Patients and Caregivers Forums

Hello all, So my boyfriend is currently in the hospital due to water retention from congestive heart failure, at first they had discussed putting in a difibulator in. A couple days later he was transfered to a larger hospital to have said difibulator put in. Days later and like what seemed to be a...

Hello everyone. My husband has had two lvads. The first was a heart ware .And the second is a heart mate three. The first one ended up giving him a blood clot inside the lvad. Two strokes and two brain bleeds. He has come back for the most part . Right side weakness, short term memory loss . Doing...

Hi all, well I got "that" phone call the other day and my admission date to the hospital is April 12, 2021. Insurance has approved either/or pumps. Either the LVAD (HeartMate3) or the new LVAS (EvaHeart). I am in the clinical trials for the Evaheart so we will see what they decide to do. Also got my...

Just wondering if anyone else have ongoing scabs around the drive line my doctor says the site looks good no infections and it would never heal because no matter how secure the line is it still moves. Had my lvad since Aug 2018 doing well even went to my winter camp for ice fishing and my inverter...

Many of you have probably seen this. For those who haven’t, Google the title above. All the best!

My husband recently passed away due to many different health issues. I don’t have a lot but I do have some bandaging supplies diabetic paraphernalia including insulin that is good until 2022. I would be more than happy to give it to someone instead of throwing it away. let me know if you’re...

I just want to know if it's normal....when i grow up the stairs... my lvad made a bizarre sound like :crunch... crunch ?? it is normal... ? I am a French person ...sorry for my english language.

I want to know if it's normal to listen the Lvad whwn i sleep

My husband had his Lvad implanted in April 2018. It was a difficult three years but it was three years more that we had together then we would have. he had a heartware VAD. I now have four batteries and the battery charger, two controller AC adapters, various holders and straps, three unused vests...

My husband is possibly going to get an lvad shortly. Will he be able to learn how to maintain his own driveline. I like to travel and would like him to be able to do this while I am away.

Hello My Aunt got her LVAd around 3 weeks back but unfortunately the recovery is extremely slow. She is in early 50s. she was on ventilator for almost 2 weeks. She is able to breathe on her own now but we have noticed: - she keeps her eyes closed for most of the day and doesnt talk much - she...

My Husband had LVAD surgery on Friday 1/8/2021. About 10 pm that night they had to put a tube down his throat to see what was going wrong. By 1:00am Saturday Morning I had to consent again for them to go back in him because the right side of the heart wasn't strong enough. Well Sunday the nurse told...

Hi all, Just wanted to see if anyone has any recommendation on carry on bag for all the equipment to go in when traveling. Also, anyone had to purchase a generator for backup in case of power outage? If so, what have you found to be most useful? Thanks.

Hello, my brother is currently going to get a LVAD. I apologize for bad English as I am still young and Im just very worried. My brother had gone through an operation and needed rehab therapy. However, the state we lived in did not offer him the specific rehab therapy so he needed to be flown out to...

Lets get to it. The worst thing that can happen to an LVAD user is a drive line infection. It can put you in the hospital many times over and cures with the various antibiotics may or may not work for you. It can lead to extra surgeries for debridement and in some cases make it worse. In my case I...

I have had my LVAD for 2 1/2 years and have devised clothing options for daily use, including vests, fishing vests, LVAD shirts, and concealed tactical shirts that my wife sews a pocket on for the controller. My problem has always been with the belt for the controller. I am fat and have a flat hips...

Just wanted to let everyone know about this vest. Vests in general have been a great option for me over the last 4+ years. I even wear one now to play golf in. But other than the high cost ones I’ve not had an option of a sleeveless one for winter wear. I wore this for the first time today. I wore...

My husband, Michael had his LVAD implanted in August 2019 after much discussion and lots of defib shocks. He has been in heart failure since his heart attack in 2017... well as of June 2020 it has been determined by his team that a heart transplant will not happen for him. He hasn’t been able to...

Hello VAD community, I'm a nurse from Vancouver B.C. Canada, and I'm hoping to get a sense from patients and caregivers, in terms of preference in receiving care (VAD or not VAD related), in the community versus back at the implanting hospital. My hope is that your input would help shape the future...

I've been trying to get some information about trying to do yoga with the lvad and how to get started. Has anyone tried or is anyone doing it? . At being 63yrs.old, I need some form of exercise; I would appreciate it. Thank you and Peace be with you.