Patients and Caregivers Forums

My husband had Lvad surgery 6/2/22. He has the Heartmate 3. Today finally he got up and walked a little. But he is having excruciating pain at the drive line site when he stands and sits. He says it hurts all the time but not as bad as when he stands and sits. He says it feels like someone is...

Actually I am a caregiver. My husband is the VAD recipient. We are on a 2 week trip at the Grand Canyon then on to Denver to visit our son and daughter in law. Having a great time. The altitude has reduced his breathing comfort. We are staying on paved pathways and do not plan to hike! At 78 Ned is...

Hi All After 2&1/2 years of using HVAD (Heartwear from Medtronics), my husband passed due to device malfunction (they gave him impella as a temporary device, but this time it didnt work). He fought valiantly for 2 months, and did recover his cognition etc. (was able to remember everything, follow...

Hi All After 2&1/2 years of using HVAD (Heartwear from Medtronics), my husband passed due to device malfunction (they gave him impella as a temporary device, but this time it didnt work). He fought valiantly for 2 months, and did recover his cognition etc. (was able to remember everything, follow...

Hello everyone! As a cardiac rehab nurse supervisor I want you to know nurses understand your journey from heart failure - meds- hospitalizations and decreased quality of life leading to decision of LVAD. Cardiac rehabs can help you in your recovery we monitor you and we help you regain your muscle...

Hi everyone, My father, 67 is in hospital in the UK with heart failure and poor output and heart stability (he's had stents and a pacemaker fitted in the past). He seems the perfect candidate for a LVAD as destination therapy but the heart doctor stated that the UK only did LVADs as bridge to...

7I am a 70 yr old male almost eight weeks post surgery (HeartMate 3) and starting to exercise. Previous to my surgery I exercised with a Concept 2 rowing machine a few times a week, interspersed with treadmill and weights. In cardio rehab we are using free weights and treadmill/bicycling/recumbent...

Hello everyone, My father recently passed away and the hospital sent me home with all of his LVAD equipment for the Heartmate 3. He only had the LVAD procedure done about a year ago so there are many pieces that are brand new or like new. I was hoping to list them for sale here in case anyone was...

My husband received the HeartMate3 6/2/22. He is has been in the hospital since 5/12/22 and now they want to send him to a rehab facility. It seems that his 30 day hospital stay is approaching and they just need to discharge him. Has anyone had a similar situation ?

Depression is starting to wear me down lately. Im tired of people looking at me like i have five heads; and they have no idea what the F*ck im saying. I feel like im screaming in which nobody can hear and im here just existing and nobody can see me. My mom refusers to broaden her horizons and meet...

My husband had massive heart attack end of Jan 2022 and had no prior symptoms. Completely collapsed with head injury and died for 25 mins. After multiple surgeries to open up arteries, he received LVAD on Feb 14. Stayed in ICU, then a drop down ICU, then private room then released to a Rehab...

My husband recently died. I have lots of equipment and supplies that I’d like to donate to someone who might need them. I believe his system was a Heartmate II. I have lots of pix if you wish to see them. I am located in Rockport Texas, but will be traveling from there to wisconsin later this summer...

Hi I have sum dressings that I can not use and I am willing to ive them to somebody that needs them . They are called Centurion willing to ship from Pa if you pay the shipping cost Thank youRobert

Hi Everyone, My name is Arthur Canga, I'm from Brazil. My dad got the heartmate 3 this past July and i would like to get a few tips or some suggestions to protect his driveline during the shower. What kind of bandage is more secure to avoid his driveline of getting wet? He is starting to get some...

I learned that the entry site for the heartmate2 gives less problems because the cable is more flexible. this got me thinking and experimented with the allevyn , doubled it over and cut a slot in the centre. This was an improvement but still not happy, folded the allevyn to opposite corners and cut...

How long does it typically take to do this process correctly? I have different nurses telling me different procedure steps! I’m so frustrated! How many times must you have completed the correct sterile protocol before you can be released from the hospital?

Please i need your help? Im a caregiver and my husband had his L-vad one year back. My question is about tanning. Can he tan under the sun (no pool) in our yard, or at least do solarium bed tanning? Please i need your help, i tried to contact L-vad team but mo reply.

If anyone wants to donate LVAD shirts in XL or XXL , please let me know. They are so expensive. Thank you so much!

Possibly relocating to Grand Forks North Dakota. I’m not finding any facilities closer than Minneapolis. Anyone live in the ND area? Winnipeg has a hospital, but the locator says only for Heartmate II and I have a III. I also don’t know if Medicare will cover me if I use a Canadian hospital. Thanks...

Would like to donate some of my husbands equipment. He went to rest with the Lord.