Patients and Caregivers Forums

Hi - Unfortunately, my father passed away in November and was an LVAD patient. I have a couple of LVAD shirts and an LVAD vest that I would like to donate. Is there a place that I could send these to? The hospital did not take donations. Thank you -

Good day to you all. I am going to be getting a Heart mate 3 here in the next couple of weeks. I admit to being very apprehensive about this and initially rejected the idea. I Just wanted to say That this site has been very helpful in making my decision to go ahead with the surgery. Time is short if...

Hello VAD family, Just wanted to jump on really quick and make my first ever Vad post. My Husband is just 4 weeks post LVAD implant surgery. We have been living with CHF for about 5 years now, if he wanted to continue life the only option was LVAD surgery. I was prepared for a very difficult...

Please i need your help? Im a caregiver and my husband had his L-vad one year back. My question is about tanning. Can he tan under the sun (no pool) in our yard, or at least do solarium bed tanning? Please i need your help, i tried to contact L-vad team but mo reply.

Hi Everyone! I am looking to hear your experience regarding wearing athletic materials like spandex over or near the driveline exit site. Is it bad to cover part of the cord and exit site with tighter fabrics like spandex? Do you prefer more flowy fabrics near the exit site? Thanks! -Sophie

Does anyone knows if the LVAD manufacturer supply longer cables or there are any kind of extention cables to add to the extisting ones? I need like another 25 ft. Thanks.

Can a person age 75 getting a LVAD live alone or do they need a 24/7 caretaker?

LVAD Battery dock, batteries(8), power module deck w/25 ft. Cord for sleeping, LVAD bag, battery tops, kits, gauze, betadine packs, lots of extra gear, and record of maintenance. Well taken care of and has been plugged in and maintained since removal. Was all brand new equipment when removed. Lots...

Hi everyone, I first want to thank you for the stories you share about your lives and loved ones on here. I was so lucky to find this website when my father was admitted to the hospital in February needing an emergency surgery for the LVAD (his heart was at 18%). I used it as research for the months...

After nearly 4 and a half years I finally got hit with the infection. Until this point nothing. Traveled worked taught. To date been in the hospital twice 4 sets of different IVs while in the hospital. Now at home taking Cipro 500mg twice per day. Feeling ok, however I have yet to find anything...

Hi folks, On March 13th (a Friday), I had a heart attack at 12:10am. I'm 37 male and newly diagnosed diabetes patient (the day of the attack). I weigh 180, don't smoke, do drugs or engage in risky behaviour, and eat decently healthy...so as you can imagine, this whole avalanche has been a little...

Hello all. I recently joined this forum because my husband has end stage congestive heart failure. I feel like this has happened so fast. He had a massive heart attack in May 2019 and his EF is 20%. He has been in and out of the hospital multiple times, many times for fluid retention. He has an ICD...

Hi my name is Vikki, I received my LVAD Dec, 16, 2019 with COVID -19 it’s nit possible to get to cardiac rehab what suggestions do you have for exercising

My husband has had his Heartmate 3 for almost a year now. He has days where he gets a stinging pain at the drive line site. We have not been able to get an explanation for this. Has anyone else experienced this, know what causes this, or how to eliminate it?

My husband got his Lvad in September, 2019. Everything was going great without any problems until June, 2019. He came down with a slight fever and was not feeling well. He was still doing his exercises and everyday activities, but sleeping more and a sluggish. His driveline looked good so we knew it...

I have a heartmate 3. implanted in January, I can finally shower, I am able to cover the driveline site, but the waterproof bag is a pain. For those of you who shower often how do you manage to protect and keep your batteries and controller dry?

I am the proud owner of a Heartmate 3 LVAD. I have had it for 15 months now and have has an interesting ride, but that is for a later post. My issues have been with driveline management and skin rashes. My skin is very sensitive to tape and adhesives and it has been a challenge to find the most...

Hello everyone! As a cardiac rehab nurse supervisor I want you to know nurses understand your journey from heart failure - meds- hospitalizations and decreased quality of life leading to decision of LVAD. Cardiac rehabs can help you in your recovery we monitor you and we help you regain your muscle...

Hello Everyone, Per my capstone project on making better solution catered towards women who have LVADs, I would love to know more specifically how you hold your LVAD in different articles of clothing! Girdles, vests, shirts, etc. I would love to know how you uniquely wear your LVAD for different...

Hello. I honestly just wanted some advice and knowledge on what to expect if my Mom ends up getting one. They are discussing it during this hospital admission. I have been looking after both of my parents for the past three months as my Mom has been in and out of the hospital and my Dad has...