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Profile picture for user DAmbach
Darlene A.
New to LVADs

Lvad at 80

Last activity 10 months
My dad is a possible Lvad pt at just shy of 80 anyone else have experience with it at this age would love to hear your experience. It seems overwhelming
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Mark S.
Clothing Options

New LVAD Strong Merch

Last activity 10 months 1 week
My new heartmate 3 design is in print and already being shipped out. This is the new Heartmate 3 LVAD Strong design. The design is based upon my own CT scan from 2013.#1 LVAD strong merchandise sold all over the world. Please specify that you want the LVAD Inside logo on the back, or NURSE...
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Ronil P.
Equipment

LVAD accessories for sale - Heart Mate 3

Last activity 10 months 1 week
Hi all, My father underwent LVAD implant surgery but unfortunately he passed away immediately after. Since he never left the hospital, all the external LVAD equipment and accessories are unused and left with us. I was hoping to list them here in case someone would be interested in buying as it would...
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Laura A.
Clothing Options

clothing to donate

Last activity 10 months 3 weeks
Hi - Unfortunately, my father passed away in November and was an LVAD patient. I have a couple of LVAD shirts and an LVAD vest that I would like to donate. Is there a place that I could send these to? The hospital did not take donations. Thank you -
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Paula S.
Caregiver Support

Grief support after loss of lvad loved one

Last activity 10 months 3 weeks
I am looking for a grief support group specifically for us caregivers that have lost our LVAD loved one. I’m in the Phoenix area so I’m person groups or online groups would work for me. thanks
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Kelsi D.
Equipment

Generator Use

Last activity 10 months 3 weeks
Has anyone ever used a gas generator to power their charging doc or main power source? Some doctors don’t recommend using a generator for any of the charging/power needs.
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Debora L.
Equipment

Heartmate 3

Last activity 10 months 4 weeks
Hi, my husband passed 10/8/20 he received his Vad 2/20. I have all his equipment extra batteries, wall unit,,bags, vest, book, battery charger, drive line bandages n ect. Would like it to go to someone that can use it. Thx
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Steve K.
Equipment

lvad dressing kits

Last activity 11 months
I've had a lvad since 1/16/2019. My issue is medicare keeps denying my lavd dressing kit costs. As of January 2020 (finally got out of hospital) I require a dressing change everyday because of drainage at the driveline site due to pseudomonas aeruginosa infection. I have been in and out of hospital...
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Marilyn S.
Driveline Management

Drive Line drainage

Last activity 11 months
Hi. I am new the this forum. My husband had his LVAD implant in late August 2021. He is still experiencing heavy drainage from the driveline. We are changing his daily dressings every 2-3 days. The site itself looks really good and is not the concern. Our LVAD team has recently suggested taking...
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Profile picture for user gldoble57
Gregory D.
Recipient Support

Supplies for your VAD...Yeahh

Last activity 11 months
Just got this from a company out of Florida that my MCMS team was working with. Continuum They can supply all of your patches, foley anchors, silver foam etc. It is billed diretly to Medicare which is a god send, since I was pushing $450 per month, now I can save what I didn't have to begin with...
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Krysti B.
Driveline Management

LVAD ROOKIE

Last activity 5 months 3 weeks
I just received my LVAD on 6-24–19. I am now allowed to shower. I was just wondering what you cover driveline dressing with?
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Lissa N.
Patient and Caregiver Forums

From my heart to yours

Last activity 11 months 3 weeks
Hello all, My 73 year-old husband Terry recently passed away, of complications related to a rare type of pneumonia. He received his Heartmate 3 VAD on August 5, 2019 and yes, we went through all the highs and some of the lows post implant. I want to tell everyone to embrace each day; we had SO MANY...
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Anonymous
Equipment

Blood pressure Doppler

Last activity 11 months 3 weeks
Hi. I had my L-VAD implanted almost 4 months ago. They can't get my blood pressure stabilized. I'm trying to find a vascular Doppler here in Canada so I can check at home, no luck. Any suggestions or help would be appreciated, many thanks!
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Profile picture for user kpoliquin603
Katie P.
Caregiver Support

Younger VAD Couple

Last activity 1 year
Hello everyone! My husband is getting the LVAD this Friday. We knew about his heart failure but getting the VAD this early was a surprise, his condition has declined quickly. I'm nervous about a lot of things but would love advice from younger couples/families (older couples too if you have advice!)...
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Bernie R.
Living with an LVAD

Extremely out of breath

Last activity 1 year
Since my LVAD 33 months ago, I have been on a slow and steady decline. My condition at present is no better than the heart failure condition I experienced prior to my surgery. With any physical exertion I can only last a minute or two before requiring about 5 minutes of rest before another minute or...
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Ivan M.
Equipment

Coaguchek code chip 444 required

Last activity 1 year
Got test strips 444 for my coaguchek but lost the code chip and am wondering if anyone can help. Ivan McCarthy lealdasolutions@gmail.com
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Profile picture for user Rissa1974
CRIs S.
Caregiver Support

Nervous Wreck

Last activity 1 year
My Husband had LVAD surgery on Friday 1/8/2021. About 10 pm that night they had to put a tube down his throat to see what was going wrong. By 1:00am Saturday Morning I had to consent again for them to go back in him because the right side of the heart wasn't strong enough. Well Sunday the nurse told...
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Profile picture for user pmunoz1950
Victor M.
Patient and Caregiver Forums

Iron deficiency

Last activity 1 year
My husband received his LVAD in August 2021. He has an iron deficiency and has to go for iron infusions. He also got an infection in his sternum. Has anyone dealt with these issues. Pat
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Suzii P.
Equipment

Wearing LVAD batteries etc

Last activity 1 year
I find the easiest way to wear my external equipment is a fanny pack, or certain hiking/outdoor bags that clip around my waist. This leaves me hands free all day long. A Maxtop brand fanny pack from Amazon (xl) will hold the batteries and a front zipper is convenient for cards or cash etc. With this...
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Profile picture for user here for a good time not a long time
Ryan h.
Living with an LVAD

Hope things get better

Last activity 1 year
I’ve had congestive heart failure since 2015 and had a heart attack 2015 at the age of 35. I received an ICD also in 2015. I had an lvad put in on August 13, 2021. For a year prior to getting my VAD I was in and out of the hospital. Around Christmas 2020 I was in the hospital with a heart rate of...
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My LVAD experience so far:
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Charging while traveling
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LVAD Tshirts to give
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LVAD Equipment to give away
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