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  • Tips and Tricks
    Posted 03/28/2015 - 9:26pm | Last activity 2 days 17 hours
    Please email for instructions at hankpattyrichmond@sbcglobal.net
  • Tips and Tricks
    Posted 05/19/2017 - 9:51pm | Last activity 4 days 23 hours
    I've had my device for 3 years and the past couple of months, the skin under the bandage and the foley anchor has started to itch, but I don't know from what. I don't know if it's the Tegraderm, the cloraprep which my doctor said to switch to alcohol to clean the area, or the skin prep solution.
  • Posted 02/11/2012 - 5:09pm | Last activity 4 days 23 hours
    Today, I took my first shower since my LVAD was implanted 6 1/2 months ago. It was absolute heaven. I was very nervous but it was actually easier than I expected. It was a little time consuming but I am sure that once I get a routine down it will become old hat.
  • Caregiver Support
    Posted 07/19/2017 - 12:16am | Last activity 1 week 4 hours
    This may not be the forum for this question, but who better to answer my questions than those living with an LVAD and the people who care for them.
  • Posted 07/27/2013 - 9:15pm | Last activity 1 week 1 day
    iT WAS HARD AT FIRST, BUT i (MARILYN THE WIFE) LOVE TO TRAVEL AND DO MY GENEALOGY) SO I REALLY WANTED TO GET BACK ON THE ROAD, BUT I PUT A HALT ON IT FOR ABOUT 2 YEARS. JOHN AND I ARE BACK TO TAKING VACATIONS, WE HAVE A MINI VAN AND ALL OUR EQUIPMENT FITS VERY WELL.
  • Posted 09/05/2012 - 1:25pm | Last activity 1 week 1 day
    Hi everyone- just wanted to share my exciting news of meeting Dr. Oz today for the 15min physical. I was even seen by him! He asked who implanted my LVAD and I told him Dr. Steven Boyce at the Washington Hospital Center, he says I know Dr.
  • Posted 11/19/2011 - 9:27am | Last activity 1 week 1 day
    We copied the field guide for our device and took it to our local EMS. Also carry a copy in the black bag.It's a great resource.
  • Posted 03/15/2013 - 7:11pm | Last activity 1 week 1 day
    WE are currently working on adding more masculine patterns per several requests. We also will be able to have one custom made with a sport, team or hobby. CHECK US OUT!!!!!
  • Posted 06/08/2012 - 4:22pm | Last activity 1 week 1 day
    Having just returned from my 1st flight with LVAD, I wanted to share a few thoughts that may be helpful to any of you who are planning a flight or considering summer travel.
  • Posted 09/09/2011 - 6:47am | Last activity 1 week 1 day
    I agree, from my time spent with patients and their loved ones MyLvad.com was exactly what was missing in their lives. I am confident this community will help all of us - CKP
  • Posted 12/08/2012 - 4:00pm | Last activity 1 week 1 day
    Thanks, Ken. I've sat on the floor, too, when I have to wait in a long line at the store.
  • Posted 02/21/2012 - 7:09pm | Last activity 1 week 1 day
    Got my LVAD in Sep of 2010. Moved from Texas to Palm Desert CA. Would like to meet others in this area who have an LVAD.
  • Posted 09/03/2013 - 6:41pm | Last activity 1 week 1 day
    JOHN AND I HAVE BEEN MARRIED 45 YEARS, HE GOT HIS LVAD IN 2010, HE DRIVES DOING SHOPPING, GETTING BLOOD WORK DONE ETC. HE CARRIES A CELL PHONE. WE ALSO LOVE TAKING TRIPS. THIS IS WHAT I CAME UP WITH AND CARRY IN THE CAR.
  • Posted 10/02/2012 - 2:42pm | Last activity 1 week 1 day
    Hello I guess I am using this forum as an outlet about my concerns with LVAD. I am a good friend of a LVAD male who wants to be in a romatic relationship with me. I am presently a healthy person....but I do understand the flight of being ill.
  • Posted 12/14/2011 - 4:49pm | Last activity 1 week 1 day
    Travel is something that we at MyLVAD encourage for LVAD recipients and their loved ones. Information on traveling with an LVAD can be difficult to find.
  • Posted 04/10/2013 - 9:45am | Last activity 1 week 1 day
    My name is Megan L. and I am 25 yrs old. I am the oldest of 11 children and none in my family has a history of any type of heart disease. So when I was diagnosed with congestive heart failure in Aug 2008 it was a real shock to me and my family.
  • Posted 07/11/2012 - 11:13am | Last activity 1 week 1 day
    With my dad being a new LVAD Recipient and my mom and I being new LVAD caregivers, I was really interested in finding people in our area with an LVAD or even people who have been treated or come for follow ups at the Cleveland Clinic with a VAD.
  • Posted 09/10/2011 - 1:45pm | Last activity 1 week 1 day
    With our own drama in our lives we tend to forget HEROES that step up and save lives. Tom Burnett former CFO of Thoratec did this at his job at THORATEC and on flight 93 on September 11th, 2001... he was along side Todd Beamer (Lets Roll) barging into the cockpit and GOT those terroists...
  • Posted 01/14/2013 - 6:29pm | Last activity 1 week 1 day
    Mom recieved her LVAD Dec 10, 2012. Although she is still in hospital she is moving in the right direction. We have seen her struggles with the weight of everything that has to be carried and with her being 76 she is also a little frail.
  • Posted 03/05/2012 - 8:56am | Last activity 1 week 1 day
    What kinds of exercises do you find the most effective for keeping your heart healthy with your LVAD?

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