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Adrienne H. Caregiver

A neat new way of carrying batteries!

My father just purchased this small backpack at Walmart, and he is excited to share that he loves carrying his batteries this way! Perhaps someone handy with sewing bags could really make something like this super lvad friendly. He’s very active, and said that having the batteries off of his mid section/legs helps him feel a bit more capable of doing the things he loves (sometimes he wears overalls or suspenders that also seem to work if his batteries are down low— he gets the overalls  at tractor supply and the heavy duty suspenders I got from LLBean). 
 

i hope this helps anyone looking for more options! 

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Lee S.

Where's his driveline?

I current;y wear cargo pants w/ 1 battery on each side of pockets and monitor in my front pocket. I can"t take the weight on my shoulders, I wear cargo shorts in the summer. It does display my wires but so be it. 

 

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In reply to by Larry B.

Lee S.

Hey Larry,

Looks fantastic. I don't mind if a few wires are exposed. I always get that look like I have 5 heads!! I just can't take that weight on my shoulders and neck. I'm interested in your window dressing.....I constantly have a rash under my dressing and my driving my LVAD team crazy trying to resolve it. I'm game for trying different dressings to try to fix this rash. The ones I have are Centurion and I do get a rash from them. Your window dressing doesn't look like these so that's why i'm interested in them and where you get them.

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In reply to by Lee S.

Larry B.

We use the SorbaView ULTIMATE DRESSING that comes in the complete dressing kit by Centurion. We receive all of our supplies from Continuum. Been using them now for over six years and they have been great to deal with. Sounds like we may be using the same dressing. Maybe not though since mine doesn’t say “Shield”. Mine says “ULTIMATE DRESSING”. If it’s not the SorbaView, what else touches the skin where it has the rash? Could be the antiseptic cleaning pad that’s used! Those are the only things that actually get close to my wound. If it’s not the area right around the wound but more on the perimeter, it could be what you are using to clean the adhesive off with. We use the blue Goo Gone medical adhesive remover we purchase through Amazon. Works great and smells good too. Pic

 

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In reply to by Larry B.

Lee S.

Thanks Larry for your input.

I really don't trust any product that Centurion makes. It just seems like everything is making me break-out. I cleaned the area with several different products and nothing is helping. I'm currently at a loss on how to proceed. I have 4x4 gauze taped on right now with Mefix tape. That's the only way I can survive right now...but I'll break out where that tape is. I'm fighting a losing battle. I have a cabinet full of different products

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In reply to by Lee S.

Deannie S.

I would also like to know where the driveline is. I have tried similar backpacks but can't figure out what to do with the driveline.

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In reply to by Lee S.

Chuck S.

When they were setting me for discharge the OT lady help me set a harness that was available it holds my batteries on my sides and controller hanging on the front of my chest along with my cell phone. I worked Contruction retired for now it worked out great for me it’s modular you can add things to it . I will look up product number and forward it on

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Deannie S.

Hi Larry B,

Would you mind sharing what brand of bandage you use? I have used a SorbaView Shield since I was implanted on 9-11-17. Yours looks a little different shape and is able to come straight out to the anchor. Maybe I don't have mine on correctly. You have a battery in each pocket and the controller in the cargo pocket I think. Might not work as well on a woman but I may give it a shot. Thanks, Deannie

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In reply to by Deannie S.

Lee S.

Hi Deannie,

I'm interested in the SorbaView Shield you use to cover your drive-line. As you can see from my prior posts my rash will not go away so I'm always looking for something different to try. Where do you get these? And how do they work for you?

Thanks,

Lee

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In reply to by Lee S.

Deannie S.

Hi Lee, I order my supplies from Wound Care Resources out of Yorkville, TN.  I use a size medium in the SorbaView. The website is https://www.woundcareresources.net/wound-care-resources/      I believe it is a Centuriun product. I sometimes have a little sticky residue but no rash at all from this. Kind of hard to tell from this, but it goes on as one layer with the window, then a cover piece that fits under the drive line and a length of tape to cover where the two pieces go together. It is product number SV353UDT. Pretty good description on the website. And they do bill insurance as long as the item is on the order form list provided by the VAD team. Good luck!

           sorba view shield

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In reply to by Deannie S.

Chuck S.

I was using 100% strength solution hippo clean now I am now on 25% strength solution it helped with the rashes

i do dressing changes twice a week with daily dressing kits from Contium supply been doing that for two years, have my LVAD for almost 4 years now. Had a lot of driveline infections in the beginning including a mold infection cleared up in a 5-6 months that was following my driveline into my belly after taking a lot Bactrim for a year and a half , no signs of at all no longer have to take bactrim. Had a lot of bacterial and mold testing for a year

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In reply to by Deannie S.

Larry B.

I’m using the SorbaView ULTIMATE DRESSING. Sound like it’s different from the Shield.

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Charlie C.

I’ve always found that a vest worked best for me. A backpack was necessary for the extra batteries and replacement  controller.