Skip to main content
EnglishEnglish
EnglishEnglishDutchDutchFrenchFrenchGermanGermanItalianItalianJapaneseJapanesePortuguesePortugueseRomanianRomanianRussianRussianSerbianSerbianSpanishSpanish

User Menu (Anonymous)

  • Login
  • Register
  • Search
Home

Main navigation

  • Patients and Caregivers
  • Medical Professionals
  • Log in
  • Register
  • Search

Main navigation dropdown patients and caregivers

  • Learn about LVADs
    • Congestive Heart Failure
    • Intro to LVADs
    • LVAD Technology
  • LVAD Lifestyle
    • Living with an LVAD
    • Emergency Field Guides
    • Video Library
    • Available Resources
    • Fellow "VADER" Recommended Accessories
  • Caregivers
    • Caregiver Support Forum
    • ENABLE Caregiver Guides
    • Expert Sessions
    • Other Support Resources
  • Discuss & Connect
    • Events Calendar
    • Community Forums
    • Community Blogs
    • Online Support Group
    • Stories
  • Locator Maps
    • Hospital Map
    • Community Network Map
    • Download the MyLVAD App

Main navigation mobile

  • Patients and Caregivers
    • Learn about LVADs
      • Congestive Heart Failure
      • Intro to LVADs
      • LVAD Technology
    • LVAD Lifestyle
      • Living with an LVAD
      • Emergency Field Guides
      • Video Library
      • Available Resources
      • Fellow "VADER" Recommended Accessories
    • Caregivers
      • Caregiver Support Forum
      • ENABLE Caregiver Guides
      • Expert Sessions
      • Other Support Resources
    • Discuss & Connect
      • Events Calendar
      • Community Forums
      • Community Blogs
      • Online Support Group
      • Stories
    • Locator Maps
      • Hospital Map
      • Community Network Map
      • Download the MyLVAD App
  • Medical Professionals
    • Essential Resources
      • Available Resources
      • Medtronic Resources
      • Abbott Resources
      • EMS Field Guides
      • Policies and Procedures Library
      • Hospital Support Center Listing Request
    • Discuss & Connect
      • Conferences and Continuing Education
      • Events
      • ICCAC Website
      • MCS Collaboration Group
    • LVAD Coordinators
      • Hospital Locator
      • VAD Coordinator Registration
      • Take our Survey
  • Log in
  • Register
  • Search

Patients and Caregivers Forums

You are here

  • Patients and Caregivers
  • Discuss & Connect
  • Patients and Caregivers Forums

Log in or register to post new content in the forum.

Profile picture for user emmara01
Amy E.
Research Participation Opportunities

Young Adult Caregiver Study

Last activity 1 year 5 months
Hi all!! I am a PhD student and I am looking to interview young adult caregivers (age 18-29) of patients with LVADs. Each caregiver will be asked to participate in 2 interviews. The interviews would be held virtually via Microsoft Teams. All participants will receive a $25 Amazon gift card at the...
  • Log in or register to post comments
Profile picture for user 74Dan
Daniel S.
Inspiration and Encouragement

Mental health while having my lvad

Last activity 1 year 5 months
First time posting,, December 14th is my two year anniversary with the lvad, Balancing a positive mindset has been an on going issue,I'll be turning 48 in September I recently lost my younger brother who was 42, too a massive heart attack ,in July. The depression is Abit much I feel I'm losing what...
  • Log in or register to post comments
Profile picture for user Joan56
Joan K.
Equipment

LVAD anchor - what is everyone using?

Last activity 1 year 5 months
We are having problems getting the anchor that my husband has been using since he received his LVAD. He’s using the Hollister 9781. What is everyone else using? Maybe there’s an alternative that is more readily available for us. Thank you for your help with our search.
  • Log in or register to post comments
Profile picture for user Kim Biondo
Kim B.
Financing and Insurance

Coping with Reality

Last activity 1 year 5 months
How do others do it? My husband had a heart attack end of January 2022 and received an LVAD on Valentines Day. He is home and going through cardiac rehab but because there was a head injury, injury to femoral artery and now he has neuropathy in his feet bad, he can't work again. This was supposed to...
Profile picture for user Kim Biondo
  • Log in or register to post comments
Profile picture for user D2ali
Alina M.
Caregiver Support

Dizziness, fainting and a low PI

Last activity 1 year 6 months
I am writing this in hope of finding someone with some advice. Perhaps someone out there has experienced the following sympoms and has found healing. My father, is currently in the hospital and his team doesn't know for sure what is causing his constant dizziness and low PI. He has also experienced...
  • Log in or register to post comments
Profile picture for user digger
G V.
Congestive Heart Failure

Heart Disease after MI

Last activity 1 year 6 months
Hi Everyone, Would like to ask people here about their experiences with an LVAD and what sort of improvements it had made to your life after it was installed. My Dad has congestive heart failure after a MI and part of his heart has died. He suffers from edema in the legs, feet and stomach and BP is...
  • Log in or register to post comments
Profile picture for user sandraharm@yahoo.com
Sandra K.
Equipment

Batteries all the time!

Last activity 1 year 7 months
I got my LVAD July 2021, Heartmate III. I found that using wall power made me nervous overnight, after the power went out. I find it easier to use batteries day and night now. Anyone else do this?
  • Log in or register to post comments
Profile picture for user thomasjpello
Thomas P.
Equipment

Wall charger, Extra batteries, and Others HeartMate III stuffs

Last activity 1 year 8 months
Hi all, We have some pieces of equipment that we do not use anymore. 1. 4 batteries 2. Batteries Charging station 3. Driveline wall power device 4. Unopen dressings for the driveline 5. 9x9 Shower Shields 6. 2 Shower bags (1 unused) 7. 2 Travel bags (both unused) We are in the Seattle area. Contact...
  • Log in or register to post comments
Profile picture for user chillios
Chris H.
Clothing Options

VAD WEAR is having a LABOR DAY Sale!

Last activity 1 year 8 months
VAD Wear is having a Labor Day sale! August 31st through September 5th. Save 10% off site wide. VAD Wear Vests . com Etsy shop: VADWear
  • Log in or register to post comments
Profile picture for user joemanuola
Joe M.
Clothing Options

HeartMate III Mens Clothing

Last activity 1 year 8 months
I received a HeartMate III LVAD on 1/25/19. I have been home from the hospital for 5 days and I am using a Thoratec vest that was given to me at the hospital.I am ready to order mens clothing to accommodate my LVAD and would appreciate some advice. The batteries are now hanging on my side and the...
Profile picture for user chillios
Profile picture for user Kim Biondo
  • Log in or register to post comments
Profile picture for user PhilInMS1985
Phillip M.
Exercise and Physical Activity

Chiropractor

Last activity 1 year 8 months
Has anyone tried using a chiropractor?
  • Log in or register to post comments
Profile picture for user Anonymous
Anonymous
Caregiver Support

Home health for dementia and lvad

Last activity 1 year 9 months
My husband has a lvad and his dementia is getting worse. Has anyone gone through this?
  • Log in or register to post comments
Profile picture for user srkasten
Steve K.
Living with an LVAD

Nerve pain from lvad pump

Last activity 1 year 9 months
Any one suffer nerve pain in chest due to lvad pressing on nerve. I've had lvad since Jan 2019 and and gone through many issues. New issue as of March 2023 is lvad pressing on nerve. Some times it's very painful. Lvad team suggested a nerve block procedure as sometimes they work. I hate to have to...
  • Log in or register to post comments
Profile picture for user tigerchar
Charlotte T.
Patient and Caregiver Forums

harness

Last activity 1 year 9 months
Is there anyone that uses the harness system? If you do what do you do with the wires??
  • Log in or register to post comments
Profile picture for user mmatski
MATHEW M.
Exercise and Physical Activity

Beautiful day for a trike ride!

Last activity 1 year 9 months
  • Log in or register to post comments
Profile picture for user mattkerrybritt@msn.com
Matthew B.
New to LVADs

Monthly out of pocket cost for LVAD patient

Last activity 1 year 10 months
Good Evening, So I am assuming that most patients here are on medicare medical insurance. Can anyone share what the monthly out of pocket cost are for someone who has an LVAD unit? Hospital staff is not really giving me a straight answer. Should be pretty straight forward. Anyone have any financial...
  • Log in or register to post comments
Profile picture for user ELJ
Emma K.
Exercise and Physical Activity

Unwanted Pins and needles

Last activity 1 year 10 months
Hi, Has anyone been having pins and needles in their ankles at night since having their LVAD fitted? It’s really annoying and stopping me from sleeping Emma knight
  • Log in or register to post comments
Profile picture for user ELJ
Emma K.
Diet

Diet

Last activity 1 year 10 months
Is anyone struggling with eating? Since coming out of hospital, may this year, my appetite has really gone. I hope it will come back in time because I love my food normally. I am worried as if I don’t put any weight on I won’t be able to have a transplant in the future. Emma
  • Log in or register to post comments
Profile picture for user Smiley
Angela B.
Inspiration and Encouragement

Everyday Is A New Day

Last activity 1 year 10 months
Hello LVAD Family, I hope you all are reading this in the best of spirits. Just felt like uplifting someone day and to let you know that you are NOT ALONE! I know things get hard, you get sad, you get depressed and you may even want to give up but please please stay in the fight! Continue to put one...
  • Log in or register to post comments
Profile picture for user PhilInMS1985
Phillip M.
Equipment

New Product to Secure Driveline

Last activity 1 year 10 months
I have always had issues securing the driveline to my stomach using anchors or tape. It always seems to pull off or get stuck on my shirt. I found adhesive patches for insulin arm sensors. Amazon has waterproof adhesives. They flex so if there's any movement of the driveline the entire patch doesn't...
  • Log in or register to post comments

Pagination

  • First page « First
  • Previous page ‹‹
  • Page 1
  • Current page 2
  • Page 3
  • Page 4
  • Page 5
  • Page 6
  • Page 7
  • Page 8
  • Page 9
  • …
  • Next page ››
  • Last page Last »

Topics

Intimacy and Relationships
Living with an LVAD
Medications
New to LVADs
Pediatric Caregivers
Pediatric LVADs
Questions about LVAD surgery
Recipient Support
Stories
Tips and Tricks

Pagination

  • Previous page ‹ Previous
  • Page 2
  • Next page Next ›

Most Commented

Shower Protection
75 replies
Ongoing scabs driveline
60 replies
im wondering about somthing
59 replies
Driveline Port area rash
56 replies
Attitude is Everything
56 replies

Pagination

  • Previous page ‹ Previous
  • Page 2
  • Next page Next ›

Most Viewed

heart transplant
32,567 views
Skin irritation from adhesive
31,263 views
Husband is 74 and getting a LVAD on April 23.
30,181 views
Getting A Job With A L-Vad?
26,254 views
How to Pack an LVAD for Travel (Featuring the…
26,027 views

Pagination

  • Previous page ‹ Previous
  • Page 2
  • Next page Next ›

Facebook Groups

  • MyLVAD
    MyLVAD
    1892+ likes
    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
  • LVAD Connection
    LVAD Connection
    566+ likes
    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
  • LVAD Recipients
    LVAD Recipients
    2722+ likes
    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

Do you have the MyLVAD Hospital Locator App?

  • App Store
  • Google Play

Footer menu

  • Refer a friend
  • About MyLVAD
  • Contact Us
  • Community Forums

Bottom menu

  • MyLVAD Foundation, LTD.
  • © MyLVAD
  • Legal Conditions

Social Links

  • Twitter
  • Facebook