Been advised that I need an LVAD unit.Mon, 07/27/2020 - 10:08PM
So I have been advised that I need to have an LVAD unit. I have HOCM and have been fighting this heart desease head on since 2014 when I had a Septal Myectomy and Transapical midventricular myectomy at the Mayo Clinic in Rochestor MD. These surgeries were very major but really did not improve my quality of life (QOL) at the time and since then my QOL has declined steadly. I am only 56 years old and have been forced to go on disability which I have from my company and Social Security. While I was being evaluated for a heart transplant they found prostate cancer which threw me off the transplant list. The doctors have been treating the cancer with radiation because they are scared to death to do any surgery on me. But you have to be cancer free for 5 years or more before they will consider me for transplant, so LVAD unit is my last option. The current plan is to get my LVAD unit installed in October (Outside forces dictating the time line). My Doctors tell me that providing that I make it thru the first year that my outcome should be just fine and I can expect to live a pretty long life.
My question is for those of you that has gone thru this what would you have done different? What are things that should have been done around the house to make the transition easier for you and your spouse? For us this is yet another set of life decisions that we have to make; most people are never faced with such things, but we are strong and will make it thru this next hurdle. Any input you can share would be apprecitated.