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Discussions: New to LVADs

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  • New to LVADs
Profile picture for user SabrinaGG
Sabrina G.
New to LVADs

Temporary LVAD?

Last activity 1 week 3 days
Hello, my brother is currently going to get a LVAD. I apologize for bad English as I am still young and Im just very worried. My brother had gone through an operation and needed rehab therapy. However, the state we lived in did not offer him the specific rehab therapy so he needed to be flown out to...
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Cat S.
New to LVADs

Where are the recent posts, I am scared!!

Last activity 1 month
Hi, hello, good afternoon! My husband is jumping through the hoops to get qualified for the Heartmate II. We're just about done and meeting with the LVAD surgeon in just a week. I don't see many recent posts and it concerns me dearly. My husband is not a bridge to transplant due to his age (73) and...
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Profile picture for user emmajames
emma j.
New to LVADs

Trying to buy flexible table for my LVAD friend?

Last activity 2 months 1 week
One of my best friend has LVAD he's just 42 years old i was shocked when i seen my friend at her home with that device but now it's better he's also giving some time for office work, looking to buy flexible table for doing work at home just seen some sale on Flexispot coupons and they are giving in...
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Matthew B.
New to LVADs

Monthly out of pocket cost for LVAD patient

Last activity 4 months 1 week
Good Evening, So I am assuming that most patients here are on medicare medical insurance. Can anyone share what the monthly out of pocket cost are for someone who has an LVAD unit? Hospital staff is not really giving me a straight answer. Should be pretty straight forward. Anyone have any financial...
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Profile picture for user mattkerrybritt@msn.com
Matthew B.
New to LVADs

Been advised that I need an LVAD unit.

Last activity 4 months 4 weeks
So I have been advised that I need to have an LVAD unit. I have HOCM and have been fighting this heart desease head on since 2014 when I had a Septal Myectomy and Transapical midventricular myectomy at the Mayo Clinic in Rochestor MD. These surgeries were very major but really did not improve my...
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Profile picture for user vruss08
Vikki R.
New to LVADs

Low Flow

Last activity 5 months 4 weeks
Hello, I’m 58 years old wife, mother. My CHF started in my early 40s secondary to Rocky Mountain spotted fever destroyed my ventricles. Now as of Dec 16, 2019 just out of the hospital 2months Feb 16. It’s been a roller coaster with my heartmate 3. Many low flow incidents, and high PIs. I’m either to...
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Profile picture for user swabbie10
Bill W.
New to LVADs

Getting a Heart Mate 3

Last activity 6 months 2 weeks
Good day to you all. I am going to be getting a Heart mate 3 here in the next couple of weeks. I admit to being very apprehensive about this and initially rejected the idea. I Just wanted to say That this site has been very helpful in making my decision to go ahead with the surgery. Time is short if...
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Profile picture for user dna2rna
Laura N.
New to LVADs

My introduction and major question

Last activity 10 months 1 week
Hi, I'm a 35 y/o caregiver to my dad with heart failure. The hospital LVAD educator suggested I speak with the people on here for more information from people who have actually been there. Up until recently, my father has an EF around 10%, does not use oxygen, can walk short distances, and can...
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Profile picture for user Anonymous
Anonymous
New to LVADs

Jarvik 2000

Last activity 1 year 1 month
Hello everyone, i am a new member of this site, a caregiver for my husband. I read a lot of useful Information, but it is all about mostly Heartmate. Is there anyone out there with a Jarvik 2000 LVAD?
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Profile picture for user Anonymous
Anonymous
New to LVADs

Massages

Last activity 1 year 2 months
My father just got the heartmate 3 and was recently sent home. He is having some back pains from mostly laying in a hospital bed for the past 3 weeks so I wanted to take him to get a massage but we are afraid that they might mess with the driveline. So ultimately, my question is has anyone gotten a...
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Profile picture for user Mary
Mary E.
New to LVADs

RV Travel

Last activity 1 year 3 months
My husband and I have a motorhome and would like to resume travelling. Since we enjoy state and federal parks which often have no electric hookups we will have problems with charging batteries and using the mobile power unit. There must be others out there who can help us with an answer to this...
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Profile picture for user strader
Arlen S.
New to LVADs

8 weeks with LVAD

Last activity 1 year 4 months
It has now been eight weeks since my LVAD implantation and life has been going reasonably well since my surgery. Two weeks in the hospital, one week in a motel adjacent to the hospital, five weeks at home. My caregiver returned to his family last week so I am now on my own. I will be starting back...
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Profile picture for user Austin2019
Antria D.
New to LVADs

Question for new LVAD patient

Last activity 1 year 8 months
Hi! My fiance had his LVAD placed January 31st and he has been doing really well. However, over the past week he has become more short of breath than usual. He has reached out to the LVAD clinic and they say it's normal, as this is the last thing that will come around. Well, a few days ago he...
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Profile picture for user Maggie55
Margaret B.
New to LVADs

New to group

Last activity 1 year 9 months
Hi my husband has just had his lvad 4wks today we have been having hard time as he has had a few hick ups . Just felt needed to chat to some one in simular situation many thank . Margaret x
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Profile picture for user mcarter3
Meghan C.
New to LVADs

LVAD Recovery

Last activity 1 year 10 months
Hello, My name is Meghan and my boyfriend, Chris, recently received a HeartMate 3 on December 27th. I am 25 years old and my boyfriend is only 30. He was diagnosed with dilated cardiomyopathy on Halloween, so this process came very quickly for us. Chris has been medically sedated since December 14th...
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Profile picture for user Julia
Julia K.
New to LVADs

High heart rate

Last activity 2 years
My husband got a HeartMate3 on Sept 13, 2018 - his 76th birthday. He went from final stages of heart failure - basically send him home on a drip to die - to a remarkable recovery. Other than his heart, he has always been physically fit. After surgery and adjustment, he went home after 2 weeks, weak...
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Profile picture for user strader
Arlen S.
New to LVADs

Preparing for LVAD Surgery

Last activity 2 years 1 month
I am 48yo male and have completed all the evaluation processes for LVAD and transplant. I am scheduled to have the LVAD surgery in January as a bridge to transplant and I am trying to get me head around the whole process and what will be coming next. I have been reading posts on the site and have...
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Profile picture for user sombyas
Aiste S.
New to LVADs

System Controller Jumping Speed

Last activity 2 years 1 month
hey guys! I am 32 years old Female, received my Heartmate 3 2 months ago. Back home for a week now. One question: I recognized that my speed range on the system controller is jumping. Speed range jumps every second from 5200 to 5250 and back to 5200 and sometimes to 5300. I spoke to my surgeon and...
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Profile picture for user jm1963ga@att.net
Jerome M.
New to LVADs

Jerome Malinowski (Jerry)

Last activity 2 years 1 month
I had my LVAD implanted on March 9,2018 and after six months in and out of hospitals I am finally getting back some energy. I had at least six alarms on my controller and no explanation on the screen. My battery was changed in the controller and the very next day an alarm. I labeled all 8 batteries...
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Profile picture for user BlueJengu
Curtis M.
New to LVADs

Had LVAD for 3 months

Last activity 2 years 2 months
Hi, I have had my LVAD for 3 months now. I was in the hospital critical care for 1.5 months before my surgery. My LVAD is a "bridge-to-transplant" option. Heart transplant list is long. Can anyone who had their LVAD for 1 year or longer give me any tips about living with the LVAD. I am new to this...
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Topics

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Most Commented

Where are the recent posts, I am scared!!
136 replies
HeartMate III Mens Clothing
93 replies
My Wife Made Me a Wonderful LVAD Vest! Email us…
70 replies
Shower Protection
57 replies
Ongoing scabs driveline
55 replies

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Most Viewed

My Wife Made Me a Wonderful LVAD Vest! Email us…
58,985 views
Discouraged
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LVAD supplies--- Who supplies them for you ?
48,905 views
Attitude is Everything
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Tactile holster T shirt for carrying LVAD items
42,468 views

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Facebook Groups

  • MyLVAD
    MyLVAD
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    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
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    LVAD Connection
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    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
  • LVAD Recipients
    LVAD Recipients
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    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

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