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  • Posted 10/02/2013 - 4:03pm | Last activity 5 days 12 hours
    Hi I am new to this forum so bear with me. My husband has been ill for 11 years and had his LVAD 2 years ago. He has had many complications such as GI bleeding, MRSA, 2 ileus and required many blood transfusions. He has been in the nursing home two times to get IV antibiotics for the MRSA.
  • Posted 12/15/2012 - 4:12pm | Last activity 1 week 3 days
    Mike, exactly how do you use the softbag 6-pack? Thanks. Connie
  • Tips and Tricks
    Posted 03/28/2015 - 9:26pm | Last activity 2 weeks 8 hours
    Please email for instructions at hankpattyrichmond@sbcglobal.net
  • New to LVADs
    Posted 07/29/2017 - 5:51pm | Last activity 2 weeks 4 days
    My husband received his HeartMate 3 May 24, 2017. He is having some issues with the sorbaview dressing. He hs very sensitive skin. Any ideas. Also we are planning an Alaskan Cruise next year.
  • Posted 02/11/2012 - 5:09pm | Last activity 2 weeks 4 days
    Today, I took my first shower since my LVAD was implanted 6 1/2 months ago. It was absolute heaven. I was very nervous but it was actually easier than I expected. It was a little time consuming but I am sure that once I get a routine down it will become old hat.
  • Tips and Tricks
    Posted 05/19/2017 - 9:51pm | Last activity 3 weeks 4 days
    I've had my device for 3 years and the past couple of months, the skin under the bandage and the foley anchor has started to itch, but I don't know from what. I don't know if it's the Tegraderm, the cloraprep which my doctor said to switch to alcohol to clean the area, or the skin prep solution.
  • Caregiver Support
    Posted 07/19/2017 - 12:16am | Last activity 3 weeks 6 days
    This may not be the forum for this question, but who better to answer my questions than those living with an LVAD and the people who care for them.
  • Posted 07/27/2013 - 9:15pm | Last activity 4 weeks 19 hours
    iT WAS HARD AT FIRST, BUT i (MARILYN THE WIFE) LOVE TO TRAVEL AND DO MY GENEALOGY) SO I REALLY WANTED TO GET BACK ON THE ROAD, BUT I PUT A HALT ON IT FOR ABOUT 2 YEARS. JOHN AND I ARE BACK TO TAKING VACATIONS, WE HAVE A MINI VAN AND ALL OUR EQUIPMENT FITS VERY WELL.
  • Posted 09/05/2012 - 1:25pm | Last activity 4 weeks 19 hours
    Hi everyone- just wanted to share my exciting news of meeting Dr. Oz today for the 15min physical. I was even seen by him! He asked who implanted my LVAD and I told him Dr. Steven Boyce at the Washington Hospital Center, he says I know Dr.
  • Posted 11/19/2011 - 9:27am | Last activity 4 weeks 19 hours
    We copied the field guide for our device and took it to our local EMS. Also carry a copy in the black bag.It's a great resource.
  • Recipient Support
    Posted 04/17/2017 - 1:15pm | Last activity 4 weeks 19 hours
    Dear phillip I would like to get in contact with you regarding hospitals in South Africa with knowledge off the Lvad.
  • Posted 10/18/2014 - 11:35am | Last activity 4 weeks 19 hours
    I have to loose weight too. I have been making breakfast shakes. 2 cups nonfat greek yogurt, 1 cup skin milk, 2 Tb sweetener and 2 cups frozen fruit. Throw it all in the blender and mix till smooth. If you divide it over 3 days in Styrofoam cups with lids, it can be a fast satisfying breakfast.
  • Posted 03/15/2013 - 7:11pm | Last activity 4 weeks 19 hours
    WE are currently working on adding more masculine patterns per several requests. We also will be able to have one custom made with a sport, team or hobby. CHECK US OUT!!!!!
  • Posted 06/08/2012 - 4:22pm | Last activity 4 weeks 19 hours
    Having just returned from my 1st flight with LVAD, I wanted to share a few thoughts that may be helpful to any of you who are planning a flight or considering summer travel.
  • Posted 09/09/2011 - 6:47am | Last activity 4 weeks 19 hours
    I agree, from my time spent with patients and their loved ones MyLvad.com was exactly what was missing in their lives. I am confident this community will help all of us - CKP
  • Posted 08/21/2016 - 5:24pm | Last activity 4 weeks 19 hours
    How do you do it? You go on a walk with the lvad you wear but need to have your spare. Isnt that a lot to carry? Its not real light
  • Posted 06/04/2014 - 6:54am | Last activity 4 weeks 19 hours
    I'm 30, I was diagnosed with end-stage heart failure when I was 21. I don't have any children and really haven't been able to do a whole lot for the last ten years (not for lack of trying)...
  • Posted 12/08/2012 - 4:00pm | Last activity 4 weeks 19 hours
    Thanks, Ken. I've sat on the floor, too, when I have to wait in a long line at the store.
  • Posted 02/21/2012 - 7:09pm | Last activity 4 weeks 19 hours
    Got my LVAD in Sep of 2010. Moved from Texas to Palm Desert CA. Would like to meet others in this area who have an LVAD.
  • Posted 02/06/2016 - 9:36pm | Last activity 4 weeks 19 hours
    Here's my story in a nutshell... Due to being in end stage heart failure I had a Heartmate ii implant on 11/20/15, went home about 2.5 weeks later but still didn't really feel any better. I assumed it was due to the fact I had spent a month in a hospital bed prior to my surgery.

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