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Profile picture for user gldoble57
Gregory D.
Inspiration and Encouragement

My oh My 5 years and still kick'n it :)

Last activity 2 years 10 months
Hello to all of my LVAD brothers and sisters out there. Come the middle of this month I will have had my LVAD HM II for 5 years. Not a bad stinit considering 5 years ago I should have died. But my primary LVAD and Cardiac Hospital pulled me through with 3 months in the hospital, massive infections...
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Profile picture for user TackroomFred
Fred T.
Living with an LVAD

LVad questions

Last activity 2 years 10 months
Hi- just figured out how to find & use this site. 2 questions 1-Anyone know what > 12 Means in both Peak & trough??? 2- open you up chest/ sternum Is there a less invasive operation? Thanks
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JesseVoss V.
Living with an LVAD

Impella heart pump

Last activity 2 years 10 months
HI, Has anyone on here, or someone you know, ever had an Impella device placed? It's claim is that it's the world's smallest heart pump. It takes over 50% or more of your heart function. I had one placed on 03/07/17. They left it in maybe 2-3 days. I was pretty out of it so I'm not sure how long it...
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Robert C.
Clothing Options

Freedom Undervest from Medi-Materials

Last activity 2 years 10 months
Medi-Materials has an undershirt called the Freedom Undervest. https://medi-materials.com/product/freedom-undervest/
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Profile picture for user mimiatorres
Myriam T.
Living with an LVAD

Myriam's Story

Last activity 2 years 10 months
I will soon complete 6 years since I received my Heartmate 2. When I was admitted at Mayo Clinic in PHX AZ I had a severe congestive heart failure. My ejection fraction was less than 10%. I had been sent by two other hospitals to Hospice care and given 90 days to live in February of 2012. I had lost...
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Margaret B.
Caregiver Support

Husband just had lvad fitted

Last activity 2 years 10 months
Hi everyone who replied to my post. I would just like to say a big Thank you it has helped to know there are others out there that has similar problems. I would like to wish everyone a happy Christmas and all best wishes for the new year.
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Profile picture for user JDStratton
John S.
Clothing Options

The Freedom Undervest proves that "different" doesn't have to mean "difficult."

Last activity 2 years 10 months
Life with an LVAD can be challenging, and loved ones in your life may not realize just how different your day-to-day activities look. From cleaning, inspecting, and changing the bandages on your exit wound to plugging in your LVAD equipment at night, life just looks a bit different after receiving...
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Profile picture for user AllHeart
Benny R.
New to LVADs

Have my VAD for 7 weeks

Last activity 2 years 10 months
Have my VAD for 7 weeks now, and all is well. Still very tired after a flight of steps. Have the model HM 3. It's weird having to carry a bag 24/7. Anyway, just saying hello. Benny.
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Profile picture for user lazorbeam
Jose N.
Tips and Tricks

Skin irritation from adhesive

Last activity 1 year 5 months
I've had my device for 3 years and the past couple of months, the skin under the bandage and the foley anchor has started to itch, but I don't know from what. I don't know if it's the Tegraderm, the cloraprep which my doctor said to switch to alcohol to clean the area, or the skin prep solution. I...
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Profile picture for user acura
Pat A.
Recipient Support

If you need some supplies for a heartmate 2

Last activity 2 years 10 months
My husband had a heart transplant . He had a LVAD : Heartmate 2.We are located in Massachusetts . In Middlesex county . If you need driveline kits we have then to give if you are in need. Please Email me and we will make a connection acura1234567@aol.com. God bless.
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Profile picture for user JDStratton
John S.
Living with an LVAD

Traveling with your LVAD

Last activity 2 years 10 months
We developed the Freedom Undervest so that patients could continue doing the things they love. This week on the blog, we discuss traveling with an LVAD. Did you know 38% of people we polled say they haven't traveled since their LVAD procedure? Reclaim your wanderlust and hit the road, with the...
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Profile picture for user Sloan51
Maurice S.
Recipient Support

Need New Program

Last activity 4 months 3 weeks
Wife was implanted 3 yrs ago with heartmate 2 and has since had 3 drive-line revisions due to infection. We have been told transplant is not a option and have been forwarded to palliative care. We have been commuting from Kansas City to STL sfor care, but this has drained all our resources and...
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Profile picture for user gomez.angie338_2
Angie G.
Congestive Heart Failure

Anything is Possible!

Last activity 2 years 11 months
My Dad received a heart transplant in 2015. We believed that he would make it through. All through FAITH in God knowing that there would be a reason. I am grateful to God everyday for also renewing him heart, mind, and soul to know who God is in his life!! Stay strong and believe!! I will be...
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Profile picture for user StaceyPotter37
Stacey P.
New to LVADs

Not a candidate for an Lvad

Last activity 2 years 11 months
I was disappointed to hear from my doctor that right now I'm not a candidate for an LVAD. I didn't know until my doctor informed us that your heart has to be enlarged and you have to have a certain Ejection fraction in order to get an LVAD. Right now my heart isn't the size and my ejection fraction...
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Profile picture for user JDStratton
John S.
Living with an LVAD

Sleep in Freedom!

Last activity 2 years 11 months
The Freedom Undervest keeps your LVAD equipment safe all day. We recommend sleeping in your Freedom Undervest, so that your LVAD equipment stays secure at night, and you remain comfortable. (It helps to have more than one vest, so that you can rotate them throughout the week.) Visit our Blog to get...
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Profile picture for user JDStratton
John S.
Recipient Support

Reduce Driveline Infections

Last activity 2 years 11 months
I'm so proud of the Freedom Undervest because it solves a real problem. As many of my colleagues know, driveline infections are a serious risk for LVAD patients, and the Freedom Undervest addresses their need to protect the driveline exit site. Read more: https://medi-materials.com/2018/03/28/no...
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Profile picture for user walkabout787
robert W.
Recipient Support

pump noise

Last activity 2 years 11 months
Hello I am a new lvad recipient, I had my surgery on september 19 . Everything seems to be going well except for the fact that i can hear the pump running . It is very annoying and I was wondering if anyone else has this issue?
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Profile picture for user JDStratton
John S.
Clothing Options

Freedom Undervest

Last activity 2 years 11 months
I'm happy to announce the launch of the Freedom Undervest, a garment designed to free you from your VAD bag. Medi-Materials has worked with LVAD patients and doctors to develop a comfortable vest that secures your external equipment in a completely hands-free manner. Learn more on our blog: https:/...
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Profile picture for user walkabout787
robert W.
New to LVADs

pump noise

Last activity 3 years
Hello, I am new to this forum . I had my lvad surgery on September 19 . Everything seems to be going good except for the fact that i can hear the high pitched hum of the pump .H as anyone else had this problem?
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Profile picture for user Magmead
Maggie M.
Caregiver Support

GI bleed

Last activity 3 years 1 month
My Uncle has been living with his LVad for many years. He has recently been having complications. He's been in hospital over a week with a GI bleed they can't seem to find. He's had two colonoscopy and swallowed a pill that had a camera in it. They went in today and cauterized three spots that could...
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Most Commented

Skin irritation from adhesive
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Travel advice welcome
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Need a little advice about my dad
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Donated Wetsuit Helps Heart Patient Return to…
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Facebook Groups

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