Would you like to join an important study about your experience of living with a Left Ventricular Assist Device (LVAD)?
Wed, 01/23/2019 - 11:00AM
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1785+ likesThe Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
537+ likesCreating a personal link between LVADers,and their caregivers, with others in the same situation in there own area.
2698+ likesCreated by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.
Exercise and physical training
Sat, 01/26/2019 - 8:09PMMy name is John. I was diagnosed with CHF in 2012. In 2013 I completed P90X twice and was in the best shape of my life. Had several medical relapses over the years and received my LVAD in March of 2017. Currently also have a PICC line.
I am reaching out for guidance or others in the same situation, what excersices work well yet accommodate the medical limitations? Is there anybody looking for a workout buddy in the DE area?
Updated Posting
Mon, 03/04/2019 - 7:08PMUpdated Posting
Lvad Fashionable Medical Device Covers
Mon, 09/16/2019 - 11:54AMHello everyone, my name is Lisa Harmon Long and I am a patient living with the HeartWare Lvad. Since I am destination therapy, I wanted to come up with something to make my life easier and make me look and feel normal or “whatever normal means LOL😁 while in public .
So , I invented a fashionable medical device cover for the HeartWare and HeartMate Lvad. We currently have the HeartWare available in stock now, and will be offering the HeartMate covers very soon. We will be making different designs for men, women and children very soon .
These are high-quality covers made from the best materials , all handcrafted. These will be sold in a three-piece kit with a Bag and Strap cover, and a new comfy Shoulder Pad . Here is the website and a sneak peek at the video and some future items that will be available soon. These patent pending items are life-changing and I just wanted to offer them to my Lvad family as an option. Have a blessed day
Lisa Harmon Long
www.lvadskins.com
Rubber legs
Mon, 11/11/2019 - 10:26AMMy husband has had his heartmate 3 since Sept 2018, he still has bouts when his legs just want to give way on him and also he gets dizziness at times, does anyone else have these issues after 1 year, please tell us what you did, our LVAD team is the best but they have done changes to meds, fluid intake and nothing helps, hes 73 and I'm 69 and being a caregiver is hard work, I need some answers with reasurrance this will get better, thanks for listening
In reply to Rubber legs by Karen T.
Connie W.Rubber legs
Tue, 11/19/2019 - 5:24PMHave your doctors check his meds again. As for a caretaker you should find a program that offers help. It will give you a break. It's hard to be the only one. Ask your coordinator for ideas of where to go. The insurance should cover it. God bless
In reply to Rubber legs by Karen T.
Susan S.Rubber Legs
Wed, 11/20/2019 - 9:38AMOur ages are about the same a few years older. Barry has had the Lvad HM 2 for 3 years. It’s a journey and he still has a hard time walking without fear of falling. As a care taker just be there and help however you can. Lvad team said “you are both getting a Lvad”. We take walks when he feels comfortable. He exercises at the gym , mostly using the low riding bike it is a comfortable and secure way to strengthen his legs and core. The leg press is another one that is helpful. Has he ever had a trainer or Physical Therapist? Is his Lvad destination ? Barry’s is. Too old for transplant. I hope some of this helps, it does get more comfortable.😇
survey
Mon, 11/11/2019 - 2:21PMIn reply to survey by Anthony V.
Connie W.Lvad surveys
Mon, 11/18/2019 - 2:50PMI'm intrested in your surveys
group suport off line
Mon, 11/11/2019 - 2:26PMLvad supplies
Mon, 11/18/2019 - 3:51PMI had a heart mate 3 lvad for two years and then got my heart transplant 9/19/19. I have a shower bag, kits, batteries and charger. Who is interested?? I would like to send it to someone in need. God bless everyone
In reply to Lvad supplies by Chris G.
Connie W.Lvad supplies
Tue, 11/19/2019 - 5:27PMIf you still have them, I'm very interested. Sorry wrong machine
In reply to Lvad supplies by Connie W.
Chris G.Yes. What is your address,…
Tue, 11/19/2019 - 5:29PMYes. What is your address, or you can call me 772 285 1082. I will mail them
Lvad supplies
Mon, 11/18/2019 - 3:52PMI had a heart mate 3 lvad for two years and then got my heart transplant 9/19/19. I have a shower bag, kits, batteries and charger. Who is interested?? I would like to send it to someone in need. God bless everyone