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Karen T.
Caregiver Support

Balance and light headed

Last activity 4 years 4 months
My 72 yr old husband had surgery on Sept 3rd 2018, he has the heartmate 3, he was in the hospital 11 days and did well, he's still improving everyday except for his balance and he gets light headed, the Dr had changed his blood pressure meds and it hasn't helped so now they want him to go to a ENT...
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Cheryl G.
Caregiver Support

support

Last activity 4 years 5 months
My 21year old son got his LVAD on August 28, 2018. Hopefully will be released from the hospital tomorrow. I am a little apprehensive about what to expect. Are there any other parents of young adults here that can guide me through these first few months. Thank you.
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Catherine M.
Caregiver Support

How do we locate a return to flow Doppler to obtain blood pressure?

Last activity 4 years 5 months
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William M.
Caregiver Support

Asked to be a "care giver"

Last activity 4 years 4 months
I have a friend who is soon to be receiving an LVAD. I was quite suprised to receive a call from him today ( he is in the hospital )asking if I would consider being his caregiver after the surgery. I have told him I need some time to consider. When he first told me he was a candidate for this a week...
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Janette A.
Caregiver Support

International power adaptor

Last activity 4 years 6 months
Has anyone done international travel with their LVAD? We are planning a trip to England and have purchased a travel adaptor for the power supply. We are wondering if anyone has had any experience with this.
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Janette A.
Caregiver Support

Game Changer

Last activity 4 years 6 months
I would like this to respond to Cat S who says she is scared. I would like to send a few words of encouragement to her. My husband received an LVAD II nearly 6 months ago. Prior to that, he had had 3 cardiac arrests outside of the hospital with a 1:1,000 chance of survival, so we feel very blessed...
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Margaret B.
Caregiver Support

Husband just had lvad fitted

Last activity 4 years 9 months
Hi everyone who replied to my post. I would just like to say a big Thank you it has helped to know there are others out there that has similar problems. I would like to wish everyone a happy Christmas and all best wishes for the new year.
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ilene k.
Caregiver Support

Restless Leg issues / recommended hospitals or drs.

Last activity 5 years 5 months
My brother in law received his LVAD a little over a year ago. He has had some issues but seems ok with it. He is slowly recovering - goes to the gym to walk most days and is slowly regaining appetite and strength. Two issues: 1. In the last few months he seems to have Restless Leg syndrome and is...
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ilene k.
Caregiver Support

Restless Leg issues / recommended hospitals or drs.

Last activity 5 years 5 months
My brother in law received his LVAD a little over a year ago. He has had some issues but seems ok with it. He is slowly recovering - goes to the gym to walk most days and is slowly regaining appetite and strength. Two issues: 1. In the last few months he seems to have Restless Leg syndrome and is...
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Rosemary B.
Caregiver Support

Outside resources

Last activity 5 years 5 months
My husband will receive a LVAD shortly. We live in Dallas Texas and are looking for additional care takers that can relieve me as his primary caregiver occasionally. Any suggestions. Am willing to pay obviously. Thank you.
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Maggie M.
Caregiver Support

6 years on lvad

Last activity 5 years 5 months
My uncle has had his Lvad for 6 years. He doesn't follow any dr recommendations... He smokes, eats and drinks whatever he wants even though he's diabetic. In the last 6 months he has really declined. More recently in the last 6 weeks he's been life flighted 3 times to hospital because he can't...
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Georgina M.
Caregiver Support

Travel Insurance UK to Europe

Last activity 5 years 5 months
Hi everyone! My dad had an LVAD implanted in May 2015 and has since being doing really well. We have booked a family holiday away to Turkey this August however having trouble to get my dad insured for his LVAD and Dilated Cardiomyapathy- has anyone got any suggestions? Or what travel insurance...
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Lisa P.
Caregiver Support

Selective LVAD Deactivation

Last activity 5 years 8 months
Has anyone known someone with an LVAD that decided that the LVAD lifestyle no longer is acceptable to them? Has anyone known someone who had their LVAD deactivated?
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Facebook Groups

  • MyLVAD
    MyLVAD
    1892+ likes
    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
  • LVAD Connection
    LVAD Connection
    566+ likes
    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
  • LVAD Recipients
    LVAD Recipients
    2722+ likes
    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

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