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  • Tips and Tricks
    Posted 03/28/2015 - 9:26pm | Last activity 11 min 14 sec
    Please email for instructions at hankpattyrichmond@sbcglobal.net
  • Tips and Tricks
    Posted 05/19/2017 - 9:51pm | Last activity 2 days 5 hours
    I've had my device for 3 years and the past couple of months, the skin under the bandage and the foley anchor has started to itch, but I don't know from what. I don't know if it's the Tegraderm, the cloraprep which my doctor said to switch to alcohol to clean the area, or the skin prep solution.
  • Posted 02/11/2012 - 5:09pm | Last activity 2 days 5 hours
    Today, I took my first shower since my LVAD was implanted 6 1/2 months ago. It was absolute heaven. I was very nervous but it was actually easier than I expected. It was a little time consuming but I am sure that once I get a routine down it will become old hat.
  • Caregiver Support
    Posted 07/19/2017 - 12:16am | Last activity 4 days 10 hours
    This may not be the forum for this question, but who better to answer my questions than those living with an LVAD and the people who care for them.
  • Posted 10/28/2013 - 4:12am | Last activity 5 days 7 hours
    I have been imparted with HVAD (Heartware Ventricular Assist Device) 2 months before. I am based in India and am the first one to get this device in whole of India (may be in Asia too).
  • Posted 11/02/2012 - 6:37pm | Last activity 5 days 7 hours
    http://www.kinston.com/news/local/large-hearted-man-helps-other-transpla...
  • Posted 12/16/2011 - 2:08pm | Last activity 5 days 7 hours
    I decided to write this knowing that their are so many Caregivers/Wives/Girlfriends that will be able to relate to this post, hope you enjoy. I loved writing this for Jason. To My Jason: I love you more than enough...
  • Posted 07/04/2015 - 5:13pm | Last activity 5 days 7 hours
    My 17 year old son just found out he needs an LVAD as bridge treatment to a transplant. He is not happy about it. Are there any other young people on here with an LVAD? Any advice?
  • Posted 05/22/2013 - 2:03pm | Last activity 5 days 7 hours
    This is a post from a new LVAD recipient. MyLVAD would like to welcome you and we wish you continued success through your journey!I have been struggling with Congestive Heart Failure and Cardiomyopathy since October of 2008.
  • Posted 07/30/2012 - 8:40pm | Last activity 5 days 7 hours
    I received my LVAD on June 3, 2011 at Strong Memorial Hospital (University of Rochester Medical Center), Rochester, NY. Dr. H. Todd Massey was my surgeon. Simply put, I am alive due to my LVAD. Yes, there are life-style changes, but well worth it if you wish to be among the living.
  • Posted 09/25/2011 - 11:19pm | Last activity 5 days 7 hours
    Does anyone use ChloraPrep to clean the driveline exit site instead of chlorhexidine gluconate soap and water? If ChloraPrep is used, what type of dressing is performed? Does the ChloraPrep cause any irritation ? Thank you !
  • Posted 12/26/2016 - 4:37pm | Last activity 5 days 7 hours
    A little background.  I am an Engineer by profession & trade.  And when I run into a problem like what I am working on now I like to find out the what's, and why's.
  • Posted 09/03/2014 - 4:20am | Last activity 5 days 7 hours
    Being toned while staying skinny isn't as healthy for you, as most of us were told. In past decades, being thin with developed muscles was thought to be the ultimate fitness goal. Today the opposite version of physical chic has become dominant, being skinny with a high percentage of body fat.
  • Posted 02/08/2013 - 4:34pm | Last activity 5 days 7 hours
    I've had my LVAD since 4/20/09 and for the last year I have been dating a man that has had his LVAD for a year. It is wonderful to be with someone that understands everything and yes we do share batteries......
  • Posted 04/10/2012 - 3:58pm | Last activity 5 days 7 hours
    Well hello everyone, the names Larry, I got my HM2 about a year or more ago, I was in bad shape till I got it. I have lost 85 Pounds to this date and I am loving it. I have just worked out like crazy and eat the healthy foods and it works.
  • Posted 06/18/2016 - 10:36pm | Last activity 5 days 7 hours
    I have a problem with the adhesive used on the dressing. My problem is I get skin tears when removing the dressing! They bleed and since I take warfarin to keep my INR correct they are hard to stop. We tried different dressings and cleaning agents but I stil have this problem.
  • Posted 03/26/2014 - 10:16pm | Last activity 5 days 7 hours
    I received my LVAD in June of 2011. My suggestion to all prospective transplant recipients is to begin working out as soon as possible and continue to buildup.
  • Posted 11/28/2013 - 1:57am | Last activity 5 days 7 hours
    Hi. My brother (24 years old) has had LVAD for about a month. He doesn't feel like eating and/or feel sick when tries to eat something. Does anyone had the same situation? If so, it would be appreciated how you managed the situation.
  • Posted 11/13/2012 - 10:38am | Last activity 5 days 7 hours
    On August the 29th, 2012 I had my LVAD implanted, at the Cleveland Clinic. in the past I could not even turn over in bed without gasping for a breath, walk to my car or anything, even taking a shower i had to rest.
  • Posted 01/24/2012 - 8:40am | Last activity 5 days 7 hours
    While perusing the net, I found this remarkable recovery story of a man who had a stroke AND an LVAD. His story can be found on video here:

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