Skip to main content
EnglishEnglish
EnglishEnglishDutchDutchFrenchFrenchGermanGermanItalianItalianJapaneseJapanesePortuguesePortugueseRomanianRomanianRussianRussianSerbianSerbianSpanishSpanish

User Menu (Anonymous)

  • Login
  • Register
  • Search
Home

Main navigation

  • Patients and Caregivers
  • Medical Professionals
  • Log in
  • Register
  • Search

Main navigation dropdown patients and caregivers

  • Learn about LVADs
    • Congestive Heart Failure
    • Intro to LVADs
    • LVAD Technology
  • LVAD Lifestyle
    • Living with an LVAD
    • Emergency Field Guides
    • Video Library
    • Available Resources
    • Fellow "VADER" Recommended Accessories
  • Caregivers
    • Caregiver Support Forum
    • ENABLE Caregiver Guides
    • Expert Sessions
    • Other Support Resources
  • Discuss & Connect
    • Events Calendar
    • Community Forums
    • Community Blogs
    • Online Support Group
    • Stories
  • Locator Maps
    • Hospital Map
    • Community Network Map
    • Download the MyLVAD App

Main navigation mobile

  • Patients and Caregivers
    • Learn about LVADs
      • Congestive Heart Failure
      • Intro to LVADs
      • LVAD Technology
    • LVAD Lifestyle
      • Living with an LVAD
      • Emergency Field Guides
      • Video Library
      • Available Resources
      • Fellow "VADER" Recommended Accessories
    • Caregivers
      • Caregiver Support Forum
      • ENABLE Caregiver Guides
      • Expert Sessions
      • Other Support Resources
    • Discuss & Connect
      • Events Calendar
      • Community Forums
      • Community Blogs
      • Online Support Group
      • Stories
    • Locator Maps
      • Hospital Map
      • Community Network Map
      • Download the MyLVAD App
  • Medical Professionals
    • Essential Resources
      • Available Resources
      • Medtronic Resources
      • Abbott Resources
      • EMS Field Guides
      • Policies and Procedures Library
      • Hospital Support Center Listing Request
    • Discuss & Connect
      • Conferences and Continuing Education
      • Events
      • ICCAC Website
      • MCS Collaboration Group
    • LVAD Coordinators
      • Hospital Locator
      • VAD Coordinator Registration
      • Take our Survey
  • Log in
  • Register
  • Search

Patients and Caregivers Forums

You are here

  • Patients and Caregivers
  • Discuss & Connect
  • Patients and Caregivers Forums

Log in or register to post new content in the forum.

Profile picture for user presbytal
Sravasti T.
Equipment

Equipment & Dressing to give away

Last activity 10 months
Hi All After 2&1/2 years of using HVAD (Heartwear from Medtronics), my husband passed due to device malfunction (they gave him impella as a temporary device, but this time it didnt work). He fought valiantly for 2 months, and did recover his cognition etc. (was able to remember everything, follow...
  • Log in or register to post comments
Profile picture for user kimelliott
Kim E.
Exercise and Physical Activity

Cardiac Rehab

Last activity 10 months 2 weeks
Hello everyone! As a cardiac rehab nurse supervisor I want you to know nurses understand your journey from heart failure - meds- hospitalizations and decreased quality of life leading to decision of LVAD. Cardiac rehabs can help you in your recovery we monitor you and we help you regain your muscle...
  • Log in or register to post comments
Profile picture for user stonks123
P K.
New to LVADs

Destination therapy LVAD not available in UK?

Last activity 10 months 3 weeks
Hi everyone, My father, 67 is in hospital in the UK with heart failure and poor output and heart stability (he's had stents and a pacemaker fitted in the past). He seems the perfect candidate for a LVAD as destination therapy but the heart doctor stated that the UK only did LVADs as bridge to...
  • Log in or register to post comments
Profile picture for user jlarndt
James A.
Exercise and Physical Activity

Concept 2 rowering

Last activity 10 months 3 weeks
7I am a 70 yr old male almost eight weeks post surgery (HeartMate 3) and starting to exercise. Previous to my surgery I exercised with a Concept 2 rowing machine a few times a week, interspersed with treadmill and weights. In cardio rehab we are using free weights and treadmill/bicycling/recumbent...
  • Log in or register to post comments
Profile picture for user ronhays2711
Ronald H.
Equipment

LVAD Vest

Last activity 11 months
I have an LVAD Heartmate III Holster Vest, Medium Thoratec Heartmate GoGear Holster Vest. New, only tried on. I found the medium to very small, not realizing that it was a medium. I am a 3X...Needless to say, It has not been worn. Asking $80.00, will ship for free. (Tried to load Pic's but they are...
  • Log in or register to post comments
Profile picture for user jamysond
Jamyson D.
Equipment

Equipment

Last activity 11 months
Hello everyone, My father recently passed away and the hospital sent me home with all of his LVAD equipment for the Heartmate 3. He only had the LVAD procedure done about a year ago so there are many pieces that are brand new or like new. I was hoping to list them for sale here in case anyone was...
  • Log in or register to post comments
Profile picture for user GALONG
Talmadge L.
Driveline Management

Dressing change in Corpus Christi, TX

Last activity 11 months 1 week
Hello, does anyone know of a nurse or where I can go for a dressing change in Corpus Christi, TX? I am traveling there soon for a couple of weeks and will not have my caregiver with me that does my changes. Any help is appreciated!
  • Log in or register to post comments
Profile picture for user COLLEENH
colleen h.
Caregiver Support

Colleen

Last activity 11 months 1 week
My husband received the HeartMate3 6/2/22. He is has been in the hospital since 5/12/22 and now they want to send him to a rehab facility. It seems that his 30 day hospital stay is approaching and they just need to discharge him. Has anyone had a similar situation ?
  • Log in or register to post comments
Profile picture for user dohmantesla96
Tesla D.
Intimacy and Relationships

Illinois Lvaders

Last activity 11 months
Depression is starting to wear me down lately. Im tired of people looking at me like i have five heads; and they have no idea what the F*ck im saying. I feel like im screaming in which nobody can hear and im here just existing and nobody can see me. My mom refusers to broaden her horizons and meet...
  • Log in or register to post comments
Profile picture for user Kim Biondo
Kim B.
Diet

Diet and INR

Last activity 11 months 1 week
My husband had massive heart attack end of Jan 2022 and had no prior symptoms. Completely collapsed with head injury and died for 25 mins. After multiple surgeries to open up arteries, he received LVAD on Feb 14. Stayed in ICU, then a drop down ICU, then private room then released to a Rehab...
  • Log in or register to post comments
Profile picture for user mattkerrybritt@msn.com
Matthew B.
New to LVADs

Monthly out of pocket cost for LVAD patient

Last activity 11 months 2 weeks
Good Evening, So I am assuming that most patients here are on medicare medical insurance. Can anyone share what the monthly out of pocket cost are for someone who has an LVAD unit? Hospital staff is not really giving me a straight answer. Should be pretty straight forward. Anyone have any financial...
  • Log in or register to post comments
Profile picture for user hunter1900
Deanna E.
Equipment

Equipment donation. Rockport Texas Heartmate II

Last activity 11 months 2 weeks
My husband recently died. I have lots of equipment and supplies that I’d like to donate to someone who might need them. I believe his system was a Heartmate II. I have lots of pix if you wish to see them. I am located in Rockport Texas, but will be traveling from there to wisconsin later this summer...
  • Log in or register to post comments
Profile picture for user mrdrfter101
Robert R.
Equipment

Dressings

Last activity 11 months 3 weeks
Hi I have sum dressings that I can not use and I am willing to ive them to somebody that needs them . They are called Centurion willing to ship from Pa if you pay the shipping cost Thank youRobert
  • Log in or register to post comments
Profile picture for user arthurcanga
Arthur c.
Driveline Management

Shower Protection

Last activity 11 months 3 weeks
Hi Everyone, My name is Arthur Canga, I'm from Brazil. My dad got the heartmate 3 this past July and i would like to get a few tips or some suggestions to protect his driveline during the shower. What kind of bandage is more secure to avoid his driveline of getting wet? He is starting to get some...
  • Log in or register to post comments
Profile picture for user Ivan McCarthy
Ivan M.
Caregiver Support

Meartmate3 better dressing configuration

Last activity 1 year
I learned that the entry site for the heartmate2 gives less problems because the cable is more flexible. this got me thinking and experimented with the allevyn , doubled it over and cut a slot in the centre. This was an improvement but still not happy, folded the allevyn to opposite corners and cut...
  • Log in or register to post comments
Profile picture for user hdeit48@gmail.com
Harriett D.
Caregiver Support

Sterile dressing changes

Last activity 1 year
How long does it typically take to do this process correctly? I have different nurses telling me different procedure steps! I’m so frustrated! How many times must you have completed the correct sterile protocol before you can be released from the hospital?
  • Log in or register to post comments
Profile picture for user Dyala
Dyala A.
Exercise and Physical Activity

Help me please

Last activity 1 year
Please i need your help? Im a caregiver and my husband had his L-vad one year back. My question is about tanning. Can he tan under the sun (no pool) in our yard, or at least do solarium bed tanning? Please i need your help, i tried to contact L-vad team but mo reply.
  • Log in or register to post comments
Profile picture for user pmunoz1950
Victor M.
Clothing Options

LVAD shirts

Last activity 1 year
If anyone wants to donate LVAD shirts in XL or XXL , please let me know. They are so expensive. Thank you so much!
  • Log in or register to post comments
Profile picture for user Bspaulding
Barb S.
Caregiver Support

North Dakota

Last activity 1 year
Possibly relocating to Grand Forks North Dakota. I’m not finding any facilities closer than Minneapolis. Anyone live in the ND area? Winnipeg has a hospital, but the locator says only for Heartmate II and I have a III. I also don’t know if Medicare will cover me if I use a Canadian hospital. Thanks...
  • Log in or register to post comments
Profile picture for user Susang
Barry and Susan (caregiver) S.
Equipment

Charger

Last activity 1 year
Would like to donate some of my husbands equipment. He went to rest with the Lord.
  • Log in or register to post comments

Pagination

  • First page « First
  • Previous page ‹‹
  • Page 1
  • Page 2
  • Page 3
  • Page 4
  • Current page 5
  • Page 6
  • Page 7
  • Page 8
  • Page 9
  • …
  • Next page ››
  • Last page Last »

Topics

Pagination

  • Previous page ‹ Previous
  • Page 4
  • Next page Next ›

Most Commented

Foley Anchor and rash
30 replies
Entresto
30 replies
My LVAD experience so far:
30 replies
Charging while traveling
30 replies
Driveline infections
28 replies

Pagination

  • Previous page ‹ Previous
  • Page 5
  • Next page Next ›

Most Viewed

What is P. I. reading ?
17,221 views
Golfing
17,110 views
Disconnecting LVAD
16,304 views
How to tolerate HMII carry bag weight
16,042 views
Looking for anyone else with a similar story.
15,655 views

Pagination

  • Previous page ‹ Previous
  • Page 5
  • Next page Next ›

Facebook Groups

  • MyLVAD
    MyLVAD
    1892+ likes
    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
  • LVAD Connection
    LVAD Connection
    566+ likes
    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
  • LVAD Recipients
    LVAD Recipients
    2722+ likes
    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

Do you have the MyLVAD Hospital Locator App?

  • App Store
  • Google Play

Footer menu

  • Refer a friend
  • About MyLVAD
  • Contact Us
  • Community Forums

Bottom menu

  • MyLVAD Foundation, LTD.
  • © MyLVAD
  • Legal Conditions

Social Links

  • Twitter
  • Facebook