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  • New to LVADs
    Posted 06/12/2017 - 1:39pm | Last activity 4 days 21 hours
    Henry, my husband, had a massive heart attack, Nov. 2016. We practically lost him and we were devasted at the news that he may not "make" it we were told. No "promises"....I knew it was dire. I knew at that point we had to just pray for the doctors and staff that were treating him.
  • Inspiration and Encouragement
    Posted 06/06/2017 - 2:43pm | Last activity 4 days 21 hours
    My Dad had his LVAD put in on 5/25/17. He seems to have had a new issue every, single, day, of his recovery so far. Hours after the surgery, they said he had bleeding in his chest and had to take him back and open him up a second time (then couldn't find the cause!).
  • Caregiver Support
    Posted 06/20/2017 - 2:55pm | Last activity 5 days 6 hours
    My father in law recently passed and we have all of his lvad equipment which was paid for in full. Several batteries charging station and machine that plugs to wall. Also has carrying cases etc. We would like to sell them to assist in paying funeral arrangements.
  • Posted 12/06/2011 - 8:08am | Last activity 2 weeks 1 day
    10 Tips for Traveling with an LVAD: Traveling with your LVAD should not be difficult with some planning before you leave. MyLVAD.com has put together 10 tips to help you have a hassle free trip: 1. Create a checklist for planning and packing.
  • Living with an LVAD
    Posted 06/02/2017 - 4:01pm | Last activity 3 weeks 2 days
    If a LVAD recipient is doing some heavy physical activity like running, gyming or playing any sport, how does LVAD, which runs at constant speed, going to match the demand of blood supply. If it doesn't able to fulfill the requirement how does it going the affect the recipient?
  • Tips and Tricks
    Posted 05/19/2017 - 9:51pm | Last activity 1 month 2 days
    I've had my device for 3 years and the past couple of months, the skin under the bandage and the foley anchor has started to itch, but I don't know from what. I don't know if it's the Tegraderm, the cloraprep which my doctor said to switch to alcohol to clean the area, or the skin prep solution.
  • Posted 07/13/2012 - 11:13am | Last activity 1 month 2 days
    I was just slightly winded, short of breath, even though I hadn't walked far. I had been fit and healthy my entire life so whatever was wrong couldn't be serious, I thought. I was diagnosed with heart failure in October 2009.
  • Posted 02/16/2016 - 10:13pm | Last activity 1 month 1 week
    I am a new LVAD patient, and I have the HeartWare pump and controller. I just modified a 5.11 tactical shirt. I sewed in an 1 1/2 elastic strap to the shirt across my lower chest to act as a belt for holding the controller.
  • Posted 02/25/2013 - 8:16pm | Last activity 1 month 1 week
    What kind of shirts are easiest to wear with LVAD and drive line? Dad got his just last month, we are still in rehab center and haven't made it home yet.
  • Recipient Support
    Posted 05/18/2017 - 7:41pm | Last activity 1 month 1 week
    FYI - I have collected various types of info for myself that might also be useful to others here on my Pinterest account. Go to https://www.pinterest.com/flimbach/l-vad-help
  • Posted 08/27/2016 - 11:10am | Last activity 1 month 1 week
    Since LVAD surgery, my shoulders can not take the added weight. A Consolidated Bag slung over my shoulder has re-injured a shoulder bone spur such that I have upcoming surgery for its removal.
  • Posted 07/15/2016 - 8:11pm | Last activity 1 month 1 week
    Hi,
  • Physical Activity
    Posted 09/05/2013 - 8:59am | Last activity 1 month 2 weeks
    Any tips on playing golf with HeartMate II and equipment ideas. I just put batteries in cargo shorts pockets with controller around my waist. Any other ideas?
  • Posted 06/02/2016 - 9:49pm | Last activity 1 month 4 weeks
    Hi everyone! My farher was implanted by a heartmate 3, three months ago. He is slowly recovering from the surgery and getting used to the device. Yet he always feels something like mehanical 'beats' in the thorax.
  • Posted 01/06/2017 - 4:47pm | Last activity 1 month 4 weeks
    I think generators should be included in the package with batteries, charging station, and other accessories. Does anyone know of any programs that will help LVAD patients get one?
  • Caregiver Support
    Posted 04/24/2017 - 11:19pm | Last activity 2 months 1 day
    Has anyone known someone with an LVAD that decided that the LVAD lifestyle no longer is acceptable to them? Has anyone known someone who had their LVAD deactivated?
  • Posted 09/08/2016 - 8:42pm | Last activity 2 months 4 days
    I am 38 years old and I am in stage 3 of HF. Yesterday I was told that I need a transplant but I have to lose 60 pounds first. Meanwhile I need the LVAD. The doctor asked me how bad do I feel? As simple as the question was, it was difficult to answer. I have 3 children ages 16, 14, and 11.
  • Posted 09/08/2016 - 1:04pm | Last activity 2 months 1 week
    Can any of you give me advice on international air travel with an LVAD? I live in South Africa but travel fairly regularly for work to the rest of Africa, Europe and the Middle East.
  • Posted 02/03/2017 - 3:57pm | Last activity 2 months 1 week
    Have developed a rash around the exit area. LVAD coordinators have not recommended anything to relieve the itch. Can anyone help me. Thanks
  • Recipient Support
    Posted 04/17/2017 - 1:15pm | Last activity 2 months 1 week
    Dear phillip I would like to get in contact with you regarding hospitals in South Africa with knowledge off the Lvad.

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