Discussions: Inspiration and Encouragement

Nine years ago today, Prof Phil Spratt and the wonderful, dedicated Heart team from St. Vincent's Hospital in Sydney (Australia) inserted my Heartware LVAD and consequently extended my life another 9 years to date. I have been very fortunate to have used this time wisely and to the maximum with...

https://www.amazon.com/LVAD-Man-Tabitha-Belhomme/dp/B0BMSNRHM5/ref=sr_1_1?crid=DZ6FAHAKT209&keywords=lvad+man+book&qid=1669051242&s=books&sprefix=lvad+man+book%2Cstripbooks%2C132&sr=1-1 Hello everyone, My name is Tabitha, and I'm a nurse who formerly worked on a cardiac step-down unit. I am reaching...

I’ve always found it difficult to navigate the different forums so I just copied and pasted the post: I went through the same… Mon, 09/05/2022 - 1:35PM I went through the same thing after my VAD implant, wondering what life would be like, whether it was worth it to undergo the surgery, pain and...

First time posting,, December 14th is my two year anniversary with the lvad, Balancing a positive mindset has been an on going issue,I'll be turning 48 in September I recently lost my younger brother who was 42, too a massive heart attack ,in July. The depression is Abit much I feel I'm losing what...

YouTube: Living with an lvad - Three Henry Ford patients patients share their stories

If anyone would like to laugh, talk, cry, scream and just sat in silence. Plz feel free to reach out. You are not along. I have had my LVAD for almost 3 yrs….so I know a little something of what you may be going through. You are STRONGER than you know. 🤗🤗

It’s been two years since my implant. I’ve got a 9 year old nephew that wants me to trick or treating! Depending on how quickly it gets dark here in Michigan tonight, I might be able to get on lvad zoom group. Don’t count it though! Candy Time!! Wahoo😝😝

We are participating in the 2022 Metro Chicago Heart Walk, with FOUR LVAD patients. Our team captain, Little Doug, is the youngest patient living at home with an LVAD in the United States. Diagnosed with dilated cardiomyopathy and acute heart failure, Little Doug received his LVAD on September 8...

New Monday Code New Link for Monday LVAD Support webinar: 7pm ET, 6pm CT, 5pm MT, 4pm PT https://meet.google.com/ppo-kqqw-mnd

My Dad had his LVAD put in on 5/25/17. He seems to have had a new issue every, single, day, of his recovery so far. Hours after the surgery, they said he had bleeding in his chest and had to take him back and open him up a second time (then couldn't find the cause!). Then had to give him a lot of...

Today was my education day with my LVAD coordinator, Social worker, pharmist and finance. Of course at this point I am overwhelmed with all the information and such that I got today. My LVAD surgeon will meet with his team next Tuesday to discuss my case, but according to him there is no other...

Hi all, well I got "that" phone call the other day and my admission date to the hospital is April 12, 2021. Insurance has approved either/or pumps. Either the LVAD (HeartMate3) or the new LVAS (EvaHeart). I am in the clinical trials for the Evaheart so we will see what they decide to do. Also got my...

Many of you have probably seen this. For those who haven’t, Google the title above. All the best!

I have recently 'celebrated' 10 years of living with an 'antiquated' Ventrassist LVAD in the UK. Life has not been easy with the heavy batteries and so on, but the 'behaviour' of the pump itself has been exemplary! We are getting to the stage where getting batteries for it can be quite difficult....

Five years today “June 25, 2013” I had my LVAD placed. It is a HeartWare and I have never had any problems at all. Very lucky on that point. Doctors that I have at the University of Washington Regional Heart Center are doing a wonderful job keeping me going. Hasn’t slowed me down much. Grew up on a...

In September, 2015. I had two (no pain) heart attacks, one while in the hospital. My cardiologist (he had put two stents in me some years earlier) told me that my left ventricle was in bad shape and that I might not live to the end of the year. This scared the hell out of me since I was my wife's...

Hello to all of my LVAD brothers and sisters out there. Come the middle of this month I will have had my LVAD HM II for 5 years. Not a bad stinit considering 5 years ago I should have died. But my primary LVAD and Cardiac Hospital pulled me through with 3 months in the hospital, massive infections...

Hallo, Wir (Das Contilia Herz und Gefäßzentrum und der Selbsthilfeverein Pulslos leben) wollten gerne zu einer Fahrradtour durch das Ruhrgebiet im Rahmen der grünen Hauptstadt Europas einladen. In den vergangenen Jahren haben wir diese Fahrradtour schon mit Patienten aus Essen und Umgebung...