Community Forums

My husband was explaninted today and we now have a new shower bag, a case of Drive line change kits we do not need. We also have a charger station, battery charger and 6 batteries. Would like to sell off unneeded items to help cover medical cost. Best offer will be excepted.

My father-in-law received his LVAD in December. He had suffered a mild stroke about a month before. He is not eligible for a heart transplant. He ended up in the ER two weeks ago and based on tests (echo, ldh, etc) he has a blood clot in his pump. He has been on a Heparin IV until two days ago in...

Hello, I just got my lvad on September 19 . Everything seems to be going well except I can hear the pump. It is very high pitched and very annoying. I was wondering if anyone else has this issue?

Actually I am a caregiver. My husband is the VAD recipient. We are on a 2 week trip at the Grand Canyon then on to Denver to visit our son and daughter in law. Having a great time. The altitude has reduced his breathing comfort. We are staying on paved pathways and do not plan to hike! At 78 Ned is...

My brother in law received his LVAD a little over a year ago. He has had some issues but seems ok with it. He is slowly recovering - goes to the gym to walk most days and is slowly regaining appetite and strength. Two issues: 1. In the last few months he seems to have Restless Leg syndrome and is...

My brother in law received his LVAD a little over a year ago. He has had some issues but seems ok with it. He is slowly recovering - goes to the gym to walk most days and is slowly regaining appetite and strength. Two issues: 1. In the last few months he seems to have Restless Leg syndrome and is...

Is anyone aware of a smaller controller and/or battery for the Heartware II? My son has one and as a very athletic person (daily gym, motorcycle racing, hiking, etc.), the controller is a real bulky problem. Does anyone have any info, please? Thanks very much.

My husband will receive a LVAD shortly. We live in Dallas Texas and are looking for additional care takers that can relieve me as his primary caregiver occasionally. Any suggestions. Am willing to pay obviously. Thank you.

My uncle has had his Lvad for 6 years. He doesn't follow any dr recommendations... He smokes, eats and drinks whatever he wants even though he's diabetic. In the last 6 months he has really declined. More recently in the last 6 weeks he's been life flighted 3 times to hospital because he can't...

My 54 year old son has just had an LVAD implanted, along with a new homograft aortic valve. Prior to his heart failure, he had a syncope episode probably related to a small stroke while he was driving. He was involved in a terrible accident and his license revoked. After three months in the hospital...

Hi everyone! My dad had an LVAD implanted in May 2015 and has since being doing really well. We have booked a family holiday away to Turkey this August however having trouble to get my dad insured for his LVAD and Dilated Cardiomyapathy- has anyone got any suggestions? Or what travel insurance...

Dear phillip I would like to get in contact with you regarding hospitals in South Africa with knowledge off the Lvad. My father in law is German and got it implanted in Germany and he wants to come and visit, but obviosly wants the assurance that he will hve a hospital to visit in the case of a...

This morning I have become completely overwhelmed with the size of Irma. I live in Macon Ga and would think I am the program furthest south in Georgia. The inpatients don't bother me it's the evacuation folks on a device. Please post my number for evacuees or for displaced patients who may have a...

Greetings from Macon GA I have major concerns for non-Hospitalized , Mobile ,active VAD patients leaving Florida to seek shelter . Macon as far as I know is the first VAD center north of Florida . I am attempting to mobilize southeast vad coordinators for the weekend in case cousin Tom from Tampa...

After nearly 4 and a half years I finally got hit with the infection. Until this point nothing. Traveled worked taught. To date been in the hospital twice 4 sets of different IVs while in the hospital. Now at home taking Cipro 500mg twice per day. Feeling ok, however I have yet to find anything...

Something that I've been considering doing is getting a embroidered patch made so that my go bag is clearly marked as medical equipment. I feel that this is important since I actually use a LowePro Camera bag with padded compartments and dual shoulder straps for carrying my spare batteries,...

I found a long narrow back pack that is perfect for carrying my extra batteries and extra controller. It's a perfect size and is very comfortable. Now when I walk around with the extra gear, I hardly notice I am carrying it, and it helps me to stay more balanced and stand up straighter. I found this...

Hallo, Wir (Das Contilia Herz und Gefäßzentrum und der Selbsthilfeverein Pulslos leben) wollten gerne zu einer Fahrradtour durch das Ruhrgebiet im Rahmen der grünen Hauptstadt Europas einladen. In den vergangenen Jahren haben wir diese Fahrradtour schon mit Patienten aus Essen und Umgebung...

My Dad had his LVAD put in on 5/25/17. He seems to have had a new issue every, single, day, of his recovery so far. Hours after the surgery, they said he had bleeding in his chest and had to take him back and open him up a second time (then couldn't find the cause!). Then had to give him a lot of...

Henry, my husband, had a massive heart attack, Nov. 2016. We practically lost him and we were devasted at the news that he may not "make" it we were told. No "promises"....I knew it was dire. I knew at that point we had to just pray for the doctors and staff that were treating him. Now....almost six...