Discussions: Recipient Support

Hello, my name is Chris and I have had my HeartWare LVAD for a little over a year now. Life with the device had gone mostly as well as could be expected although I have experienced one problem that is quite a nuisance and was wondering if anyone had some feedback or advice on how to tackle this...

I have had an LVAD for 8 years. The new daily cleaning of my driveline is a pre-packaged kit, which includes an effective infection prevention disk called biopatch. Because of skin issues, I am unable to use them. Every day I have a new disk to add, and have a good-sized bag now. They are packaged...

Join us TONIGHT at 7pm EST for an interactive video support group designed for LVAD recipients and caregivers. Connect with others who are affected by LVADs, make some new friends, and discuss issues that are unique to the LVAD world. There are multiple ways that you can join the meeting. Choose one...

I have an ICD as well as my LVAD. Can the two affect each other. I had three alarms on my control unit but I felt like I do before getting a shock. I am interested in knowing if anyone else is having this outcome ?

Was in Hospital 4 months, after LVAD, doing OK but walking is very hard yet, how long dose it take to walk again ?

Going to have a right heart cat done, and was told to pack my bags, went to go see the heart Doctor, ; Dr. Andrew Sauer, sounds want to stay for a while and that my kidneys are starting to shut down, has anyone been through something like before? New and a little unsure and just a little bit afraid...

To anyone interested if you have a "Heartmate 2", You can find a very comfortable undershirt to wear to carry you equipment under your clothing @ www.lvadshirt.com. It comes in Black or White with a short sleeve, or sleeveless. They have a fit for Men and Women. Shipping time is quick For those with...

I've been trying to get some information about trying to do yoga with the lvad and how to get started. Has anyone tried or is anyone doing it? . At being 63yrs.old, I need some form of exercise; I would appreciate it. Thank you and Peace be with you.

Just got this from a company out of Florida that my MCMS team was working with. Continuum They can supply all of your patches, foley anchors, silver foam etc. It is billed diretly to Medicare which is a god send, since I was pushing $450 per month, now I can save what I didn't have to begin with...

Hi, I have had my Lvad for seven years. Recently I have developed fluid around the pump they removed one and 1/3 liters by aspiration however after a month it came back. I have had a surgery done at Tufts New England Medical Center in Boston but the procedure was not successful and two months later...

My husband had a heart transplant . He had a LVAD : Heartmate 2.We are located in Massachusetts . In Middlesex county . If you need driveline kits we have then to give if you are in need. Please Email me and we will make a connection acura1234567@aol.com. God bless.

Wife was implanted 3 yrs ago with heartmate 2 and has since had 3 drive-line revisions due to infection. We have been told transplant is not a option and have been forwarded to palliative care. We have been commuting from Kansas City to STL sfor care, but this has drained all our resources and...

I'm so proud of the Freedom Undervest because it solves a real problem. As many of my colleagues know, driveline infections are a serious risk for LVAD patients, and the Freedom Undervest addresses their need to protect the driveline exit site. Read more: https://medi-materials.com/2018/03/28/no...

Hello I am a new lvad recipient, I had my surgery on september 19 . Everything seems to be going well except for the fact that i can hear the pump running . It is very annoying and I was wondering if anyone else has this issue?

I've been trying to get some information about trying to do yoga with the lvad and how to get started. Has anyone tried or is anyone doing it? . At being 63yrs.old, I need some form of exercise; I would appreciate it. Thank you and Peace be with you.

I've been trying to get some information about trying to do yoga with the lvad and how to get started. Has anyone tried or is anyone doing it? . At being 63yrs.old, I need some form of exercise; I would appreciate it. Thank you and Peace be with you.

FYI - I have collected various types of info for myself that might also be useful to others here on my Pinterest account. Go to https://www.pinterest.com/flimbach/l-vad-help

Is anyone aware of a smaller controller and/or battery for the Heartware II? My son has one and as a very athletic person (daily gym, motorcycle racing, hiking, etc.), the controller is a real bulky problem. Does anyone have any info, please? Thanks very much.

Dear phillip I would like to get in contact with you regarding hospitals in South Africa with knowledge off the Lvad. My father in law is German and got it implanted in Germany and he wants to come and visit, but obviosly wants the assurance that he will hve a hospital to visit in the case of a...

This morning I have become completely overwhelmed with the size of Irma. I live in Macon Ga and would think I am the program furthest south in Georgia. The inpatients don't bother me it's the evacuation folks on a device. Please post my number for evacuees or for displaced patients who may have a...