IntroductionThu, 12/12/2019 - 8:32PM
Hello all. I recently joined this forum because my husband has end stage congestive heart failure. I feel like this has happened so fast. He had a massive heart attack in May 2019 and his EF is 20%. He has been in and out of the hospital multiple times, many times for fluid retention. He has an ICD and 3 days later after that was implanted, he had a mild stroke. Currently he has an IV at home in which he receives milrinone. It's only supposed to be used short term. He has been going through many tests before he can get an LVAD. So far, so good. He has passed all his tests. His bloodwork continues to look good. It's tested every week. He is 52 years old. I am his caregiver.
I have been doing lots of research about LVAD's about a caregiver's responsibility. Honestly...it's scaring me!! I am sure the LVAD team will go over many things with me and answer all my questions so I'm trying not to freak out. I'm afraid of panicking when alarms go off and when power outages happen. I know I shouldn't be worrying at this point, but that's me.
I'm glad I've found this forum because I will definitely need some support and encouragement. Thank you!