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  • Tips and Tricks
    Posted 03/28/2015 - 9:26pm | Last activity 2 min 1 sec
    Please email for instructions at hankpattyrichmond@sbcglobal.net
  • Tips and Tricks
    Posted 05/19/2017 - 9:51pm | Last activity 2 days 5 hours
    I've had my device for 3 years and the past couple of months, the skin under the bandage and the foley anchor has started to itch, but I don't know from what. I don't know if it's the Tegraderm, the cloraprep which my doctor said to switch to alcohol to clean the area, or the skin prep solution.
  • Posted 02/11/2012 - 5:09pm | Last activity 2 days 5 hours
    Today, I took my first shower since my LVAD was implanted 6 1/2 months ago. It was absolute heaven. I was very nervous but it was actually easier than I expected. It was a little time consuming but I am sure that once I get a routine down it will become old hat.
  • Caregiver Support
    Posted 07/19/2017 - 12:16am | Last activity 4 days 10 hours
    This may not be the forum for this question, but who better to answer my questions than those living with an LVAD and the people who care for them.
  • Posted 12/14/2012 - 4:17pm | Last activity 5 days 7 hours
    I recieved my hii in aug of 2010. Life was good till feb of 2012 ldh went out of wack but I had no other symtems. In sept of 2012 I got infection after moving a hot dog mach witch I finely had to let the Dr replace pump.
  • Posted 02/24/2012 - 9:45am | Last activity 5 days 7 hours
    Today is my husband, Jerry's 2nd LVAD Birthday. I call it a Birthday instead of an anniversary since the LVAD gave him life. Although there he has had ups and downs on the past two years, I am so thankful that he has his LVAD.
  • Posted 12/19/2015 - 12:54am | Last activity 5 days 7 hours
    Hi, My name is Matthew.
  • Physical Activity
    Posted 09/05/2013 - 8:59am | Last activity 5 days 7 hours
    Any tips on playing golf with HeartMate II and equipment ideas. I just put batteries in cargo shorts pockets with controller around my waist. Any other ideas?
  • Posted 10/08/2012 - 9:00am | Last activity 5 days 7 hours
    I was a 4.19 handicap and got the lvad in july, how long till i can play again? so far its saved my life, but still recuperating and endurance is not stellar. Any advice
  • Posted 12/14/2011 - 7:29pm | Last activity 5 days 7 hours
    Which patient inspires you the most?
  • Recipient Support
    Posted 05/18/2017 - 7:41pm | Last activity 5 days 7 hours
    FYI - I have collected various types of info for myself that might also be useful to others here on my Pinterest account. Go to https://www.pinterest.com/flimbach/l-vad-help
  • Posted 11/04/2014 - 6:44pm | Last activity 5 days 7 hours
    Has anyone tried this bag??
  • Posted 04/10/2013 - 10:04am | Last activity 5 days 7 hours
    Mom was diagnosed with Cardiomyopathy in 1996. She had a terrible virus and the words made us sick to our stomach. You see my father was diagnosed several years prior and died in 1995 from complications of a Heart Transplant. So here our Journey begins.....
  • Posted 07/12/2012 - 2:05pm | Last activity 5 days 7 hours
    The Canadian Cardiovascular Society has put out an updated position statement regarding their recommendations for allowing LVAD Recipients to drive.
  • Posted 09/10/2011 - 4:45pm | Last activity 5 days 7 hours
    It would be nice if you also included EX- Vadders.
  • Posted 08/25/2016 - 8:17am | Last activity 5 days 7 hours
    I have a high heart rate (~115 bpm at rest, and when I do anything over walking 20 metres per day my heart rate goes up and takes some days to return back down to ~115 bpm again), due to this my life is severely limited in what I can do, though I am only 22 years old.
  • Posted 06/10/2014 - 3:22pm | Last activity 5 days 7 hours
    Hi, I am looking for community resources for pediatric patients and their families. Speciffically siblings of a VAD patient. Does anyone know of sibling/family resources for pediatric VAD patients?
  • Posted 01/14/2013 - 6:38pm | Last activity 5 days 7 hours
    After mom had her vad put in on Dec 10 we have been very involved with her care. She is still in hospital with some complications but did spend a few days home and we realized the Vest and the Purse were way to cumbersome and heavy for her. She is 76 and very weak.
  • Posted 03/07/2012 - 9:58am | Last activity 5 days 7 hours
    This month the MyLVAD Community Spotlight features Angie and Tim. Tim was implanted with an LVAD in his early 30's due to idiopathic (unknown cause) cardiomyopathy. Angie, his wife, not only cared for him but also cared for their three young children and worked to help support their family.
  • Posted 02/08/2016 - 3:29pm | Last activity 5 days 7 hours
    Hello- My 53 year old brother needs an LVAD implant and has no immediate family nearby. Both myself and my other brother do not live close, have full time jobs and families.

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