When is it time ?Mon, 02/25/2019 - 12:09PM
Hello everyone. I am just now beginning to discuss the option on an LVAD with my cardiologist. I have had Dilated Cardiomyopathy for 15 years. Life was a breeze, cruising along at 35% EF, up from 20% at dx. However, the last year has been tough. My EF is now back to 20% and I've been hospitalized twice due to fluid overload. I am now 50 years old. I am pleasantly plump and about 25 lbs out from being in the transplant "range" so I have had the option of the LVAD tossed my way. My cardiologist warns me that I am on a "razors edge" and that I could spiral down quickly when the time comes. Most days, I feel good. But, I have to admit, there is rarely a day now that goes by that I feel like me old self, and that I don't recognize that I have issues. Simple things take longer to do, I feel like I can't concentrate. And, the puffiness in my middle is a constant that I have to always battle.
How did you know it was time for the LVAD ? The anxiety for me is overwhelming, and I think it only complicates the situation.