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CRIs S. Family Member

Nervous Wreck

My Husband had LVAD surgery on Friday 1/8/2021. About 10 pm that night they had to put a tube down his throat to see what was going wrong. By 1:00am Saturday Morning I had to consent again for them to go back in him because the right side of the heart wasn't strong enough. Well Sunday the nurse told me he squeezed her had and wiggled his toes. Yesterday I called to check on him and the nurse put me on speaker and suprisingly he was talking. You just don't know how that felt. It was like the stress was lifted. The nurse called today and said he wanted to talk to me. All he kept saying was call 911 and get the police up here something is not right. He told me people were taking over the hospital and shooting everyone they saw. He told me he saw it. All I can do is cry because I know he was talking out of his head. I'm so scared that I'm going to lose my husband. I read up on hallucinations after heart surgery and came across delirium and now I wish I never look it up. Has anyone else experienced this. I don't know what I would do without my husband. I feel like I'm going crazy right now.

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Sabrina G.

Im sorry to hear about what you're going through. My brother is also going to get a LVAD and Im also very worried, I don't know what I would do if I lost him. I hope your husband has a good recovery! Stay strong! Take it day by day, my brother is only 20 and I can't imagine how his girlfriend feels but my brother told me he needed me to be strong for him. Ill pray for your husband.

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In reply to by Lori C.

CRIs S.

Thank you. Since the surgery it seems like he's getting worst. They keep having to do different procedures and now today his heart rate is high so they had to do a cardioversion to try and get it down but it didn't so now they are trying medications to get it down. I'm so scared. I wish he had never got the surgery now. It's like he suffering. 

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In reply to by CRIs S.

Dan B.

I had LVAD surgery last February. The first week after surgery I had a lot of complications. I was passing out and not doing well. They told me right side of heart was damaged and needed some time and adjustments to meds. Around the seventh day after surgery I started getting better rapidly. In a few days I was in the step down unit and went home 17 days after surgery. I was 40 when diagnosed with heart failure and would not be alive to today without the LVAD. I am fortunate to live a pretty normal life while waiting for a transplant. Never give up hope and remember it’s all in gods hands. That gave me strength. Also life with heart failure is a day by day. I have great days and I have down days. 

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Diane B.

My Husband had surgery end of August 0f 2020. It definitely is a scary roller coaster both for him and you. It sounds like he is progressing well if he can talk and is not on ventilator. My husband's right side of the heart was very weak when he did his last eval for potential transplant. He did have a very rocky road but has been home since Thanksgiving and progressing every day. They are often on so many medications right after surgery that they will not remember much of the first few days. My husband tells me now that when he was sedated all he remembers are these horrible nightmares about people talking over him about killing him. You will need to be strong and remember to take care of yourself too !

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In reply to by Diane B.

CRIs S.

 Since the surgery it seems like he's getting worst. Yesterday they removed the right ventricular from his heart so he is back on the ventilator .They keep having to do different procedures and now today they went and did a catheter through his neck now his heart rate is high so they had to do a cardioversion to try and get it down but it didn't so now they are trying medications to get it down. I'm so scared. I wish he had never got the surgery now. It's like he suffering. I'm trying to stay strong but it hurts even more that I cant be there with him  because of COVID-19 no one can visit the hospital.

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Stephen R.

When I had my LVAD operation, which was in October 2016 I experienced similar problems and was told it was common to experience suchlike problems so I assume your husband is over these problems and good look for the future 

 

regards 

Stephen