You are here

Log in to post new content in the forum.

  • Posted 09/09/2011 - 2:33pm | Last activity 5 days 7 hours
    LVAD recipients: what physical activities do you enjoy most?
  • Posted 12/22/2012 - 11:55am | Last activity 5 days 7 hours
    Has anyone seen single dating sites that cater to LVAD patents? If not someone should start one. Think of the advantages. No explanations needed, no hiding your equipment, and you can share batteries if one of you gets low.
  • Posted 02/27/2012 - 11:54am | Last activity 5 days 7 hours
    My husband has lost his voice since the open heart/LVAD surgery on Feb. 9th, about two weeks ago. Has anyone had this same problem? He will be going to a specialist mid March to see what's wrong. But there are some advantages to having a husband who whispers!
  • Posted 09/06/2013 - 10:55pm | Last activity 5 days 7 hours
    We flew down from Seattle. We had no problem going through TSA/security. We did have to unpack our carry ons and put it all in the bins. I think we had six bins with all our stuff:) Disney Land and California adventure it self was a blast.
  • Posted 10/17/2012 - 6:10am | Last activity 5 days 7 hours
    Please help us evaluate if my father is eligible for an LVAD. He is 88 years old and his heart has an EF of 20%. Medications are not working for the last two weeks and his blood pressure is dangerously low (80/55 or worse). He also has diabetes and multiple blocked arteries.
  • Posted 12/15/2011 - 2:06pm | Last activity 5 days 7 hours
    Tim, HeartMate II since May ?11 I received my LVAD on May 23, 2011. Prior to this, my work had required me to travel throughout the US and the world, usually for 2-3 weeks a month.
  • Posted 04/17/2013 - 3:51pm | Last activity 5 days 7 hours
    I'm a new to this site and a new caregiver as well. My husband and I love to travel and I was wondering if we will ever be able to travel internationally again. Does anyone one have any suggestions about the best places to travel with an LVAD?
  • Posted 07/13/2012 - 11:13am | Last activity 5 days 7 hours
    I was just slightly winded, short of breath, even though I hadn't walked far. I had been fit and healthy my entire life so whatever was wrong couldn't be serious, I thought. I was diagnosed with heart failure in October 2009.
  • Posted 09/15/2011 - 12:21pm | Last activity 5 days 7 hours
    Great Web Site I will share with our patients. TY
  • Posted 07/23/2016 - 9:09pm | Last activity 5 days 7 hours
    Hi I just got my Lvad last week. I'm not used to moving around with it. I've been looking online for alternatives. Any suggestions on carry/walking packs? ps. I have different items eg vests which I got when I got discharged Any feedback would be acceptable
  • Posted 05/05/2014 - 9:31am | Last activity 5 days 7 hours
    Has anyone been given clearance to drive at work? My husband is back to work but it would help his position if he was able to drive a city vehicle (short distances-no longer than 10 minutes of driving). Our LVAD team and surgeons won't sign off on letting him drive because of liability issues.
  • Posted 12/19/2015 - 12:54am | Last activity 5 days 7 hours
    Hi, My name is Matthew.
  • Recipient Support
    Posted 05/18/2017 - 7:41pm | Last activity 5 days 7 hours
    FYI - I have collected various types of info for myself that might also be useful to others here on my Pinterest account. Go to https://www.pinterest.com/flimbach/l-vad-help
  • Posted 11/04/2014 - 6:44pm | Last activity 5 days 7 hours
    Has anyone tried this bag??
  • Posted 08/25/2016 - 8:17am | Last activity 5 days 7 hours
    I have a high heart rate (~115 bpm at rest, and when I do anything over walking 20 metres per day my heart rate goes up and takes some days to return back down to ~115 bpm again), due to this my life is severely limited in what I can do, though I am only 22 years old.
  • Posted 06/10/2014 - 3:22pm | Last activity 5 days 7 hours
    Hi, I am looking for community resources for pediatric patients and their families. Speciffically siblings of a VAD patient. Does anyone know of sibling/family resources for pediatric VAD patients?
  • Posted 02/08/2016 - 3:29pm | Last activity 5 days 7 hours
    Hello- My 53 year old brother needs an LVAD implant and has no immediate family nearby. Both myself and my other brother do not live close, have full time jobs and families.
  • Clothing Options
    Posted 06/30/2017 - 1:55pm | Last activity 5 days 7 hours
    Just thought I would let y'all know carew medical wear is having a 4th of July sale. I just received a e-mail from them. My coordinators love this lvad shirt, I'm very happy with it too. www.carewmedicalwear.com
  • Posted 03/23/2015 - 2:15pm | Last activity 5 days 7 hours
  • Posted 09/08/2016 - 8:42pm | Last activity 5 days 7 hours
    I am 38 years old and I am in stage 3 of HF. Yesterday I was told that I need a transplant but I have to lose 60 pounds first. Meanwhile I need the LVAD. The doctor asked me how bad do I feel? As simple as the question was, it was difficult to answer. I have 3 children ages 16, 14, and 11.

Pages