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Profile picture for user kpoliquin603
Katie P.
Clothing Options

LVAD Accessories

Last activity 4 months 1 week
Hello All! My husband and I are moving and came across some extra accessories free to anyone who can use them, I know not everyone's insurance covers. All compatible with Heart Mate 3 Shower bag w/ straps Belt case with optional straps Cross body battery support. He has since been transplanted. Feel...
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Profile picture for user UpstandingStrength
Virginia S.
Living with an LVAD

How do you cope with living with an LVAD?

Last activity 4 months 2 weeks
Hello all, I'm not exactly new to living with an LVAD since I've had mine for two years now, but I'm still adjusting and trying to cope with it. It's a huge change in my life that happened at a very young age. I was only twenty-one years old when I got my LVAD and I've spent two of my birthdays in...
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Profile picture for user carolenap
Carole N.
Equipment

NEED AN LVAD SHOWER BAG?

Last activity 4 months 3 weeks
My husband has an LVAD Thoratec HeartMate GoGear Shower Bag. Never opened - still in the box. His doctor won't let him shower so if anybody needs it please let me know. All I ask is that you pay shipping. Thanks and have an amazing day.
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Profile picture for user dharak
Dhara K.
Questions about LVAD surgery

What should we know before my father gets an LVAD in India?

Last activity 4 months 3 weeks
My father, who is now 65, has been diagnosed with atrial fibrillation (AF), and has been recommended a heart transplant or an LVAD. We are still in the process of checking if he's a good candidate for either of those, but I would like to know someone's personal experience with either transplant or...
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Profile picture for user mattkerrybritt@msn.com
Matthew B.
New to LVADs

Been advised that I need an LVAD unit.

Last activity 4 months 3 weeks
So I have been advised that I need to have an LVAD unit. I have HOCM and have been fighting this heart desease head on since 2014 when I had a Septal Myectomy and Transapical midventricular myectomy at the Mayo Clinic in Rochestor MD. These surgeries were very major but really did not improve my...
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Profile picture for user Susang
Barry and Susan (caregiver) S.
Living with an LVAD

Right ventricular dysfunction

Last activity 4 months 3 weeks
My husband is 74 and also destination LVAD. His breathing has really gone down hill, because of dysfunction of the right ventricular , which creates regurgitation of the Tricuspid, thus fluid retention , thus increase Pulmonary disease. He was just at the hospital , Mayo, to see his Team. So for now...
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Profile picture for user JDStratton
John S.
Clothing Options

Medi-Materials.com has restocked the Freedom Undervests!

Last activity 5 months
Because of the Covid-19 pandemic, our manufacturer was committed to producing PPE before working on our order. The wait is over! Take a look at www.medi-materials.com
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Profile picture for user lschoen
Lauren S.
Questions about LVAD surgery

COVID-19 Concerns pre-VAD or post-VAD?

Last activity 5 months
Hi everyone! My name is Lauren, and I work at Baylor College of Medicine in Houston, TX. My colleagues are the creators of Deciding Together, an LVAD Decision Aid which is intended to educate patients and caregivers and help them generate questions and concerns to discuss with a healthcare team...
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Profile picture for user Cathie
Cathie W.
Driveline Management

Sterile Dressing Supplies

Last activity 5 months
My husband received his new heart on June 4th. We have a large amount of supplies to share for the cost of shipping. Please let me know if you have need of any of the following: 2" and 4" gauze 2" and 4" driveline sponge rolls of 2" and 4" medipore tape hibiclens sterile water hair bonnets foley...
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Profile picture for user mefritz2
Maryellen F.
Equipment

LVAD Equipment to give away

Last activity 5 months 1 week
Hi. I have some LVAD equipment I would love to give away to anyone who needs it. Thoratec Heart Mate Go Gear Battery Holster, 2 Shower Bags, one consolidated bag, right, Battery Holster, power module cable, 2 stabilization belts, white. Please let me know and I will ship to you. thanks Maryellen
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Profile picture for user Research Announcements
Research A.
Research Participation Opportunities

Study Enrollment has Closed - Would you like to join an important study about your experience of living with a Left Ventricular Assist Device (LVAD)?

Last activity 5 months 2 weeks
Profile picture for user ian
Ian P.
Inspiration and Encouragement

!0 years with a Ventrasist Lvad!

Last activity 5 months 3 weeks
I have recently 'celebrated' 10 years of living with an 'antiquated' Ventrassist LVAD in the UK. Life has not been easy with the heavy batteries and so on, but the 'behaviour' of the pump itself has been exemplary! We are getting to the stage where getting batteries for it can be quite difficult....
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Profile picture for user elangolvad
Gova R.
Equipment

Heart mate 3 equipment

Last activity 5 months 3 weeks
Hi, I have Lvad Heartmate 3 equipment, 4 batteries, battery charger, Wall charger, go gear (small) , some dressing supplies, folly anchors, chloroprep etc. I have used less than a year. It’s in good condition. I can also ship the items if needed. Pls let me know if any one Is interested. you can...
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Profile picture for user kpoliquin603
Katie P.
Caregiver Support

Younger VAD Couple

Last activity 5 months 3 weeks
Hello everyone! My husband is getting the LVAD this Friday. We knew about his heart failure but getting the VAD this early was a surprise, his condition has declined quickly. I'm nervous about a lot of things but would love advice from younger couples/families (older couples too if you have advice!)...
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Profile picture for user Cathie
Cathie W.
Driveline Management

Sterile Dressing Supplies

Last activity 5 months 3 weeks
My husband got his LVAD June 2018. We JUST received the first invoice for dressing supplies and it was $3,443!! Our cost after insurance for Chloraprep is $202. A box of sterile gloves $75, Foley anchors (which are terrible and always come off but that's another story) are $62.00 The company is...
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Profile picture for user vruss08
Vikki R.
New to LVADs

Low Flow

Last activity 5 months 3 weeks
Hello, I’m 58 years old wife, mother. My CHF started in my early 40s secondary to Rocky Mountain spotted fever destroyed my ventricles. Now as of Dec 16, 2019 just out of the hospital 2months Feb 16. It’s been a roller coaster with my heartmate 3. Many low flow incidents, and high PIs. I’m either to...
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Profile picture for user Ddwhis
Debra W.
Patient and Caregiver Forums

Eliquis VS Coumadin

Last activity 6 months
My husband had a Heartmate 3 Inserted last March and did very well at first but soon was experiencing GI bleeds, source unknown after tests and scopes. Has rec'd numerous units of blood to get his Hemoglobin up to a whopping 8 or 9. MD wants to try Eliquis instead of Coumadin but not much study has...
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Profile picture for user Meianna
Tonya E.
Recipient Support

Does anyone else feel.........

Last activity 6 months
Hi I have had my heartmate 3 since November 2019. And spent 2 months in hospital, since i have been home. I have had driveline pain since they cut out my stitches at the site, in February of this year. I have had CHF with an injection fraction rate of 15 to 20% off and on for 17 1/2 years before i...
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Profile picture for user twinlarry
Larry G.
Driveline Management

Ongoing scabs driveline

Last activity 6 months 1 week
Just wondering if anyone else have ongoing scabs around the drive line my doctor says the site looks good no infections and it would never heal because no matter how secure the line is it still moves. Had my lvad since Aug 2018 doing well even went to my winter camp for ice fishing and my inverter...
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Profile picture for user Aleqal1381
Ibrahim S.
Recipient Support

LVAD Flow

Last activity 6 months 1 week
Last week my LVAD flow reduce from 4. 5 L to 2.5L i dont know why thia happen now i complete one week with 2. 5L And my INR increase last week to 6 Is there any relation between INR and flow?
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