Worried
Tue, 09/25/2012 - 9:21PMStarting to see more redness around the driveline site, drainage remains yellow serrous. But with my husband starting to move and exercise more, think there is more tension on the line. I have tried to stablelize it, but I am not able to check it every time he is up and about. I have stressed to him the importance of making sure it remains stable, but I am not sure if he really pays attention. No temp, but am worried, it is only a matter of time, before infection. Loosing his short term dissabilty oct 6th, another big headache and cobra. Just want to know how you can keep things going. Thanks for listening. Sees his Lvad team on monday, but will call if things get worse.
You have good reason to be concerned. I would take him back…
Thu, 09/27/2012 - 8:20AMYou have good reason to be concerned. I would take him back to the doctor and get the drive line checked immediately. They may be able to head off a more serious infection now. Ask your doctor's office for help getting on long-term disability or even permanent disability. You may need to also talk to a lawyer. It is worth it to move this forward. The healing takes time and neither of you need this stress in your lives.
Talked with the Lvad team today, they said it might be from…
Thu, 09/27/2012 - 9:39PMTalked with the Lvad team today, they said it might be from his exercise and the irritaion from the increase friction of the drive line. I appreciate you following his care when I have questions.....Not easy. Do you still have the Lvad or did you get a transplant? Just thought I would ask,you seem to know so much about lvad patients. Very informative. Stay healthy!!
Are you using a Hollister to help relieve the pressure on…
Tue, 10/30/2012 - 11:10PMAre you using a Hollister to help relieve the pressure on the drive line?
Erin, No, he has been using what the heartmate supplied to…
Wed, 10/31/2012 - 8:41PMErin, No, he has been using what the heartmate supplied to him for now. Have looked into ordering, but haven't as of yet. Would the hollister help? Since I first posted, he is looking better, but there are days when I can see some irritation. Let me know where you have purchased one. And if it better secures the driveline. Thanks!!! Hope
I FOUND THE BEST WAY TO KEEP THE DRIVE LINE STATIONARY WAS…
Sun, 02/17/2013 - 10:11PMI FOUND THE BEST WAY TO KEEP THE DRIVE LINE STATIONARY WAS A BLACK BACK SUPPORT FROM MENARDS I CUT THE SHOULDER STRAPS OFF AND IT IS THE BEST $11.00 I SPENT IT'S MAYBE 8 INCHES WIDE AND IS SUPER ADJUSTABLE .
Ken, thanks for your suggestion, Right now my husband has a…
Sun, 02/24/2013 - 10:37PMKen, thanks for your suggestion, Right now my husband has a concealed weapon vest for batteries and it seems to do a great job for support. But will keep that in mind. Hope