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ccase816's picture ccase816
LVAD 5/25/17 for my Dad
Tue, 06/06/2017 - 2:43pm

My Dad had his LVAD put in on 5/25/17. He seems to have had a new issue every, single, day, of his recovery so far. Hours after the surgery, they said he had bleeding in his chest and had to take him back and open him up a second time (then couldn't find the cause!). Then had to give him a lot of blood (the blood transfusion hasn't really stopped to this day- keep giving him more here and there). Then he had pnuemonia, then they found MRSA in his nose, then his main lead into the heart was twisted (had to take out), then he got a blood clot in his neck, then he had some kind of infection causing 103.2 fever, then had kidney function drop (also a diabetic), they couldn't get him off of the vent, finally switched to a trach two days ago. Now they can't get fluid off of him quick enough- they drew out 2 liters (!!!) of fluid yesterday, but he is just as swelled today, so now they are talking about starting dialysis. Also, his stomach drain tube has some blood so they are trying to find what's causing that and to fix it.

I just want someone to tell me that all of this is "normal"?! for this surgery.... I just don't know when to panic and when to just worry at a normal level. What's even more stressful is that he is about 8 hours away from me and I stayed for 10 days but had to go back to work.... so I am stressing long-distance. : ( My poor Mom has been there the entire time. I just need some reassurance.... please....

ccase816's picture ccase816
3 days later....
Fri, 06/09/2017 - 5:13pm

34 Reads and no one has commented.... I keep checking this every day looking for some reassurance. Yesterday was the first day that my Dad had no "bad" changes, and just remained the same.

Menkeja's picture Menkeja
How is he doing now,
Mon, 06/12/2017 - 12:53pm

How is he doing now, hopefully better. Make sure some one can relive mom occasionally. Hope he can get up and walk and is home soon

ccase816's picture ccase816
Update 6/13
Tue, 06/13/2017 - 3:30pm (Reply to #3)

He is now on dialysis, they are getting about 3 liters of fluid off of him each day. It's supposed to be temporary... He also still has infection in his right lunch, which they are cleaning out (bronch procedure) almost every day. They have turned his sedation very low or off some of the time. The Dr said it will be a very slow and long recovery. This Thursday will be 3 weeks post-surgery.
Mom has had lots of visitors and support through cards, texts, goody baskets, money, etc.- but she will not leave the hospital. The waiting room is nice for a waiting room but not the same as real, restful sleep.
Thank you for the comment, I too hope he can get up soon, I think that would help his body to recover more quickly. I just can't imagine being in his state for this long and waking up to realize it's 3 weeks later. We are remaining positive.

memerson2000@gmail.com's picture memerson2000@gm...
My husband is in ICU, 2.5
Wed, 06/21/2017 - 3:55am

My husband is in ICU, 2.5 weeks after LVAD/RVAD placement; off vent, out of bed to chair some days, having bleeding issue, fluid balance problems, still seems to be experiencing some heart failure issues. How is your dad? On mom in waiting room: There is no rest unless I am by his side. I finally got an apartment right near the hospital; I leave late and come back early, and stay over if he becomes unstable or just scared.