Need New ProgramFri, 03/02/2018 - 2:15PM
Wife was implanted 3 yrs ago with heartmate 2 and has since had 3 drive-line revisions due to infection. We have been told transplant is not a option and have been forwarded to palliative care. We have been commuting from Kansas City to STL sfor care, but this has drained all our resources and support. We are looking to move to Arizona where we have more family and support, but have been told by current coordinator that no other program/doctor will take us on as a patient!! We have read about the various infectious Disease breakthroughs and we are not ready to give up. Is Lvad care and treatment transferable? Will another hospital care for us even thought we were implanted elsewhere?