Skip to main content
EnglishEnglish
EnglishEnglishDutchDutchFrenchFrenchGermanGermanItalianItalianJapaneseJapanesePortuguesePortugueseRomanianRomanianRussianRussianSerbianSerbianSpanishSpanish

User Menu (Anonymous)

  • Login
  • Register
  • Search
Home

Main navigation

  • Patients and Caregivers
  • Medical Professionals
  • Log in
  • Register
  • Search

Main navigation dropdown patients and caregivers

  • Learn about LVADs
    • Congestive Heart Failure
    • Intro to LVADs
    • LVAD Technology
  • LVAD Lifestyle
    • Living with an LVAD
    • Emergency Field Guides
    • Video Library
    • Available Resources
    • Fellow "VADER" Recommended Accessories
  • Caregivers
    • Caregiver Support Forum
    • ENABLE Caregiver Guides
    • Expert Sessions
    • Other Support Resources
  • Discuss & Connect
    • Events Calendar
    • Community Forums
    • Community Blogs
    • Online Support Group
    • Stories
  • Locator Maps
    • Hospital Map
    • Community Network Map
    • Download the MyLVAD App

Main navigation mobile

  • Patients and Caregivers
    • Learn about LVADs
      • Congestive Heart Failure
      • Intro to LVADs
      • LVAD Technology
    • LVAD Lifestyle
      • Living with an LVAD
      • Emergency Field Guides
      • Video Library
      • Available Resources
      • Fellow "VADER" Recommended Accessories
    • Caregivers
      • Caregiver Support Forum
      • ENABLE Caregiver Guides
      • Expert Sessions
      • Other Support Resources
    • Discuss & Connect
      • Events Calendar
      • Community Forums
      • Community Blogs
      • Online Support Group
      • Stories
    • Locator Maps
      • Hospital Map
      • Community Network Map
      • Download the MyLVAD App
  • Medical Professionals
    • Essential Resources
      • Available Resources
      • Medtronic Resources
      • Abbott Resources
      • EMS Field Guides
      • Policies and Procedures Library
      • Hospital Support Center Listing Request
    • Discuss & Connect
      • Conferences and Continuing Education
      • Events
      • ICCAC Website
      • MCS Collaboration Group
    • LVAD Coordinators
      • Hospital Locator
      • VAD Coordinator Registration
      • Take our Survey
  • Log in
  • Register
  • Search

Patients and Caregivers Forums

+ In this section

  • Caregiver Support Forum
  • ENABLE Caregiver Guides
  • Expert Sessions
  • Other Support Resources

You are here

  • Patients and Caregivers
  • Caregiver Resources
  • Patients and Caregivers Forums
Profile picture for user Kverissimo
Kevin V.
Caregiver Support

HELP !!! HOW DO WE FIGHT FOR MORE REHAB ?!?!?

Last activity 1 day 12 hours
Hello all, first off thank you for being here ! My girlfriend and I are the primary caregivers of her 50yr old father who just recently received his LVAD. We understand thats a big undertaking and we are totally down for the job. We / he has had a few bumps along the way but i think we are finally...
  • Log in or register to post comments
Profile picture for user nik5252
Nicole B.
Caregiver Support

Reliance on caregiver

Last activity 1 month
My husband is likely getting an LVAD this week. He has cardiomyopathy and is only 40 so they want to put off a transplant as long as possible. The more I read about LVADs, the more I hear of numerous complications, recovery issues, and the amount of care the caregiver must provide in the months...
  • Log in or register to post comments
Profile picture for user lvaduser.001
Lori C.
Caregiver Support

Subacute rehab

Last activity 1 month 4 weeks
We are looking for a subacute rehab in nj area. I googled and was not able to find any
  • Log in or register to post comments
Profile picture for user JeffismyAngel
Felicia D D.
Caregiver Support

Equipment and Supplies

Last activity 2 months 1 week
2 days after his 5th year anniversary with the LVAD my husband passed away on month shy of his 61st birthday (which is next week). I have the wall plug, the battery charger with 8 batteries and the harness. I am in NC so please let me know if anyone needs any of these items. Contact me if these...
  • Log in or register to post comments
Profile picture for user jalrnt
Amy T.
Caregiver Support

LVAD and dialysis clinics

Last activity 3 months 2 weeks
My husband has a LVAD and unfortunately is now on dialysis three days a week at our local dialysis clinic. We can't be the only ones dealing with this! I have had to quit my job so that I can go to dialysis with him and sit beside his chair in order for them to do dialysis on him. They had to be...
  • Log in or register to post comments
Profile picture for user COLLEENH
colleen h.
Caregiver Support

colleen h

Last activity 5 months 1 week
I want to thank everyone for looking and responding to my posts. It makes me feel better to know that I am not alone in this. Good news my husband is coming home today from the hospital, he was denied a rehab facility because he walked 160 ft. He is still very weak and I'm not gonna lie but I am...
  • Log in or register to post comments
Profile picture for user COLLEENH
colleen h.
Caregiver Support

Pain from driveline

Last activity 7 months 1 week
My husband had Lvad surgery 6/2/22. He has the Heartmate 3. Today finally he got up and walked a little. But he is having excruciating pain at the drive line site when he stands and sits. He says it hurts all the time but not as bad as when he stands and sits. He says it feels like someone is...
  • Log in or register to post comments
Profile picture for user COLLEENH
colleen h.
Caregiver Support

Colleen

Last activity 9 months
My husband received the HeartMate3 6/2/22. He is has been in the hospital since 5/12/22 and now they want to send him to a rehab facility. It seems that his 30 day hospital stay is approaching and they just need to discharge him. Has anyone had a similar situation ?
  • Log in or register to post comments
Profile picture for user Ivan McCarthy
Ivan M.
Caregiver Support

Meartmate3 better dressing configuration

Last activity 9 months 4 weeks
I learned that the entry site for the heartmate2 gives less problems because the cable is more flexible. this got me thinking and experimented with the allevyn , doubled it over and cut a slot in the centre. This was an improvement but still not happy, folded the allevyn to opposite corners and cut...
  • Log in or register to post comments
Profile picture for user hdeit48@gmail.com
Harriett D.
Caregiver Support

Sterile dressing changes

Last activity 10 months
How long does it typically take to do this process correctly? I have different nurses telling me different procedure steps! I’m so frustrated! How many times must you have completed the correct sterile protocol before you can be released from the hospital?
  • Log in or register to post comments
Profile picture for user Bspaulding
Barb S.
Caregiver Support

North Dakota

Last activity 10 months 2 weeks
Possibly relocating to Grand Forks North Dakota. I’m not finding any facilities closer than Minneapolis. Anyone live in the ND area? Winnipeg has a hospital, but the locator says only for Heartmate II and I have a III. I also don’t know if Medicare will cover me if I use a Canadian hospital. Thanks...
  • Log in or register to post comments
Profile picture for user mspaulas
Paula S.
Caregiver Support

Grief support after loss of lvad loved one

Last activity 1 year
I am looking for a grief support group specifically for us caregivers that have lost our LVAD loved one. I’m in the Phoenix area so I’m person groups or online groups would work for me. thanks
  • Log in or register to post comments
Profile picture for user kpoliquin603
Katie P.
Caregiver Support

Younger VAD Couple

Last activity 1 year 1 month
Hello everyone! My husband is getting the LVAD this Friday. We knew about his heart failure but getting the VAD this early was a surprise, his condition has declined quickly. I'm nervous about a lot of things but would love advice from younger couples/families (older couples too if you have advice!)...
  • Log in or register to post comments
Profile picture for user Rissa1974
CRIs S.
Caregiver Support

Nervous Wreck

Last activity 1 year 2 months
My Husband had LVAD surgery on Friday 1/8/2021. About 10 pm that night they had to put a tube down his throat to see what was going wrong. By 1:00am Saturday Morning I had to consent again for them to go back in him because the right side of the heart wasn't strong enough. Well Sunday the nurse told...
  • Log in or register to post comments
Profile picture for user Anonymous
Anonymous
Caregiver Support

Home health for dementia and lvad

Last activity 2 years 1 month
My husband has a lvad and his dementia is getting worse. Has anyone gone through this?
  • Log in or register to post comments
Profile picture for user Magmead
Maggie M.
Caregiver Support

GI bleed

Last activity 1 year 5 months
My Uncle has been living with his LVad for many years. He has recently been having complications. He's been in hospital over a week with a GI bleed they can't seem to find. He's had two colonoscopy and swallowed a pill that had a camera in it. They went in today and cauterized three spots that could...
  • Log in or register to post comments
Profile picture for user Ndulaney
Nicole M.
Caregiver Support

Energy and weight loss after LVAD surgery

Last activity 1 year 9 months
Hello All, My father just had the LVAD surgery on October 12, 2017. I was wondering if anyone experienced weight loss or loss of energy after the surgery. If so, how long did it take for your weight loss to level out.
  • Log in or register to post comments
Profile picture for user Stugotsv10
Tony f.
Caregiver Support

Need a little advice about my dad

Last activity 1 year 9 months
My dad had an Lvad implanted exactly 6 weeks ago today, However the doctors are saying his right side simply is not doing its job, and being that he has been in the hospital so long he is not strong enough to be considered for an Rvad surgery making it a Bivad. Due to his age AND undiagnosed spot on...
  • Log in or register to post comments
Profile picture for user bdarden
Bernita D.
Caregiver Support

L-VAD Failure

Last activity 2 years 2 months
My husband, Michael had his LVAD implanted in August 2019 after much discussion and lots of defib shocks. He has been in heart failure since his heart attack in 2017... well as of June 2020 it has been determined by his team that a heart transplant will not happen for him. He hasn’t been able to...
  • Log in or register to post comments
Profile picture for user ladylovebuggie
Dee G.
Caregiver Support

Husband had surgery today

Last activity 2 years 4 months
First time posting but I’ve been lurking for a while. My husband had his lvad surgery today and although the left side of his heart is responding positively, his right side is functionIng worse than before surgery. He spent a week in the hospital with a balloon pump and his right side responded well...
  • Log in or register to post comments

Pagination

  • Current page 1
  • Page 2
  • Page 3
  • Next page ››
  • Last page Last »

Topics

Caregiver Support
Research Participation Opportunities
Clothing Options
Congestive Heart Failure
Diet
Driveline Management
Equipment
Exercise and Physical Activity
Financing and Insurance
Inspiration and Encouragement

Pagination

  • Previous page ‹ Previous
  • Page 1
  • Next page Next ›

Most Commented

Where are the recent posts, I am scared!!
203 replies
HeartMate III Mens Clothing
108 replies
My Wife Made Me a Wonderful LVAD Vest! Email us…
78 replies
Shower Protection
75 replies
9 years today (20th Oct 2020) living with LVAD
74 replies

Pagination

  • Previous page ‹ Previous
  • Page 1
  • Next page Next ›

Most Viewed

My Wife Made Me a Wonderful LVAD Vest! Email us…
61,671 views
Discouraged
50,813 views
LVAD supplies--- Who supplies them for you ?
50,409 views
Attitude is Everything
49,518 views
Tactile holster T shirt for carrying LVAD items
43,417 views

Pagination

  • Previous page ‹ Previous
  • Page 1
  • Next page Next ›

Facebook Groups

  • MyLVAD
    MyLVAD
    1892+ likes
    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
  • LVAD Connection
    LVAD Connection
    566+ likes
    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
  • LVAD Recipients
    LVAD Recipients
    2722+ likes
    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

Do you have the MyLVAD Hospital Locator App?

  • App Store
  • Google Play

Footer menu

  • Refer a friend
  • About MyLVAD
  • Contact Us
  • Community Forums

Bottom menu

  • MyLVAD Foundation, LTD.
  • © MyLVAD
  • Legal Conditions

Social Links

  • Twitter
  • Facebook