Patients and Caregivers Forums

Hi my brother brother has had an l vad For about 8 years now. Around June he suffered a fall hitting his head and causing him to have a brain bleed, He had to be rushed to Rochester in Minnesota. They removed part of a skull to let his brain swell. He was in the hospital for For 50 days and now he...

Hi everyone, my name is Mike, my LVAD was implanted September 27th 2022. So far so good. I am getting stronger by the day. Do my 2-3 mile walk every day and go to Cardiac Rehab. I am playing golf every Saturday. My only issues are a daily bout of double vision which lasts about 15 seconds and some...

My husband is likely getting an LVAD this week. He has cardiomyopathy and is only 40 so they want to put off a transplant as long as possible. The more I read about LVADs, the more I hear of numerous complications, recovery issues, and the amount of care the caregiver must provide in the months...

My husband recently passed away. I have 4 lvad vest shirts (3 black, 2white, size medium). They work really well and are comfortable with a Heartware lvad. I would like to donate them since I know they are costly to buy.

Been dealing with a rash around the port area. Port is not infected. My skin can't take anymore adhesive. Wondering if anyone has experienced this situation. Any help or suggestion would help!!!

Does anyone have a history of taking the supplement CoQ10? I was reading an interesting study from the American Heart Association: Coenzyme Q10 and Heart Failure A State-of-the-Art Review

We are looking for a subacute rehab in nj area. I googled and was not able to find any

Hi Everyone, my roommate has a heart mate 3 and has had an infection in the past. The last few days he has had a discharge of a green color and he seems to think that is normal. All he does is sleep, nothing new tho but he isn’t feeling well either. Has diarrhea also. What do you all think? I think...

My dad recently passed, we would like to donate his equipment and clothing; Heart Mate 2. We have spare batteries (4 boxes w/4 batteries in each box), battery charger, the remote for the batteries, shirts (large) and vests (large). Equipment and clothing are very clean, my dad was very particular...

2 days after his 5th year anniversary with the LVAD my husband passed away on month shy of his 61st birthday (which is next week). I have the wall plug, the battery charger with 8 batteries and the harness. I am in NC so please let me know if anyone needs any of these items. Contact me if these...

I just found your website. I have a story to tell. I made a diary from when I decided to have surgery till today. It was daily while in the hospital to a week or so out. Then whenever I have something to add. I hate to brag but the LAVD team at Banner University Hospital in Phoenix calls me their...

Merry Christmas to all those LVAD'ers out there. I hope that Santa is good to all of you!!

Any tips on playing golf with HeartMate II and equipment ideas. I just put batteries in cargo shorts pockets with controller around my waist. Any other ideas?

pump noise Hello I am a new lvad recipient, I had my surgery on September 19 . Everything seems to be going well except for the fact that i can hear the pump running . It is very annoying and I was wondering if anyone else has this issue?

I am going to get lvad in July at Methodist hospital in Houston. Can any one tell me what all changes I'll be dealing with. And any info shared would be great

My husband has a LVAD and unfortunately is now on dialysis three days a week at our local dialysis clinic. We can't be the only ones dealing with this! I have had to quit my job so that I can go to dialysis with him and sit beside his chair in order for them to do dialysis on him. They had to be...

https://www.amazon.com/LVAD-Man-Tabitha-Belhomme/dp/B0BMSNRHM5/ref=sr_1_1?crid=DZ6FAHAKT209&keywords=lvad+man+book&qid=1669051242&s=books&sprefix=lvad+man+book%2Cstripbooks%2C132&sr=1-1 Hello everyone, My name is Tabitha, and I'm a nurse who formerly worked on a cardiac step-down unit. I am reaching...

I’ve always found it difficult to navigate the different forums so I just copied and pasted the post: I went through the same… Mon, 09/05/2022 - 1:35PM I went through the same thing after my VAD implant, wondering what life would be like, whether it was worth it to undergo the surgery, pain and...

YouTube: Living with an lvad - Three Henry Ford patients patients share their stories

I was disappointed to hear from my doctor that right now I'm not a candidate for an LVAD. I didn't know until my doctor informed us that your heart has to be enlarged and you have to have a certain Ejection fraction in order to get an LVAD. Right now my heart isn't the size and my ejection fraction...