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  • Tips and Tricks
    Posted 05/19/2017 - 9:51pm | Last activity 1 week 1 day
    I've had my device for 3 years and the past couple of months, the skin under the bandage and the foley anchor has started to itch, but I don't know from what. I don't know if it's the Tegraderm, the cloraprep which my doctor said to switch to alcohol to clean the area, or the skin prep solution.
  • Posted 02/16/2016 - 10:13pm | Last activity 1 week 2 days
    I am a new LVAD patient, and I have the HeartWare pump and controller. I just modified a 5.11 tactical shirt. I sewed in an 1 1/2 elastic strap to the shirt across my lower chest to act as a belt for holding the controller.
  • Posted 02/25/2013 - 8:16pm | Last activity 1 week 2 days
    What kind of shirts are easiest to wear with LVAD and drive line? Dad got his just last month, we are still in rehab center and haven't made it home yet.
  • Recipient Support
    Posted 05/18/2017 - 7:41pm | Last activity 1 week 3 days
    FYI - I have collected various types of info for myself that might also be useful to others here on my Pinterest account. Go to
  • Posted 08/27/2016 - 11:10am | Last activity 1 week 3 days
    Since LVAD surgery, my shoulders can not take the added weight. A Consolidated Bag slung over my shoulder has re-injured a shoulder bone spur such that I have upcoming surgery for its removal.
  • Posted 07/15/2016 - 8:11pm | Last activity 1 week 4 days
  • Physical Activity
    Posted 09/05/2013 - 8:59am | Last activity 2 weeks 6 days
    Any tips on playing golf with HeartMate II and equipment ideas. I just put batteries in cargo shorts pockets with controller around my waist. Any other ideas?
  • Posted 06/02/2016 - 9:49pm | Last activity 1 month 1 day
    Hi everyone! My farher was implanted by a heartmate 3, three months ago. He is slowly recovering from the surgery and getting used to the device. Yet he always feels something like mehanical 'beats' in the thorax.
  • Posted 01/06/2017 - 4:47pm | Last activity 1 month 1 day
    I think generators should be included in the package with batteries, charging station, and other accessories. Does anyone know of any programs that will help LVAD patients get one?
  • Caregiver Support
    Posted 04/24/2017 - 11:19pm | Last activity 1 month 3 days
    Has anyone known someone with an LVAD that decided that the LVAD lifestyle no longer is acceptable to them? Has anyone known someone who had their LVAD deactivated?
  • Posted 09/08/2016 - 8:42pm | Last activity 1 month 6 days
    I am 38 years old and I am in stage 3 of HF. Yesterday I was told that I need a transplant but I have to lose 60 pounds first. Meanwhile I need the LVAD. The doctor asked me how bad do I feel? As simple as the question was, it was difficult to answer. I have 3 children ages 16, 14, and 11.
  • Posted 09/08/2016 - 1:04pm | Last activity 1 month 1 week
    Can any of you give me advice on international air travel with an LVAD? I live in South Africa but travel fairly regularly for work to the rest of Africa, Europe and the Middle East.
  • Posted 02/03/2017 - 3:57pm | Last activity 1 month 1 week
    Have developed a rash around the exit area. LVAD coordinators have not recommended anything to relieve the itch. Can anyone help me. Thanks
  • Recipient Support
    Posted 04/17/2017 - 1:15pm | Last activity 1 month 1 week
    Dear phillip I would like to get in contact with you regarding hospitals in South Africa with knowledge off the Lvad.
  • Posted 09/17/2015 - 11:50pm | Last activity 1 month 1 week
    I recently received my new heart on May 31, 2015. I no longer need my bags. I wanted to donate them to someone or a charity. The hospital cannot use them. Does anyone have any suggestions? Thanks, Sandy
  • Posted 02/03/2017 - 4:41pm | Last activity 1 month 2 weeks
    Hello everyone. I am a LVAD recipient since 2015. Are there any LVAD recipients living in the Queens area. Would love to know I am not alone. If there are enough of us, maybe form a support group. Hope to hear from my fellow LVAD recipients. Thank you.
  • Posted 10/06/2016 - 1:04pm | Last activity 1 month 2 weeks
    I keep getting low flow alarms in the morning and after a couple doctor visits where they seem to guessing, the say that my PI is too high at that time. What is it and what can I do about it ?
  • Posted 09/15/2016 - 8:07pm | Last activity 1 month 2 weeks
    My father (59) will undergo LVAd implantation in less than two weeks. He has been given the option of either the heartmate II or the heartware Hvad. We really dont know what to do.
  • Posted 07/13/2012 - 11:13am | Last activity 1 month 3 weeks
    I was just slightly winded, short of breath, even though I hadn't walked far. I had been fit and healthy my entire life so whatever was wrong couldn't be serious, I thought. I was diagnosed with heart failure in October 2009.
  • Posted 02/19/2017 - 11:57am | Last activity 1 month 3 weeks
    Anyone using Foley anchors to secure their drivelines. If so do they work and where do you buy them. Also are there different sizes. Thanks from darkest Africa