Attitude is EverythingFri, 07/13/2012 - 11:13AM
I was just slightly winded, short of breath, even though I hadn't walked far. I had been fit and healthy my entire life so whatever was wrong couldn't be serious, I thought. I was diagnosed with heart failure in October 2009. My decline was rapid and by April 2010 I was constantly in and out of the hospital. My body's functions began shutting down as they were denied proper blood supply. Finally, after nearly dying in an emergency room, I was transferred (thankfully) to Sharp Memorial Hospital in San Diego where I had the best team possible caring for me. Within a week, I was in surgery having my Thoratec Heartmate II LVAD implanted. After the implant and as I began to feel better, I decided to take the problem as my own and find a solution as no cause had ever been given to me, save for a good guess that it was from a virus. I read obsessively and searched for a doctor to work with me, which I finally found. Once on a three pronged program, my heart began to heal. Within four months, my ejection fraction rose from a pre-surgery 18 to 35 in October 2010. My cardiologist told me that if the trend continued they would be able to remove the LVAD in the future. I stayed my course and in June 2011, my ejection fraction had risen to over 50 and surgery was scheuled. My LVAD was finally removed in September 2011. I am back to life with my own heart, able to shower, bathe and swim. I have written a book about my experience, my path to wellness and the lessons I learned from this, at times, nightmarish experience. I speak to groups about heart disease, LVADs and taking responsibility for your own health issues. I could have rolled over and felt sorry for myself, something that would have been quite easy to do, but instead I decided to take control and move forward. I hope you all do the same.
In reply to Hi, by gail p.Thomas M.
bookWed, 08/01/2018 - 6:57PM
In reply to Hi, by gail p.gail p.
DiscouragedWed, 08/01/2018 - 6:58PM
How can I get a copy of your…Tue, 12/18/2018 - 11:39PM
How can I get a copy of your book?
I,am on my Second LVad,first went bad.Fri, 12/28/2018 - 6:34PM
three and a half yrs. Had my first lvad installed,second year and half ago.Just another operation,Had 14 in 3.5 yrs.I* just do anything I want,except strenous sports,,Life is not fair so don,t worry about it. There is no light at end of tunnel,probably a train.Just keep going,do the best you can,I, am 73.Anything any body ever wanted to do, I probably have already done it.
Life is goodTue, 06/25/2019 - 10:21PM
I was living what I thought was a normal life with occasional set backs.Dr Mazer at the Heart Institute in Albuquerque NM proved me wrong and saved my life.He told me to go out to lunch with my husband and come back in 2 hours while he made some arrangements for me to go to Salt Lake City University Hospital. He was kind and casual about the whole thing as I was a typical heart failure patient in denial!! I have had my LVAD heartware for 5 years now.We live in a small community Truth or Consequences NM, I was back to work and amazed at how well I felt.I wear my LVAD around my waist with a srub top over it...I work 12hr shifts, no problem flying, and living life! I was on the transplant list but had cancer a year after my LVAD and had to have my eye removed.My LVAD is destination therapy and I plan to set a record on how long you can live with an LVAD....Good thoughts,good words,good deeds....God willing!! Great supportive husband and family...Love them all! Bev
1 of 40 with 14 yrs. With LVADFri, 06/17/2022 - 3:22PM
Google: Newark Hospital Patient Sets NJ Record for Living With Heart Pump