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  • Living with an LVAD
    Last activity 5 months 2 weeks
  • Last activity 9 hours 59 min
    I have been fitted with an LVAD on December 14th. All of my numbers looked good and I was set to leave the hospital until I had problems with my Bowers's. They just wouldn't wake up. There was a lot of things they tried, finally it cleared up. I have been home since January 11th.
  • Caregiver Support
    Last activity 10 hours 11 min
    This may not be the forum for this question, but who better to answer my questions than those living with an LVAD and the people who care for them.
  • Last activity 2 days 10 hours
    Anyone using Foley anchors to secure their drivelines. If so do they work and where do you buy them. Also are there different sizes. Thanks from darkest Africa
  • New to LVADs
    Last activity 3 days 2 hours
    Just as an FYI, the East Carolina Heart Institute (Vidant Hospital), Greenville, NC is now a LVAD hospital. Our surgeon was previously at Duke in Durham and preformed over 40 implants there and has done 5 implants here. (I was the 3rd.)
  • Last activity 3 days 6 hours
    As a seasoned LVAD Recipient, Caregiver, or friend, we would love your help in our never-ending goal to ensure our members are prepared to live a happy and healthy life with their device. What tips do you have that could help someone during their post-surgery phase?
  • Last activity 3 days 7 hours
    I was just slightly winded, short of breath, even though I hadn't walked far. I had been fit and healthy my entire life so whatever was wrong couldn't be serious, I thought. I was diagnosed with heart failure in October 2009.
  • Recipient Support
    Last activity 3 days 7 hours
    I've been trying to get some information about trying to do yoga with the lvad and how to get started. Has anyone tried or is anyone doing it? . At being 63yrs.old, I need some form of exercise; I would appreciate it. Thank you and Peace be with you.
  • Living with an LVAD
    Last activity 1 week 3 days
    I have a strange question. Before getting my lvad, one thing I used to enjoy was listening to shortwave radio while falling asleep. I used to prop the radio on my chest while tuning though the frequencies.
  • Recipient Support
    Last activity 1 week 3 days
    Going to have a right heart cat done, and was told to pack my bags, went to go see the heart Doctor, ; Dr. Andrew Sauer, sounds want to stay for a while and that my kidneys are starting to shut down, has anyone been through something like before?
  • Last activity 1 week 3 days
    husband is going to the top of the list for one, and just want to know if anyone who reads this can give advice regarding post heart transplant. May never happen, but he is having second thoughts regarding all involved and complications....Thanks for listening, Hope as always
  • New to LVADs
    Last activity 1 week 6 days
    My Brother-in-Law got his LVAD on November 30, 2017. After a grueling recovery, he got better and after 7 weeks in the hospital he was about to go home. But BAM! he got hit with the flu that is going around.
  • Recipient Support
    Last activity 2 weeks 22 hours
    I've been trying to get some information about trying to do yoga with the lvad and how to get started. Has anyone tried or is anyone doing it? . At being 63yrs.old, I need some form of exercise; I would appreciate it. Thank you and Peace be with you.
  • Caregiver Support
    Last activity 2 weeks 1 day
    My Uncle has been living with his LVad for many years. He has recently been having complications. He's been in hospital over a week with a GI bleed they can't seem to find. He's had two colonoscopy and swallowed a pill that had a camera in it.
  • Caregiver Support
    Last activity 2 weeks 2 days
    My husband had his LVAD op October 2017 10 days later he developed bowed ischaemia and had life saving surgery again, he had bowel resection and an illeostomy. He is lucky to have survived.
  • Recipient Support
    Last activity 2 weeks 2 days
    I've been trying to get some information about trying to do yoga with the lvad and how to get started. Has anyone tried or is anyone doing it? . At being 63yrs.old, I need some form of exercise; I would appreciate it. Thank you and Peace be with you.
  • Last activity 2 weeks 3 days
    What a wonderful asset to our precious LVAD community! Thank you for your sincere passion and commitment to our patients. As a resident in training, I am truly humbled by this dedicated team.
  • Last activity 3 weeks 6 hours
    My dad suffered an anoxic brain injury post cardiac arrest in July 2014 at the age of 57. Following these events, my dad received an LVAD. At almost 2 years later he remains hospitalized as the discharge process is still a challenge.
  • Living with an LVAD
    Last activity 3 weeks 3 days
    Lets get to it. The worst thing that can happen to an LVAD user is a drive line infection. It can put you in the hospital many times over and cures with the various antibiotics may or may not work for you. It can lead to extra surgeries for debridement and in some cases make it worse.
  • New to LVADs
    Last activity 3 weeks 3 days
    How much stuff do you have to take home when discharge? Also if you don't have a caretaker, will I still be able go home afterwards? Sorry I have a lot of questions to asked.

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