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Profile picture for user S.Ashley2015
Sally A.
Questions about LVAD surgery

Unsure of getting a lvad

Last activity 3 minutes 17 seconds
Hello all, So my boyfriend is currently in the hospital due to water retention from congestive heart failure, at first they had discussed putting in a difibulator in. A couple days later he was transfered to a larger hospital to have said difibulator put in. Days later and like what seemed to be a...
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N P.
Patient and Caregiver Forums

Need advise- recent Lvad experience

Last activity 1 day 7 hours
Hello My Aunt got her LVAd around 3 weeks back but unfortunately the recovery is extremely slow. She is in early 50s. she was on ventilator for almost 2 weeks. She is able to breathe on her own now but we have noticed: - she keeps her eyes closed for most of the day and doesnt talk much - she...
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Profile picture for user Anonymous
Anonymous
Exercise and Physical Activity

Bicycling

Last activity 1 day 10 hours
Hi, am I able to ride a bike?, where live now I can ride one around and not worry getting hurt or hit by a car. Thank you for your time and Peace be with you all.
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Profile picture for user Debby61756
Debora L.
Equipment

Heartmate 3

Last activity 1 day 17 hours
Hi, my husband passed 10/8/20 he received his Vad 2/20. I have all his equipment extra batteries, wall unit,,bags, vest, book, battery charger, drive line bandages n ect. Would like it to go to someone that can use it. Thx
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Profile picture for user Rissa1974
CRIs S.
Caregiver Support

Nervous Wreck

Last activity 1 day 20 hours
My Husband had LVAD surgery on Friday 1/8/2021. About 10 pm that night they had to put a tube down his throat to see what was going wrong. By 1:00am Saturday Morning I had to consent again for them to go back in him because the right side of the heart wasn't strong enough. Well Sunday the nurse told...
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Profile picture for user RobJBen
Robert B.
Inspiration and Encouragement

LVAD education/testing day and prognosis.

Last activity 2 days 18 hours
Today was my education day with my LVAD coordinator, Social worker, pharmist and finance. Of course at this point I am overwhelmed with all the information and such that I got today. My LVAD surgeon will meet with his team next Tuesday to discuss my case, but according to him there is no other...
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Profile picture for user Rissa1974
CRIs S.
Questions about LVAD surgery

Nervous Wreck

Last activity 2 days 18 hours
My Husband had LVAD surgery on Friday 1/8/2021. About 10 pm that night they had to put a tube down his throat to see what was going wrong. By 1:00am Saturday Morning I had to consent again for them to go back in him because the right side of the heart wasn't strong enough. Well Sunday the nurse told...
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Profile picture for user egaogao71
Evelyn G.
Equipment

Carry on bag for equipment

Last activity 4 days 5 hours
Hi all, Just wanted to see if anyone has any recommendation on carry on bag for all the equipment to go in when traveling. Also, anyone had to purchase a generator for backup in case of power outage? If so, what have you found to be most useful? Thanks.
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Profile picture for user lvaduser.001
Lori C.
Living with an LVAD

Has anyone had the Covid vaccine yet who currently has an LVAD

Last activity 2 days 18 hours
Hello everyone! I was interested to know if anyone received the Covid vaccine and has an LVAD Can you share your story .. side effects and any advice
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Profile picture for user SabrinaGG
Sabrina G.
New to LVADs

Temporary LVAD?

Last activity 1 week 2 days
Hello, my brother is currently going to get a LVAD. I apologize for bad English as I am still young and Im just very worried. My brother had gone through an operation and needed rehab therapy. However, the state we lived in did not offer him the specific rehab therapy so he needed to be flown out to...
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Profile picture for user cherilee
Sherry B.
Equipment

Lvad alarm for a deaf patient

Last activity 1 week 5 days
Is anyone aware of a watch that might be worn that will vibrate if there is an lvad alarm?
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Profile picture for user Alderqueen08
Kathleen S.
Driveline Management

Can a lvad recepient change their own driveline dressing

Last activity 1 week 6 days
My husband is possibly going to get an lvad shortly. Will he be able to learn how to maintain his own driveline. I like to travel and would like him to be able to do this while I am away.
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Profile picture for user RichmondLVAD
Henry R.
Tips and Tricks

My Wife Made Me a Wonderful LVAD Vest! Email us For FREE INSTRUCTIONS at hankpattyrichmond@sbcglobal.net New 2021

Last activity 10 months 1 week
PLEASE EMAIL US DIRECTLY FOR INSTRUCTIONS at Hankpattyrichmond@sbcglobal.net. We have received and filled hundreds of requests for the LVAD vest instructions. We hope that you were able to make your vest and are enjoying its benefits. My name is Hank Richmond. I received my LVAD on Friday the 13th...
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Profile picture for user Baz
Babu O.
Equipment

Small Battery Size - Latest Development

Last activity 2 weeks 5 days
Any news of development of smaller batteries and if so when are they likely to be implemented - Thanks
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Profile picture for user gldoble57
Gregory D.
Living with an LVAD

Driveline infections

Last activity 2 weeks 6 days
Lets get to it. The worst thing that can happen to an LVAD user is a drive line infection. It can put you in the hospital many times over and cures with the various antibiotics may or may not work for you. It can lead to extra surgeries for debridement and in some cases make it worse. In my case I...
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Profile picture for user rshooker@hotmail.com
Ray H.
Clothing Options

Sleeping with a controller

Last activity 2 weeks 6 days
I have had my LVAD for 2 1/2 years and have devised clothing options for daily use, including vests, fishing vests, LVAD shirts, and concealed tactical shirts that my wife sews a pocket on for the controller. My problem has always been with the belt for the controller. I am fat and have a flat hips...
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Profile picture for user Lgb0250
Larry B.
Clothing Options

Winter Vest

Last activity 3 weeks
Just wanted to let everyone know about this vest. Vests in general have been a great option for me over the last 4+ years. I even wear one now to play golf in. But other than the high cost ones I’ve not had an option of a sleeveless one for winter wear. I wore this for the first time today. I wore...
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Profile picture for user Susang
Barry and Susan (caregiver) S.
Equipment

Equipment Available

Last activity 3 weeks 2 days
I lost my sweet husband Nov. 24 th, 2020. He had his LVAD since Oct. 19, 2016. I have all his equipment that I would love to pass on to someone that can use it. Please reply here.
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Profile picture for user Marsha
Marsha M.
Travel

VAD care in Ft. Myers/Naples, FL area

Last activity 3 weeks 2 days
Hello, My husband and I are considering spending a month or so in the Ft. Myers/Naples, FL area. I'd be more comfortable if I knew of a hospital/cardiology group located in the area that I could contact in case there would be any type of emergency that could come up with my husband's Medtronic LVAD...
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Profile picture for user bdarden
Bernita D.
Caregiver Support

L-VAD Failure

Last activity 3 weeks 2 days
My husband, Michael had his LVAD implanted in August 2019 after much discussion and lots of defib shocks. He has been in heart failure since his heart attack in 2017... well as of June 2020 it has been determined by his team that a heart transplant will not happen for him. He hasn’t been able to...
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Topics

Caregiver Support
Research Participation Opportunities
Clothing Options
Congestive Heart Failure
Diet
Driveline Management
Equipment
Exercise and Physical Activity
Financing and Insurance
Inspiration and Encouragement

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Most Commented

Where are the recent posts, I am scared!!
136 replies
HeartMate III Mens Clothing
93 replies
My Wife Made Me a Wonderful LVAD Vest! Email us…
70 replies
Shower Protection
57 replies
Ongoing scabs driveline
55 replies

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Most Viewed

My Wife Made Me a Wonderful LVAD Vest! Email us…
58,985 views
Discouraged
49,946 views
LVAD supplies--- Who supplies them for you ?
48,905 views
Attitude is Everything
48,793 views
Tactile holster T shirt for carrying LVAD items
42,468 views

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Facebook Groups

  • MyLVAD
    MyLVAD
    1892+ likes
    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
  • LVAD Connection
    LVAD Connection
    566+ likes
    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
  • LVAD Recipients
    LVAD Recipients
    2722+ likes
    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

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