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Discussions: New to LVADs

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  • New to LVADs
Profile picture for user ellencrutsinger@gmail.com
Ellen E.
New to LVADs

Hospitals

Last activity 9 hours 24 minutes
My husband is going to have LVAD surgery. We began this journey at UTSW in Dallas hoping for a heart transplant. The transplant was not approved due to age and other health conditions. UTSW did approve him for LVAD surgery. He has also been approved for an LVAD at Baylor Scott & White in Fort Worth...
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Profile picture for user JocelynWest
Jocelyn N.
New to LVADs

New LVAD patient coming home soon - anything we absolutely need, equipment-wise?

Last activity 2 days 10 hours
Hi friends -- My dad will be returning home from the hospital with an LVAD sometime in the next week, and I'm trying to help him out by purchasing some gear/accessories that will make his life a little easier and more comfortable once he gets here and adjusts to his new equipment. Because of...
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Profile picture for user Cat Shaw
Cat S.
New to LVADs

Where are the recent posts, I am scared!!

Last activity 1 month 4 weeks
Hi, hello, good afternoon! My husband is jumping through the hoops to get qualified for the Heartmate II. We're just about done and meeting with the LVAD surgeon in just a week. I don't see many recent posts and it concerns me dearly. My husband is not a bridge to transplant due to his age (73) and...
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Profile picture for user StaceyPotter37
Stacey P.
New to LVADs

Not a candidate for an Lvad

Last activity 3 months 3 weeks
I was disappointed to hear from my doctor that right now I'm not a candidate for an LVAD. I didn't know until my doctor informed us that your heart has to be enlarged and you have to have a certain Ejection fraction in order to get an LVAD. Right now my heart isn't the size and my ejection fraction...
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Profile picture for user stonks123
P K.
New to LVADs

Destination therapy LVAD not available in UK?

Last activity 8 months 2 weeks
Hi everyone, My father, 67 is in hospital in the UK with heart failure and poor output and heart stability (he's had stents and a pacemaker fitted in the past). He seems the perfect candidate for a LVAD as destination therapy but the heart doctor stated that the UK only did LVADs as bridge to...
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Profile picture for user mattkerrybritt@msn.com
Matthew B.
New to LVADs

Monthly out of pocket cost for LVAD patient

Last activity 9 months 1 week
Good Evening, So I am assuming that most patients here are on medicare medical insurance. Can anyone share what the monthly out of pocket cost are for someone who has an LVAD unit? Hospital staff is not really giving me a straight answer. Should be pretty straight forward. Anyone have any financial...
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Profile picture for user DAmbach
Darlene A.
New to LVADs

Lvad at 80

Last activity 11 months 3 weeks
My dad is a possible Lvad pt at just shy of 80 anyone else have experience with it at this age would love to hear your experience. It seems overwhelming
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Profile picture for user adriennehabe
Adrienne H.
New to LVADs

Lvad and acupuncture

Last activity 1 year 3 months
Hey! Just asking for my dad who newly has lvad. He used to enjoy acupuncture, does anyone know if he is still able to receive this support? He will have lvad for the rest of his life so we’re trying to find a way to do the things he’s done for health and body support. Thanks!
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Profile picture for user mattkerrybritt@msn.com
Matthew B.
New to LVADs

Been advised that I need an LVAD unit.

Last activity 1 year 5 months
So I have been advised that I need to have an LVAD unit. I have HOCM and have been fighting this heart desease head on since 2014 when I had a Septal Myectomy and Transapical midventricular myectomy at the Mayo Clinic in Rochestor MD. These surgeries were very major but really did not improve my...
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Profile picture for user Anonymous
Anonymous
New to LVADs

Patricia Shares Their Story

Last activity 5 years 8 months
Henry, my husband, had a massive heart attack, Nov. 2016. We practically lost him and we were devasted at the news that he may not "make" it we were told. No "promises"....I knew it was dire. I knew at that point we had to just pray for the doctors and staff that were treating him. Now....almost six...
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Profile picture for user TomFulwider1963
Thomas F.
New to LVADs

im wondering about somthing

Last activity 1 year 9 months
I am a recipient for an LVAD before I decide whether I'm going to do it or not I really wanna know about it and I have some questions here's the first question that comes to mind...... Will I have a pacemaker and defibrillator with my LVAD or will they take the pacemaker and defibrillator out and...
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Profile picture for user rrahman
Rumana R.
New to LVADs

Need advice for my Dad

Last activity 1 year 10 months
Hello! My dad 80 is still in ICU for the last 6 days. He was closed on last Monday. He is still intubated and they are slowly trying to wake him up. They have started nose feeding and has the temp RVAD on. I was wondering if anyone in the group went through the same experience? How long it took you...
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Profile picture for user Anonymous
Anonymous
New to LVADs

my lvad made a noise

Last activity 2 years 1 month
I just want to know if it's normal....when i grow up the stairs... my lvad made a bizarre sound like :crunch... crunch ?? it is normal... ? I am a French person ...sorry for my english language.
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Profile picture for user Anonymous
Anonymous
New to LVADs

Listen the Lvad

Last activity 5 years 4 months
I want to know if it's normal to listen the Lvad whwn i sleep
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Profile picture for user SabrinaGG
Sabrina G.
New to LVADs

Temporary LVAD?

Last activity 2 years 2 months
Hello, my brother is currently going to get a LVAD. I apologize for bad English as I am still young and Im just very worried. My brother had gone through an operation and needed rehab therapy. However, the state we lived in did not offer him the specific rehab therapy so he needed to be flown out to...
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Profile picture for user vruss08
Vikki R.
New to LVADs

Low Flow

Last activity 2 years 7 months
Hello, I’m 58 years old wife, mother. My CHF started in my early 40s secondary to Rocky Mountain spotted fever destroyed my ventricles. Now as of Dec 16, 2019 just out of the hospital 2months Feb 16. It’s been a roller coaster with my heartmate 3. Many low flow incidents, and high PIs. I’m either to...
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Profile picture for user swabbie10
Bill W.
New to LVADs

Getting a Heart Mate 3

Last activity 2 years 8 months
Good day to you all. I am going to be getting a Heart mate 3 here in the next couple of weeks. I admit to being very apprehensive about this and initially rejected the idea. I Just wanted to say That this site has been very helpful in making my decision to go ahead with the surgery. Time is short if...
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Profile picture for user dna2rna
Laura N.
New to LVADs

My introduction and major question

Last activity 3 years
Hi, I'm a 35 y/o caregiver to my dad with heart failure. The hospital LVAD educator suggested I speak with the people on here for more information from people who have actually been there. Up until recently, my father has an EF around 10%, does not use oxygen, can walk short distances, and can...
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Profile picture for user Anonymous
Anonymous
New to LVADs

Jarvik 2000

Last activity 3 years 2 months
Hello everyone, i am a new member of this site, a caregiver for my husband. I read a lot of useful Information, but it is all about mostly Heartmate. Is there anyone out there with a Jarvik 2000 LVAD?
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Profile picture for user Anonymous
Anonymous
New to LVADs

Massages

Last activity 3 years 4 months
My father just got the heartmate 3 and was recently sent home. He is having some back pains from mostly laying in a hospital bed for the past 3 weeks so I wanted to take him to get a massage but we are afraid that they might mess with the driveline. So ultimately, my question is has anyone gotten a...
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Facebook Groups

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    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
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