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Anonymous

Bicycling

   Hi, am I able to  ride a bike?, where live  now  I can  ride one around and  not  worry  getting  hurt  or hit by a car. Thank you for your time and Peace be with you  all. 

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wayne r.

I am quite able to go out cycilng and have managed just over 50 miles in 1 day but I am using an ebike.

I tried to use my old normal bike but could only manage about a couple of miles before I was worn out.

Hope this helps.(UK)

 

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In reply to by wayne r.

Anonymous

          Hi Wayne,  I don't know what  a ebike is?,could  you  tell  me?. I  thank you and  Peace be with you. 

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In reply to by wayne r.

Juanita P.

I think that is absolutely Awesome that you are able to do that...Keep it up.  I too go to the gym and work out as usual, pretty much pre-LVAD.  

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Anonymous

My doctors said that if I can ride away from auto traffic on surfaces where I'm not likely to tumble, then wear a helmet and to to it if it's important to you.  The big issue is the blood thinners and a head injury can cause serious damage.

ps to a commenter:  an ebike is an electric assist bike.  they are very big in Europe. 

 

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Anonymous

       

Hi Richard,  I didn't  think about that, I  guess bicycling is out.  I  guess I  will walk every day to  stay healthy and besides, I  can't afford  an ebike; Oh well  that's  okay because I am  planning to do  a lot of fishing when the weather starts to stabilize. I  really appreciate the advice. You take care and Peace be with you. 

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Larrie T.

Hi Bill,

I have had great success cycling and completed a 35 mile ride six months after LVAD implant.  By 8 months after implant, I was riding single track on a mountain bike.  This is all using the people powered bikes I had before, not an ebike.  As mentioned, the main thing is to be cautious regarding the anti-coagulants.  Protect your noggin with a helmet and don't ride trails that create risk of bad falls.  While I still mountain bike on single track, there are a few trails I used to ride that are no longer worth the risk given the potential of greater consequences.  We documented my first long bike ride and my return to the mountain bike trails on video.  You can watch them here:

First long ride after implant:  https://www.youtube.com/watch?v=G8AVRo1aBdc

LVAD Mountain Biking:  https://www.youtube.com/watch?v=LXf2Dn8ykgo

I found that I continued to continue to get stronger for at least a year after implant.  Don't worry too much if the first few months are like running uphill breathing through a straw.  Stay active, and your ability and stamina on the bike will only continue to improve!

Good luck!

Larrie

 

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Anonymous

    Hi Larrie,  I've  read the replies but I think that I have  decided to  play it  safe and I  think  I will  pass on bicycling ; I think I  will  stick to  walking ; I  do thank you  though for your thoughts and I do  thank you for being so  productive on your  ventures.  I  thank you  again and  Peace be with you. 

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Tracy G.

I looked into recumbent road bikes, but again, they can be very expensive. Unlike upright bikes, these bikes are three wheeled, thus more stable & less likely to fall over. They have comfortable seats and easy to ride for those that are physically challenged. They range in price from $1,000 - $2,000 depending on make / model. Supposedly they are faster than bicycles and better for you. I just don't have that kind of money. Maybe I can find a used one....

PS: MOBO offers a model for $350.00.

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In reply to by Tracy G.

Juanita P.

I would say if you want to ride a bike, go for it.  Live your life.  You could walk outside going down steps and fall hit your head, hopefully not.  Do your thing..and have fun..

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Juanita P.

I think it is VERY important that the medical profession represent very honest explanation about what you can do and can't do with an LVAD.... in addition to how 'DIFFICULT" IT IS, to carry this big block device on and on.  I.e., shoulders, back, neck.  I was told " oh you can do just about anything."  RIGHT.....please make a list for yourself of what you used to do and now CAN'T DO and what can do.   There is a significant variation.   I feel that after almost (4) years with an LVAD it has taken a toll on the rest of my body.  I was very very active prior to, that's why I'm alive, besides God wanted me here for now,  and still as active as I can be.  However, dredging around a huge ugly black bag or paying tons of $$$ to adjust another bag to feel normal, is ridiculous.  I feel they, meaning medical field,  get their patient's while very vulnerable, clouded, and sick to sign agreement for the $l,000,000.00 device and ongoing $ maker.  Since plantation, I have been very, very, very sad.  No can't say the ulternative would be better.  I seen Heaven prior to, was BEAUTIFUL.  So i beg to differ with saying I'm alive.  Worst decision I could have ever made in my life.  I've heard for almost (4) years, we have a total implant coming...wow must be turtle express!! Or FALSE HOPE AGAIN.  How about the medical field work on enhancing EF and heart function so we can unhook these devices.  Now I know all will not respond, but my God how will you ever know if the interventions are not tried?????  Totally regret this recidivism, roller coaster, medical gain having this device.  I have a professional degree and active license, but unfortunately, my week is comprised of ording VAD supplies, INR testing, playing juggle with coumadin, etc.  AND A HUGE HOST OF DR'S AND COPYS!!!!  Also, I might add, making a 1/4 of what I made while working.  Thankfully i had enough time into retire.  But my God, they keep the bank roll going.  I looked at the statement for a phone call about INR level (WOW).  IT'S A SLAMMER.  The copay's are running me broke. This device is also political to certain hospitals.  When hospitalized, in another state, where you have NO VISITORS because of the travel etc. Not to mention, they do EVERY TEST POSSIBLE THAT INSURANCE WILL COVER...LORD MANAGED CARE!!  In addition, no medication is used on onset or during to enhance heart function.  It is cut and dry, put that device in and will monitor for life...Too obvious and disturbing. But gosh don't upset the apple cart, they don't like assertive patients or patient's with excessive knowledge. I will continue to question, and NO Not able to get transplant antibodies too high. Been down the transplant trail. But again the initial hospital that put the LVAD in, Temple, knew antibodies were high, but still did a $1,000,000.00 workup for transplant.  In 8 months, they said nope, too risky...taking you off the list without talking to the patient.  They dropped the bomb on an LVAD typical visit.  WHILE I MIGHT ADD, DID NOT TAKE  VITALS, HOOK UP MEMORY MEMORY COMPUTER, WEIGHT ETC...I SAT IN THEIR EXAMINING ROOM FOR 45 MINUTES, FOR THEM TO COME IN AND SAY "OH WE HAD A MEETING THIS MORNING" YOUR NOT ABLE TO GET A TRANSPLANT TAKING YOU OFF THE LIST.  WOW, WOULD BEEN NICE TO TELL THE PATIENT OF INTENT.  Wow for real??? I just did your lab request of antibodies, $2,000 per test, prior to coming up for visit.  I might add also that they antibodies did drop...but the hospital put the "CART BEFORE THE HORSE."   Why would you order a test when not needed?? No answer!!!!!  LOL, buyer beware!!!  Enough said.  I'VE HAD my fill with this device.  I wish no one a rough, rocky life, and certainly if your happy with this, by all means God bless you.  I had to share my honest feelings and events.  This is just a pinch of what went on!!  All have a great day! 

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Angel P.

So I was out yesterday, first ride outside for a while and had a bit of mechanical trouble, (snapped spoke). While I was fiddling with my wheel, every single cyclist - individuals or groups asked if I was ok, needed help or tools. Kudos to you all, it’s nice to feel part of wider club.