Patients and Caregivers Forums

I lost my sweet husband Nov. 24 th, 2020. He had his LVAD since Oct. 19, 2016. I have all his equipment that I would love to pass on to someone that can use it. Please reply here.

I am a recipient for an LVAD before I decide whether I'm going to do it or not I really wanna know about it and I have some questions here's the first question that comes to mind...... Will I have a pacemaker and defibrillator with my LVAD or will they take the pacemaker and defibrillator out and...

INVITATION TO PARTICIPATE: VAD WEARABLES RESEARCH PROJECT https://www.surveymonkey.com/r/VAD-wearables We are currently inviting Ventricular Assist Device patients globally to participate in an online questionnaire about their experience with their VAD wearable systems. The aim of the questionnaire...

Hello! My dad 80 is still in ICU for the last 6 days. He was closed on last Monday. He is still intubated and they are slowly trying to wake him up. They have started nose feeding and has the temp RVAD on. I was wondering if anyone in the group went through the same experience? How long it took you...

Hi! My research team at Baylor College of Medicine in Houston, TX is working to understand how LVAD patients and caregivers are responding to the COVID-19 pandemic and feel about COVID vaccines. Your responses can help tailor important health information to the LVAD community! We are pleased to...

My name is Bill. I have had my VAD for three years and I was wondering if there are any dating sites for VAD recipients. I would like to find out if there is one. Thanks Bill

Hi! I recently lost my brother after the LVAD extended his life for 5 years. I had the pleasure of adding pockets to clothing for his batteries. I have a pair of bib overall with the pockets added that he did not have the opportunity to wear. I would love to pass them along to someone. They are size...

Hi there! I hope everyone is safe and doing well, and for those who are not you are in my prayers. I was hoping I could find out where I could get a reasonably cost doppler for blood pressure checks. Cheapest I have found is $120 but wanted to see if someone was maybe selling one or knew of a...

Is anyone aware of a watch that might be worn that will vibrate if there is an lvad alarm?

Love the new styles for both men and women! Comfortable and stylish LVAD vests for HeartMate 2 & 3’s. www.vadwearvests.com

I've tried the Yoga CD but I was unable to do alot of the exercises;it was for beginners . So I've decided to do some thing else. I going to my walks again. I was doing two miles a day and it was getting to hot during the summer. I'm going do do my walks in the morning and do some of my leg...

So I have had my LVAD for over 3 years now and thankfully without any major issues. I have been supported by family through this time but unerstandably that is not a long term option and has gone on long enough already. I don't feel comfortable going back to work full time as my energy levels can...

Hi! My research team at Baylor College of Medicine in Houston, TX is working to understand how LVAD patients and caregivers are responding to the COVID-19 pandemic. Your responses can help tailor important health information to the LVAD community! We are pleased to offer $5 to LVAD patients and...

Today was my education day with my LVAD coordinator, Social worker, pharmist and finance. Of course at this point I am overwhelmed with all the information and such that I got today. My LVAD surgeon will meet with his team next Tuesday to discuss my case, but according to him there is no other...

/medical-professionals/resource-library/ems-field-guides The 2021 EMS Field Guides are Here! Print QR codes to keep with you so you and emergency services can access emergency information quickly! You can also find them on the MyLVAD app! If you haven't downloaded it yet...Check it out!!

Hello! Our research team at Baylor College of Medicine in Houston, TX is working to understand how LVAD patients and caregivers are responding to the COVID-19 pandemic. Your responses can help tailor important health information to the LVAD community! We are pleased to offer $5 to LVAD patients and...

Hi! I recently received a heart transplant(!!!) and I have 24 extra driveline management 'kits' available. See picture below of 1 of the kits, they are all exactly the same. If someone can use these I am willing to ship them to you free of charge(within USA only, please). Leave a reply here if...

Hi, am I able to ride a bike?, where live now I can ride one around and not worry getting hurt or hit by a car. Thank you for your time and Peace be with you all.

https://www.surveymonkey.com/r/VAD-wearables We are currently inviting Ventricular Assist Device patients globally to participate in an online questionnaire about their experience with their VAD wearable systems. The aim of the questionnaire is to research how Ventricular Assist Device patients feel...

Now at age 70, living in the USA, I have to let my ten-year level term insurance expire because the rates were set to climb rapidly anyway. I have to search for a new company, maybe with much less coverage to keep my monthly or quarterly fees affordable, but I don't know if any company would take me...