Reliance on caregiverSun, 01/07/2018 - 10:36PM
My husband is likely getting an LVAD this week. He has cardiomyopathy and is only 40 so they want to put off a transplant as long as possible. The more I read about LVADs, the more I hear of numerous complications, recovery issues, and the amount of care the caregiver must provide in the months after they return home. I work full time and we have 3 small kids, so I am trying to wrap my mind around how this is going to work. I can work from home some, but not all the time. Once you go home with your LVAD, is the daily activity (dressing changes, using the bathroom, etc) something that the patient can do on their own, or will I need to hire a nurse or someone to assist when I cannot be there? I have read that they cannot be alone for 30 days after their return home, but I am not sure if that is for medical care needs, or just an extra set of eyes. I am envisioning the need to hire a sitter for my kids and a nurse/PCA for my husband any time I have to leave the house for work or grocery shopping in those 30 days. Can a caregiver with experience in this let me know what to really expect? I just want to be sure I am prepared. Thanks.