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Megan S. Family Member

Six days post surgery and still in the ICU

My father experiences Stage Four (D) Heart Failure, Ischemic Cardiomyopathy, Chronic Atrial Fibrilation, Pulmonary Hypertension (due to left heart disease) and CKD Stage Three. He underwent the LVAD procedure on Friday, April 26. Six days later he remains on a ventilator under heavy sedation. He has experienced difficulty with blood pressure and also contracted ventilator associated pneumonia. Additional testing revealed that his ventricular septum is shifted left with a thickness of over 16 mm. He has a small left ventricle cavity and is also experiencing difficulty exacting the right balance through LVAD RPMs. As a concerned daughter, the sight of him lying immobile and so compromised is incredibly freightening. I fear that he may not pull through this and I am beside myself. Especially considering my mother's experience and stoicism throughout this process. My father has an online health portal that he provided me access - I check this several times an hour, feverishly researching lab values and medical terminology. Yesterday the ICU limited contact given the amount of time the nurses need to manage my father. I am so scared. Any insight and support would be incredibly meaningful. Thank you kindly in advance.
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Amy N.

My dad was in the ICU for 2 months, had a stroke 7 days after surgery which left him with left sided weakness and no vision. This surgery is very hard on the body and it takes a long time to recover. Hang in there, don’t give up, his body is trying to recover and it will take time. Some get the surgery and then they go about their business and some just take longer to recover and need time. It’s exhausting emotionally and physically.  Find support to vent to, anyone who will listen. Talk to your LVAD team they are a good resource. Good luck with your dad!