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Profile picture for user jalrnt
Amy T.
Caregiver Support

LVAD and dialysis clinics

Last activity 9 months 3 weeks
My husband has a LVAD and unfortunately is now on dialysis three days a week at our local dialysis clinic. We can't be the only ones dealing with this! I have had to quit my job so that I can go to dialysis with him and sit beside his chair in order for them to do dialysis on him. They had to be...
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Tabitha B.
Inspiration and Encouragement

LVAD Man book

Last activity 9 months 3 weeks
https://www.amazon.com/LVAD-Man-Tabitha-Belhomme/dp/B0BMSNRHM5/ref=sr_1_1?crid=DZ6FAHAKT209&keywords=lvad+man+book&qid=1669051242&s=books&sprefix=lvad+man+book%2Cstripbooks%2C132&sr=1-1 Hello everyone, My name is Tabitha, and I'm a nurse who formerly worked on a cardiac step-down unit. I am reaching...
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ron l.
Inspiration and Encouragement

A must read, imo

Last activity 9 months 3 weeks
I’ve always found it difficult to navigate the different forums so I just copied and pasted the post: I went through the same… Mon, 09/05/2022 - 1:35PM I went through the same thing after my VAD implant, wondering what life would be like, whether it was worth it to undergo the surgery, pain and...
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Profile picture for user 74Dan
Daniel S.
Inspiration and Encouragement

Mental health while having my lvad

Last activity 9 months 3 weeks
First time posting,, December 14th is my two year anniversary with the lvad, Balancing a positive mindset has been an on going issue,I'll be turning 48 in September I recently lost my younger brother who was 42, too a massive heart attack ,in July. The depression is Abit much I feel I'm losing what...
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Profile picture for user rlouis1439
ron l.
Inspiration and Encouragement

Three patients share their lvad stories

Last activity 9 months 4 weeks
YouTube: Living with an lvad - Three Henry Ford patients patients share their stories
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Profile picture for user StaceyPotter37
Stacey P.
New to LVADs

Not a candidate for an Lvad

Last activity 9 months 4 weeks
I was disappointed to hear from my doctor that right now I'm not a candidate for an LVAD. I didn't know until my doctor informed us that your heart has to be enlarged and you have to have a certain Ejection fraction in order to get an LVAD. Right now my heart isn't the size and my ejection fraction...
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Dick T.
Patient and Caregiver Forums

My LVAD experience so far:

Last activity 9 months 4 weeks
Hi all!! My name is Dick. I was just reminded that I joined this forum 15 days ago. Here is my story so far. I went to the hospital on the Tuesday before Thanksgiving to get the evaluations and approvals done. I was supposed to return the following week and have the LVAD installed if all went well...
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Profile picture for user Smiley
Angela B.
Inspiration and Encouragement

Feeling Good

Last activity 10 months
If anyone would like to laugh, talk, cry, scream and just sat in silence. Plz feel free to reach out. You are not along. I have had my LVAD for almost 3 yrs….so I know a little something of what you may be going through. You are STRONGER than you know. 🤗🤗
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Profile picture for user Gary L
Joanne L.
Recipient Support

Covid 19 fears

Last activity 10 months 2 weeks
Hi- I am a new recipient for the Heartmate 3. My surgery was on May 3 of this year. My recovery has been a little rocky- but my medical team has really helped and I am now stable.. That said- I have really been having quite a bit of trouble with worrying about contracting Covid. I had my usual labs...
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Profile picture for user suprememarsh1988
Christopher M.
Inspiration and Encouragement

Lvad group on zoom

Last activity 10 months 2 weeks
It’s been two years since my implant. I’ve got a 9 year old nephew that wants me to trick or treating! Depending on how quickly it gets dark here in Michigan tonight, I might be able to get on lvad zoom group. Don’t count it though! Candy Time!! Wahoo😝😝
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Profile picture for user LVAD.Express
Emily F.
Patient and Caregiver Forums

HeartMate 3 batteries

Last activity 10 months 3 weeks
Hi all! I am new to the LVAD caregiver community. My Father-in-law has his LVAD surgery this Wednesday. He is a BIG lover of the outdoors so I want to get him a fishing style vest to haul around his equipment in (his backup equipment will be in a bag). Can anyone with a HeartMate 3 tell me the...
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Profile picture for user bobg
Bob G.
Exercise and Physical Activity

The Electric Cranks Ride Again.....and Again.....and Again

Last activity 10 months 3 weeks
The Electric Cranks are a group of LVAD recipients from across the North of England, all patients at Wythenshawe Hospital, Manchester. A number of us are awaiting a heart transplant. We had all been physically fit and active prior to developing severe heart conditions which required life-saving...
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Profile picture for user Anonymous
Anonymous
Travel

VAD care in Ft. Myers/Naples, FL area

Last activity 10 months 4 weeks
Hello, My husband and I are considering spending a month or so in the Ft. Myers/Naples, FL area. I'd be more comfortable if I knew of a hospital/cardiology group located in the area that I could contact in case there would be any type of emergency that could come up with my husband's Medtronic LVAD...
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Profile picture for user Cliff Colbert
Cliff C.
Living with an LVAD

Medical Equipment Identifying Embroidered Patches

Last activity 11 months
Something that I've been considering doing is getting a embroidered patch made so that my go bag is clearly marked as medical equipment. I feel that this is important since I actually use a LowePro Camera bag with padded compartments and dual shoulder straps for carrying my spare batteries...
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Profile picture for user gldoble57
Gregory D.
Living with an LVAD

Driveline infections

Last activity 11 months 2 weeks
Lets get to it. The worst thing that can happen to an LVAD user is a drive line infection. It can put you in the hospital many times over and cures with the various antibiotics may or may not work for you. It can lead to extra surgeries for debridement and in some cases make it worse. In my case I...
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Profile picture for user COLLEENH
colleen h.
Caregiver Support

colleen h

Last activity 11 months 2 weeks
I want to thank everyone for looking and responding to my posts. It makes me feel better to know that I am not alone in this. Good news my husband is coming home today from the hospital, he was denied a rehab facility because he walked 160 ft. He is still very weak and I'm not gonna lie but I am...
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Profile picture for user Ginger
Ginger H.
Travel

LVAD and security screenings

Last activity 11 months 3 weeks
I am planning on attending a college football game in a few weeks. Is it safe for me to allow security to use the wand in order to pass through the entrance gate? Is it safe for me to walk through the security detection portals? Certainly appreciate hearing from anyone familiar with this situation.
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Profile picture for user Anonymous
Anonymous
Patient and Caregiver Forums

NEW LVAD

Last activity 11 months 3 weeks
Hi everybody, I got this email this morning and I read there's a new device that is implanted including the batteries. I don't think I want to go through the surgery again,but I would like to find out if the batteries will be replaced with the ones that I have and are lighter than the ones I have...
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Profile picture for user dgibbons
Devon G.
Clothing Options

Stabilizing belt for jumping recommendations

Last activity 1 year
I am 26, in fair condition, well enough to exercise and want to add jumping to my exercise program but the controller and two batteries aren't held stable well enough with anything I have. Does anyone have suggestions? Thanks
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Profile picture for user rwordner
Randolph O.
Medications

Randy O.

Last activity 1 year
I have an Evaheart 2. I received my LVAD at Methodist Heart Hospital in San Antonio, TX, on Dec. 15, 2020. I would like to know if anyone else is using Amioderone for A Fib. I got my implant for CHF due to cardiomyopathy. My ejection fraction was <15. I would like to hear from anyone else with an...
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Most Commented

Foley Anchor and rash
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Entresto
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My LVAD experience so far:
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Charging while traveling
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Driveline infections
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What is P. I. reading ?
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Facebook Groups

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    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
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    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

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