Skip to main content
EnglishEnglish
EnglishEnglishDutchDutchFrenchFrenchGermanGermanItalianItalianJapaneseJapanesePortuguesePortugueseRomanianRomanianRussianRussianSerbianSerbianSpanishSpanish

User Menu (Anonymous)

  • Login
  • Register
  • Search
Home

Main navigation

  • Patients and Caregivers
  • Medical Professionals
  • Log in
  • Register
  • Search

Main navigation dropdown patients and caregivers

  • Learn about LVADs
    • Congestive Heart Failure
    • Intro to LVADs
    • LVAD Technology
  • LVAD Lifestyle
    • Living with an LVAD
    • Emergency Field Guides
    • Video Library
    • Available Resources
    • Fellow "VADER" Recommended Accessories
  • Caregivers
    • Caregiver Support Forum
    • ENABLE Caregiver Guides
    • Expert Sessions
    • Other Support Resources
  • Discuss & Connect
    • Events Calendar
    • Community Forums
    • Community Blogs
    • Online Support Group
    • Stories
  • Locator Maps
    • Hospital Map
    • Community Network Map
    • Download the MyLVAD App

Main navigation mobile

  • Patients and Caregivers
    • Learn about LVADs
      • Congestive Heart Failure
      • Intro to LVADs
      • LVAD Technology
    • LVAD Lifestyle
      • Living with an LVAD
      • Emergency Field Guides
      • Video Library
      • Available Resources
      • Fellow "VADER" Recommended Accessories
    • Caregivers
      • Caregiver Support Forum
      • ENABLE Caregiver Guides
      • Expert Sessions
      • Other Support Resources
    • Discuss & Connect
      • Events Calendar
      • Community Forums
      • Community Blogs
      • Online Support Group
      • Stories
    • Locator Maps
      • Hospital Map
      • Community Network Map
      • Download the MyLVAD App
  • Medical Professionals
    • Essential Resources
      • Available Resources
      • Medtronic Resources
      • Abbott Resources
      • EMS Field Guides
      • Policies and Procedures Library
      • Hospital Support Center Listing Request
    • Discuss & Connect
      • Conferences and Continuing Education
      • Events
      • ICCAC Website
      • MCS Collaboration Group
    • LVAD Coordinators
      • Hospital Locator
      • VAD Coordinator Registration
      • Take our Survey
  • Log in
  • Register
  • Search

Discussions: Patient and Caregiver Forums

You are here

  • Patients and Caregivers
  • Discuss & Connect
  • Patients and Caregivers Forums
  • Patient and Caregiver Forums
Profile picture for user bsparkee47
Linda H.
Patient and Caregiver Forums

Daily back pain

Last activity 1 year 2 months
My significant other has back pain daily from carrying the battery bag during the day, otherwise he’s fairly active. I was considering getting a chair massager as a gift. I wondered if it would interfere with the function of the LVAD and pacemaker.
  • Log in or register to post comments
Profile picture for user tigerchar
Charlotte T.
Patient and Caregiver Forums

harness

Last activity 1 year 9 months
Is there anyone that uses the harness system? If you do what do you do with the wires??
  • Log in or register to post comments
Profile picture for user sandraharm@yahoo.com
Sandra K.
Patient and Caregiver Forums

Website or experiment?

Last activity 1 year 11 months
Is this website supposed to be a social site or an experiment for doctors or researchers to get information from our discussions?
  • Log in or register to post comments
Profile picture for user sandraharm@yahoo.com
Sandra K.
Patient and Caregiver Forums

How do I change my title?

Last activity 1 year 11 months
It sometimes shows "prospective patient" under my name when I post. I have an lvad. How do I change this title? Thanks.
  • Log in or register to post comments
Profile picture for user Cableguy1961
Rennie G.
Patient and Caregiver Forums

Hiccups

Last activity 1 year 11 months
I’ve had my Lvad now for eight months. I have continuous hiccups when I’m sitting but when I’m standing or walking they go away anyone else have this problem? I do use a hiccups straw, but they seem to come back.
  • Log in or register to post comments
Profile picture for user Shelly
Lynn M.
Patient and Caregiver Forums

Infection

Last activity 2 years 3 months
Hi Everyone, my roommate has a heart mate 3 and has had an infection in the past. The last few days he has had a discharge of a green color and he seems to think that is normal. All he does is sleep, nothing new tho but he isn’t feeling well either. Has diarrhea also. What do you all think? I think...
  • Log in or register to post comments
Profile picture for user MRDICK
Dick T.
Patient and Caregiver Forums

My LVAD experience so far:

Last activity 2 years 5 months
Hi all!! My name is Dick. I was just reminded that I joined this forum 15 days ago. Here is my story so far. I went to the hospital on the Tuesday before Thanksgiving to get the evaluations and approvals done. I was supposed to return the following week and have the LVAD installed if all went well...
  • Log in or register to post comments
Profile picture for user LVAD.Express
Emily F.
Patient and Caregiver Forums

HeartMate 3 batteries

Last activity 2 years 6 months
Hi all! I am new to the LVAD caregiver community. My Father-in-law has his LVAD surgery this Wednesday. He is a BIG lover of the outdoors so I want to get him a fishing style vest to haul around his equipment in (his backup equipment will be in a bag). Can anyone with a HeartMate 3 tell me the...
  • Log in or register to post comments
Profile picture for user Anonymous
Anonymous
Patient and Caregiver Forums

NEW LVAD

Last activity 2 years 7 months
Hi everybody, I got this email this morning and I read there's a new device that is implanted including the batteries. I don't think I want to go through the surgery again,but I would like to find out if the batteries will be replaced with the ones that I have and are lighter than the ones I have...
  • Log in or register to post comments
Profile picture for user LilMsMisses
Brittney M.
Patient and Caregiver Forums

My Mom

Last activity 2 years 8 months
I haven’t written anything on this forum since my mom got her LVAD that back in 2019. The circumstances Nat my mom received her LVAD that in were not ideal. I took her for an appointment, as I have been doing many times since her heart failure diagnosis, and we were told that if she left she would...
  • Log in or register to post comments
Profile picture for user LissaNewton
Lissa N.
Patient and Caregiver Forums

From my heart to yours

Last activity 3 years 3 months
Hello all, My 73 year-old husband Terry recently passed away, of complications related to a rare type of pneumonia. He received his Heartmate 3 VAD on August 5, 2019 and yes, we went through all the highs and some of the lows post implant. I want to tell everyone to embrace each day; we had SO MANY...
  • Log in or register to post comments
Profile picture for user pmunoz1950
Victor M.
Patient and Caregiver Forums

Iron deficiency

Last activity 3 years 4 months
My husband received his LVAD in August 2021. He has an iron deficiency and has to go for iron infusions. He also got an infection in his sternum. Has anyone dealt with these issues. Pat
  • Log in or register to post comments
Profile picture for user Meianna
Tonya E.
Patient and Caregiver Forums

feeling Helpless

Last activity 3 years 5 months
Hi, let me start off by saying, that I never put the correct punction in, so if you have a question about what I am saying please ask, also I can be a tad bit long-winded. I guess I like to give all information so you know the whole situation. So let me start off by saying I have had CHF for 17 1/2...
  • Log in or register to post comments
Profile picture for user aheine
Anna N.
Patient and Caregiver Forums

My dad

Last activity 3 years 8 months
My dad has lived with his LVad for about 4 years successfully. In recent months he developed an infection and was treated for same in the hospital and now takes a medication to keep the infection at bay. Of course he has other medications related to his device as well. The infection was caught in...
  • Log in or register to post comments
Profile picture for user dawnchristensen
Dawn C.
Patient and Caregiver Forums

Joe Beretta Foundation Event!

Last activity 3 years 9 months
  • Log in or register to post comments
Profile picture for user snowflakesw
Susan W.
Patient and Caregiver Forums

Lvad bridge to transplant. Question about antibody boxed labs?

Last activity 4 years 3 months
Hello everyone. My husband has had two lvads. The first was a heart ware .And the second is a heart mate three. The first one ended up giving him a blood clot inside the lvad. Two strokes and two brain bleeds. He has come back for the most part . Right side weakness, short term memory loss . Doing...
  • Log in or register to post comments
Profile picture for user Geschke1
Ann G.
Patient and Caregiver Forums

Supplies

Last activity 4 years 3 months
My husband recently passed away due to many different health issues. I don’t have a lot but I do have some bandaging supplies diabetic paraphernalia including insulin that is good until 2022. I would be more than happy to give it to someone instead of throwing it away. let me know if you’re...
  • Log in or register to post comments
Profile picture for user npaul
N P.
Patient and Caregiver Forums

Need advise- recent Lvad experience

Last activity 3 years 2 months
Hello My Aunt got her LVAd around 3 weeks back but unfortunately the recovery is extremely slow. She is in early 50s. she was on ventilator for almost 2 weeks. She is able to breathe on her own now but we have noticed: - she keeps her eyes closed for most of the day and doesnt talk much - she...
  • Log in or register to post comments
Profile picture for user Meianna
Tonya E.
Patient and Caregiver Forums

How to handle

Last activity 4 years 5 months
Hi, my name is Tonya and i have had my vad implanted 1 year and 5 days ago. And since then i have had chronic driveline infections and within the last 2 months i have had 2 diffrent surgery's, 1. Cause i had a brain bleed( just from hitting my head on a cabinet door, ) so i had to have emergency...
  • Log in or register to post comments
Profile picture for user jamysond
Jamyson D.
Patient and Caregiver Forums

New LVAD and diagnosis of Covid 19

Last activity 4 years 6 months
My father just had an LVAD put in on October 9th. The surgery went good and he was taken off the ventilator the following day. He then began to develop extreme breathing problems and was not able to take deep enough breaths and was retaining carbon dioxide and becoming extremely confused due to this...
  • Log in or register to post comments

Pagination

  • Current page 1
  • Page 2
  • Page 3
  • Next page ››
  • Last page Last »

Topics

Caregiver Support
Research Participation Opportunities
Clothing Options
Congestive Heart Failure
Diet
Driveline Management
Equipment
Exercise and Physical Activity
Financing and Insurance
Inspiration and Encouragement

Pagination

  • Previous page ‹ Previous
  • Page 1
  • Next page Next ›

Most Commented

Where are the recent posts, I am scared!!
201 replies
HeartMate III Mens Clothing
112 replies
9 years today (20th Oct 2020) living with LVAD
98 replies
Equipment donation
82 replies
FREE LVAD VEST INSTRUCTIONS. My Wife Made Me a…
80 replies

Pagination

  • Previous page ‹ Previous
  • Page 1
  • Next page Next ›

Most Viewed

FREE LVAD VEST INSTRUCTIONS. My Wife Made Me a…
63,210 views
Discouraged
51,516 views
LVAD supplies--- Who supplies them for you ?
51,251 views
Attitude is Everything
50,519 views
Tactile holster T shirt for carrying LVAD items
44,056 views

Pagination

  • Previous page ‹ Previous
  • Page 1
  • Next page Next ›

Facebook Groups

  • MyLVAD
    MyLVAD
    1892+ likes
    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
  • LVAD Connection
    LVAD Connection
    566+ likes
    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
  • LVAD Recipients
    LVAD Recipients
    2722+ likes
    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

Do you have the MyLVAD Hospital Locator App?

  • App Store
  • Google Play

Footer menu

  • Refer a friend
  • About MyLVAD
  • Contact Us
  • Community Forums

Bottom menu

  • MyLVAD Foundation, LTD.
  • © MyLVAD
  • Legal Conditions

Social Links

  • Twitter
  • Facebook