Community Forums

Wife was implanted 3 yrs ago with heartmate 2 and has since had 3 drive-line revisions due to infection. We have been told transplant is not a option and have been forwarded to palliative care. We have been commuting from Kansas City to STL sfor care, but this has drained all our resources and...

My Dad received a heart transplant in 2015. We believed that he would make it through. All through FAITH in God knowing that there would be a reason. I am grateful to God everyday for also renewing him heart, mind, and soul to know who God is in his life!! Stay strong and believe!! I will be...

I was disappointed to hear from my doctor that right now I'm not a candidate for an LVAD. I didn't know until my doctor informed us that your heart has to be enlarged and you have to have a certain Ejection fraction in order to get an LVAD. Right now my heart isn't the size and my ejection fraction...

The Freedom Undervest keeps your LVAD equipment safe all day. We recommend sleeping in your Freedom Undervest, so that your LVAD equipment stays secure at night, and you remain comfortable. (It helps to have more than one vest, so that you can rotate them throughout the week.) Visit our Blog to get...

I have had an LVAD for 8 years. The new daily cleaning of my driveline is a pre-packaged kit, which includes an effective infection prevention disk called biopatch. Because of skin issues, I am unable to use them. Every day I have a new disk to add, and have a good-sized bag now. They are packaged...

I'm so proud of the Freedom Undervest because it solves a real problem. As many of my colleagues know, driveline infections are a serious risk for LVAD patients, and the Freedom Undervest addresses their need to protect the driveline exit site. Read more: https://medi-materials.com/2018/03/28/no...

Hello I am a new lvad recipient, I had my surgery on september 19 . Everything seems to be going well except for the fact that i can hear the pump running . It is very annoying and I was wondering if anyone else has this issue?

I'm happy to announce the launch of the Freedom Undervest, a garment designed to free you from your VAD bag. Medi-Materials has worked with LVAD patients and doctors to develop a comfortable vest that secures your external equipment in a completely hands-free manner. Learn more on our blog: https:/...

Lets get to it. The worst thing that can happen to an LVAD user is a drive line infection. It can put you in the hospital many times over and cures with the various antibiotics may or may not work for you. It can lead to extra surgeries for debridement and in some cases make it worse. In my case I...

I am 49 and got my lvad in September 2017, I have been playing guitar since I was 10 . Now the problem is my electric guitar picks up the pump and transmits it through the amp to the point of not being able to play. I don't think there is going to be any solution to this but I thought I would throw...

Hello, I am new to this forum . I had my lvad surgery on September 19 . Everything seems to be going good except for the fact that i can hear the high pitched hum of the pump .H as anyone else had this problem?

My husband had his LVAD op October 2017 10 days later he developed bowed ischaemia and had life saving surgery again, he had bowel resection and an illeostomy. He is lucky to have survived. Now over year later he has had drive line infection, regular low magnesium and potassium also, he looses fluid...

My Uncle has been living with his LVad for many years. He has recently been having complications. He's been in hospital over a week with a GI bleed they can't seem to find. He's had two colonoscopy and swallowed a pill that had a camera in it. They went in today and cauterized three spots that could...

Hi My father is 60 years old who suffered a ischemic stroke on 11/1/2018. Right now he is half paralyzed with aphasia. He has chronic heart failure. His heart is working 15-20%. He had a bypass in 2006 and a pacemaker implanted in 2012. I talked to a heart failure specialist who said our hope is...

Hello My name is Bassit Nawaz, I was your average university student living a healthy and active lifestyle while making time to study and was on the path to obtaining my Bachelors Degree in Science’s. Yet at the age of 21 I caught viral Infection that caused severe ventricles dilation resulting in...

My Brother-in-Law got his LVAD on November 30, 2017. After a grueling recovery, he got better and after 7 weeks in the hospital he was about to go home. But BAM! he got hit with the flu that is going around. Right away he was put into the CCU again, and his condition started to deteriorate rapidly...

Just as an FYI, the East Carolina Heart Institute (Vidant Hospital), Greenville, NC is now a LVAD hospital. Our surgeon was previously at Duke in Durham and preformed over 40 implants there and has done 5 implants here. (I was the 3rd.) This. is a fantastic addition to eastern NC as it saves...

I've tried the Yoga CD but I was unable to do alot of the exercises;it was for beginners . So I've decided to do some thing else. I going to my walks again. I was doing two miles a day and it was getting to hot during the summer. I'm going do do my walks in the morning and do some of my leg...

I've tried the Yoga CD but I was unable to do alot of the exercises;it was for beginners . So I've decided to do some thing else. I going to my walks again. I was doing two miles a day and it was getting to hot during the summer. I'm going do do my walks in the morning and do some of my leg...

I've tried the Yoga CD but I was unable to do alot of the exercises;it was for beginners . So I've decided to do some thing else. I going to my walks again. I was doing two miles a day and it was getting to hot during the summer. I'm going do do my walks in the morning and do some of my leg...