MyLVAD is Here for You
At MyLVAD our mission is to help improve the quality of life and outcomes for people living in the LVAD world. We hope to provide information, support, direction, and inspiration for those who live with LVADs.
We rely on community donations to support the MyLVAD mission. Help us continue to provide community resources to people living with Mechanical Circulatory Support (MCS) and Heart Failure with a donation.
Quick Links
LVAD Surgery and COVID-19
What is an LVAD and How Does it Work?
What is Congestive Heart Failure?
Reliable Resources
MyLVAD Online Support Group - Now Every Monday Evening!
Announcements
LVAD Wearables Survey
Research Opportunities Forum
Connect with the MyLVAD Community
Research Participation Opportunities
Understanding Daily Lives of LVAD Patients and Caregivers
Last activity 1 week 1 day
Hi all, I’m sharing below a research opportunity for patients and caregivers. My colleague Mireille is a PhD student at NYU Meyers College of Nursing and currently doing her dissertation research study. The goal would be to understand how patients and caregivers manage their lives in the context of...
Clothing Options
HOMEMADE LVAD SHIRTS
Last activity 2 months
I asked my husband who has a Heartmate 3 to dig out ten old t shirts he will still wear. THis is all he used to wear so he is comfortable in them. Then I got donations of old t shirts from our children and cut them up to make pockets to go on his old t shirts. I sew two pockets under the arms and...
Recipient Support
New Non-profit for LVAD Patients
Last activity 2 months 3 weeks
https://www.lvadstrong.org LVADStrong is a nonprofit organization based in New England, dedicated to improving the lives of Left Ventricular Assist Device (LVAD) patients and their communities. Our mission is to provide patient outreach and support, educate communities, host LVAD patient events, and...
Inspiration and Encouragement
9 years today (20th Oct 2020) living with LVAD
Last activity 5 months
Nine years ago today, Prof Phil Spratt and the wonderful, dedicated Heart team from St. Vincent's Hospital in Sydney (Australia) inserted my Heartware LVAD and consequently extended my life another 9 years to date. I have been very fortunate to have used this time wisely and to the maximum with...
