Patients and Caregivers Forums

Hello, I am in the process of designing a new LVAD shirt and would like feedback from patients and caregivers regarding LVAD wearable clothing items. Please take a few minutes to respond to the survey below. Thank you! https://www.surveymonkey.com/r/G656YDR

Hey y'all, I am a senior in college in a group working on our senior project. We are developing an improvement in mobility and reducing infection for the driveline exit site. In order to survey customer needs, we made a ~7 minute questionare if y'all have time it would be much appreciated. This...

If you had a chance to perform research about LVADs, which question would you like to be answered?

My husband bought a Freedom Undervest by Medi-Materials, XL size, white. He tried it on but has not worn it. Cost new is $49.95. He decided to stay with his around-the-waist belt. Will sell and ship vest for $30. I'm happy to answer questions. Patricia

My husband wears a canceal weapon under armour shirt to hold his batteries and I sew on a pocket in the front for his controller. Go to Tactile Gear.com. I t does work great.

If loaded properly, the LVAD Undervest will help with most of the problems associated with carrying your external equipment in a bag. Namely, skin irritation from driveline anchors, trauma and pain at the exit wound site, driveline fractures and infections, shoulder and back pain and, the worry of...

Hello Everyone! I am a product design student at the University of Cincinnati with a friend who has an LVAD. Since witnessing her experience as a young 20 year old living with an LVAD, I have been inspired to do my thesis project on trying to address some of the frustrations and pain points...

My husband got his LVAD 11/27/2019, the day before Thanksgiving. He was kept sedated for more than two weeks due to problems breathing on his own and the right side of his heart not keeping up with the LVAD. He's been off the sedation for ALMOST a week now and still is not really responding to...

Has anyone out there in LVAD land been successful in changing their own driveline dressings and if so, please pass along how you do it. I can only get so far before I have to let my wife finish the job. I currently do a sterile dressing change but am having a hard time lining up the tagaderm and...

My brother received his LVAD on 02/02/2015. We went through the same search. The vest he received in hospital was uncomfortable for him. At one of his therapy sessions we found the answer. I replicated an idea a fellow patient's wife devised for him. We use mans tank tops which I modify. Turn shirt...

Hi my ex husband is having an LVAD this wk. He has asked me to be a caregiver. I have researched much information, however I have not been able to find out much about what role caregiver takes. If anyone could tell me what to expect I would greatly appreciate it and any advice. Thank-you

My husband got a Heartmate 3 in October. December was our first month at home. Our electric bill was about $150. higher than normal for the same period in past years. The only new appliance or new usage is our Heartmate 3 chargers. I'm a bit shocked. Is that the experience of others?

Hello everybody! I am a student at the University of Applied Sciences and Arts Hanover in Germany. In the context of my Bachelor thesis I developed a questionnaire. For this purpose I am looking for patients with an artificial heart (LVAD) who will participate in my short survey. The survey is...

Hello Everyone! I am a product design student at the University of Cincinnati with a close friend who has an LVAD. Since witnessing her experience as a young 20 year old living with an LVAD, I have been inspired to do my thesis project on trying to address some of the frustrations and pain points...

Hi all!! My name is Dick. I was just reminded that I joined this forum 15 days ago. Here is my story so far. I went to the hospital on the Tuesday before Thanksgiving to get the evaluations and approvals done. I was supposed to return the following week and have the LVAD installed if all went well...

Hello All, My father just had the LVAD surgery on October 12, 2017. I was wondering if anyone experienced weight loss or loss of energy after the surgery. If so, how long did it take for your weight loss to level out.

Hat demand eine BekleidBek für Jarvik 2000 Does anyone have a shirt or vest suggestion for a Jarvik 2000