABLE ACCESSORIES This research study is supported by a company currently developing a next- generation left ventricular assist device (LVAD). Are you a current or a former LVAD patient? Would you like to voice...

My dad had an Lvad implanted exactly 6 weeks ago today, However the doctors are saying his right side simply is not doing its job, and being that he has been in the hospital so long he is not strong enough to be considered for an Rvad surgery making it a Bivad. Due to his age AND undiagnosed spot on...

Would like to donate some of my husbands equipment. He went to rest with the Lord.

Hello everyone! My husband is getting the LVAD this Friday. We knew about his heart failure but getting the VAD this early was a surprise, his condition has declined quickly. I'm nervous about a lot of things but would love advice from younger couples/families (older couples too if you have advice!)...

I lost my sweet husband Nov. 24 th, 2020. He had his LVAD since Oct. 19, 2016. I have all his equipment that I would love to pass on to someone that can use it. Please reply here.

Hello everyone you helped us soo much with vaccine information so I wanted to reach out to you again. We just made one year with his LVAD! I’m very proud.. it’s been very tough, especially with Covid. What kind of activities do you recommend! Right now my husband walks with a cane. We are looking...

My mom had an lvad and she passed away. I have a bunch of equipment I would rather donate than just getting rid of. I would love to hear any ideas. I can send pictures if needed. Email me. Klwatk2@gmail.com

I am a recipient for an LVAD before I decide whether I'm going to do it or not I really wanna know about it and I have some questions here's the first question that comes to mind...... Will I have a pacemaker and defibrillator with my LVAD or will they take the pacemaker and defibrillator out and...

Hi. I have some LVAD equipment. I got another heart, three months ago. I would love to give away to anyone who needs it. I have some pictures if you want to see them. I live in Laurel, MD I had a Lvad Heartmate 3. Go Gear Battery Holster 2 Shower Bags one consolidated bag Battery Holster Dressing...

Hello everyone! I was interested to know if anyone received the Covid vaccine and has an LVAD Can you share your story .. side effects and any advice