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Profile picture for user Magillr3
Rebecca M.
New to LVADs

Overwhelmed

Last activity 5 years 4 months
Hello I'm a 35 year old mother of 3. I went to the er on 9/2/17 sick and woke up with my Lvad. I was just released from the hospital yesterday and I'm trying to heal at my parents house for a couple weeks before returning to my home , husband and children. I'm having not only bad days but bad times...
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Profile picture for user nurseacw
Anne W.
Living with an LVAD

Pulse index

Last activity 5 years 4 months
Could someone please advise what the normal FLOW AND PI IS FOR HEARTMATE 3 with revs. Of 5500.
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Profile picture for user Hopelou
Hope F.
Living with an LVAD

Full LVAD charger station and 6 batteries

Last activity 5 years 5 months
My husband was explaninted today and we now have a new shower bag, a case of Drive line change kits we do not need. We also have a charger station, battery charger and 6 batteries. Would like to sell off unneeded items to help cover medical cost. Best offer will be excepted.
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Profile picture for user Hopelou
Hope F.
Living with an LVAD

Full LVAD charger station and 6 batteries

Last activity 5 years 5 months
My husband was explaninted today and we now have a new shower bag, a case of Drive line change kits we do not need. We also have a charger station, battery charger and 6 batteries. Would like to sell off unneeded items to help cover medical cost. Best offer will be excepted.
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Profile picture for user Hopelou
Hope F.
Living with an LVAD

Full LVAD charger station and 6 batteries

Last activity 5 years 5 months
My husband was explaninted today and we now have a new shower bag, a case of Drive line change kits we do not need. We also have a charger station, battery charger and 6 batteries. Would like to sell off unneeded items to help cover medical cost. Best offer will be excepted.
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Profile picture for user Hopelou
Hope F.
Living with an LVAD

Full LVAD charger station and 6 batteries

Last activity 5 years 5 months
My husband was explaninted today and we now have a new shower bag, a case of Drive line change kits we do not need. We also have a charger station, battery charger and 6 batteries. Would like to sell off unneeded items to help cover medical cost. Best offer will be excepted.
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Profile picture for user Hopelou
Hope F.
Living with an LVAD

Full LVAD charger station and 6 batteries

Last activity 5 years 5 months
My husband was explaninted today and we now have a new shower bag, a case of Drive line change kits we do not need. We also have a charger station, battery charger and 6 batteries. Would like to sell off unneeded items to help cover medical cost. Best offer will be excepted.
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Profile picture for user Hopelou
Hope F.
Living with an LVAD

Full LVAD charger station and 6 batteries

Last activity 5 years 5 months
My husband was explaninted today and we now have a new shower bag, a case of Drive line change kits we do not need. We also have a charger station, battery charger and 6 batteries. Would like to sell off unneeded items to help cover medical cost. Best offer will be excepted.
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Profile picture for user Blondie
MIKI G.
New to LVADs

Worried--Blood clot in pump

Last activity 5 years 5 months
My father-in-law received his LVAD in December. He had suffered a mild stroke about a month before. He is not eligible for a heart transplant. He ended up in the ER two weeks ago and based on tests (echo, ldh, etc) he has a blood clot in his pump. He has been on a Heparin IV until two days ago in...
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Profile picture for user walkabout787
robert W.
Living with an LVAD

Lvad hum

Last activity 5 years 5 months
Hello, I just got my lvad on September 19 . Everything seems to be going well except I can hear the pump. It is very high pitched and very annoying. I was wondering if anyone else has this issue?
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Profile picture for user donny
ilene k.
Caregiver Support

Restless Leg issues / recommended hospitals or drs.

Last activity 5 years 5 months
My brother in law received his LVAD a little over a year ago. He has had some issues but seems ok with it. He is slowly recovering - goes to the gym to walk most days and is slowly regaining appetite and strength. Two issues: 1. In the last few months he seems to have Restless Leg syndrome and is...
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Profile picture for user donny
ilene k.
Caregiver Support

Restless Leg issues / recommended hospitals or drs.

Last activity 5 years 5 months
My brother in law received his LVAD a little over a year ago. He has had some issues but seems ok with it. He is slowly recovering - goes to the gym to walk most days and is slowly regaining appetite and strength. Two issues: 1. In the last few months he seems to have Restless Leg syndrome and is...
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Profile picture for user Rebarbour1028
Rosemary B.
Caregiver Support

Outside resources

Last activity 5 years 5 months
My husband will receive a LVAD shortly. We live in Dallas Texas and are looking for additional care takers that can relieve me as his primary caregiver occasionally. Any suggestions. Am willing to pay obviously. Thank you.
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Profile picture for user slowhand888
Sandra D.
Recipient Support

Smaller Controller for Heartware II LVAD

Last activity 5 years 5 months
Is anyone aware of a smaller controller and/or battery for the Heartware II? My son has one and as a very athletic person (daily gym, motorcycle racing, hiking, etc.), the controller is a real bulky problem. Does anyone have any info, please? Thanks very much.
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Profile picture for user Magmead
Maggie M.
Caregiver Support

6 years on lvad

Last activity 5 years 5 months
My uncle has had his Lvad for 6 years. He doesn't follow any dr recommendations... He smokes, eats and drinks whatever he wants even though he's diabetic. In the last 6 months he has really declined. More recently in the last 6 weeks he's been life flighted 3 times to hospital because he can't...
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Profile picture for user slowhand888
Sandra D.
Living with an LVAD

Driver's license suspended after accident involving syncope

Last activity 5 years 5 months
My 54 year old son has just had an LVAD implanted, along with a new homograft aortic valve. Prior to his heart failure, he had a syncope episode probably related to a small stroke while he was driving. He was involved in a terrible accident and his license revoked. After three months in the hospital...
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Profile picture for user GeorginaMawle
Georgina M.
Caregiver Support

Travel Insurance UK to Europe

Last activity 5 years 5 months
Hi everyone! My dad had an LVAD implanted in May 2015 and has since being doing really well. We have booked a family holiday away to Turkey this August however having trouble to get my dad insured for his LVAD and Dilated Cardiomyapathy- has anyone got any suggestions? Or what travel insurance...
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Profile picture for user Frans
Frans D.
Recipient Support

Phillip Cole

Last activity 5 years 5 months
Dear phillip I would like to get in contact with you regarding hospitals in South Africa with knowledge off the Lvad. My father in law is German and got it implanted in Germany and he wants to come and visit, but obviosly wants the assurance that he will hve a hospital to visit in the case of a...
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Profile picture for user rachel@virtuallydone.us
Rachel S.
Recipient Support

Hurricane Irma Evacuees

Last activity 5 years 6 months
This morning I have become completely overwhelmed with the size of Irma. I live in Macon Ga and would think I am the program furthest south in Georgia. The inpatients don't bother me it's the evacuation folks on a device. Please post my number for evacuees or for displaced patients who may have a...
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Profile picture for user keith
Keith M.
Recipient Support

IRMA

Last activity 5 years 6 months
Greetings from Macon GA I have major concerns for non-Hospitalized , Mobile ,active VAD patients leaving Florida to seek shelter . Macon as far as I know is the first VAD center north of Florida . I am attempting to mobilize southeast vad coordinators for the weekend in case cousin Tom from Tampa...
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Facebook Groups

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    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
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    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
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    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

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