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Profile picture for user dawnchristensen
Dawn C.
Living with an LVAD

New 2021 EMS Field Guides are Here!

Last activity 1 year 10 months
/medical-professionals/resource-library/ems-field-guides The 2021 EMS Field Guides are Here! Print QR codes to keep with you so you and emergency services can access emergency information quickly! You can also find them on the MyLVAD app! If you haven't downloaded it yet...Check it out!!
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Profile picture for user lschoen
Lauren S.
Research Participation Opportunities

Earn $5 in Quick Survey for LVAD Patients and Caregivers!

Last activity 1 year 10 months
Hello! Our research team at Baylor College of Medicine in Houston, TX is working to understand how LVAD patients and caregivers are responding to the COVID-19 pandemic. Your responses can help tailor important health information to the LVAD community! We are pleased to offer $5 to LVAD patients and...
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Profile picture for user gb1324
Greg B.
Driveline Management

Driveline management supplies

Last activity 1 year 10 months
Hi! I recently received a heart transplant(!!!) and I have 24 extra driveline management 'kits' available. See picture below of 1 of the kits, they are all exactly the same. If someone can use these I am willing to ship them to you free of charge(within USA only, please). Leave a reply here if...
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Profile picture for user Anonymous
Anonymous
Exercise and Physical Activity

Bicycling

Last activity 1 year 10 months
Hi, am I able to ride a bike?, where live now I can ride one around and not worry getting hurt or hit by a car. Thank you for your time and Peace be with you all.
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Profile picture for user jeleadu
Jessica Lea D.
Living with an LVAD

Reminder - INVITATION TO PARTICIPATE: VAD WEARABLES RESEARCH PROJECT

Last activity 1 year 10 months
https://www.surveymonkey.com/r/VAD-wearables We are currently inviting Ventricular Assist Device patients globally to participate in an online questionnaire about their experience with their VAD wearable systems. The aim of the questionnaire is to research how Ventricular Assist Device patients feel...
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Profile picture for user fredL
Fred L.
Living with an LVAD

Getting Life Insurance After L-Vad

Last activity 1 year 11 months
Now at age 70, living in the USA, I have to let my ten-year level term insurance expire because the rates were set to climb rapidly anyway. I have to search for a new company, maybe with much less coverage to keep my monthly or quarterly fees affordable, but I don't know if any company would take me...
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Profile picture for user S.Ashley2015
Sally A.
Questions about LVAD surgery

Unsure of getting a lvad

Last activity 1 year 11 months
Hello all, So my boyfriend is currently in the hospital due to water retention from congestive heart failure, at first they had discussed putting in a difibulator in. A couple days later he was transfered to a larger hospital to have said difibulator put in. Days later and like what seemed to be a...
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Profile picture for user snowflakesw
Susan W.
Patient and Caregiver Forums

Lvad bridge to transplant. Question about antibody boxed labs?

Last activity 1 year 11 months
Hello everyone. My husband has had two lvads. The first was a heart ware .And the second is a heart mate three. The first one ended up giving him a blood clot inside the lvad. Two strokes and two brain bleeds. He has come back for the most part . Right side weakness, short term memory loss . Doing...
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Profile picture for user RobJBen
Robert B.
Inspiration and Encouragement

Hi all, just a quick update and good news!

Last activity 1 year 11 months
Hi all, well I got "that" phone call the other day and my admission date to the hospital is April 12, 2021. Insurance has approved either/or pumps. Either the LVAD (HeartMate3) or the new LVAS (EvaHeart). I am in the clinical trials for the Evaheart so we will see what they decide to do. Also got my...
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Profile picture for user twinlarry
Larry G.
Driveline Management

Ongoing scabs driveline

Last activity 1 year 11 months
Just wondering if anyone else have ongoing scabs around the drive line my doctor says the site looks good no infections and it would never heal because no matter how secure the line is it still moves. Had my lvad since Aug 2018 doing well even went to my winter camp for ice fishing and my inverter...
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Profile picture for user rlouis1439
ron l.
Inspiration and Encouragement

Man receives world’s first wirelessly powered heart pump

Last activity 1 year 11 months
Many of you have probably seen this. For those who haven’t, Google the title above. All the best!
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Profile picture for user Geschke1
Ann G.
Patient and Caregiver Forums

Supplies

Last activity 1 year 11 months
My husband recently passed away due to many different health issues. I don’t have a lot but I do have some bandaging supplies diabetic paraphernalia including insulin that is good until 2022. I would be more than happy to give it to someone instead of throwing it away. let me know if you’re...
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Profile picture for user Anonymous
Anonymous
New to LVADs

my lvad made a noise

Last activity 1 year 11 months
I just want to know if it's normal....when i grow up the stairs... my lvad made a bizarre sound like :crunch... crunch ?? it is normal... ? I am a French person ...sorry for my english language.
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Profile picture for user Anonymous
Anonymous
New to LVADs

Listen the Lvad

Last activity 5 years 3 months
I want to know if it's normal to listen the Lvad whwn i sleep
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Profile picture for user Geschke1
Ann G.
Equipment

Heartware equipment

Last activity 1 year 11 months
My husband had his Lvad implanted in April 2018. It was a difficult three years but it was three years more that we had together then we would have. he had a heartware VAD. I now have four batteries and the battery charger, two controller AC adapters, various holders and straps, three unused vests...
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Profile picture for user Alderqueen08
Kathleen S.
Driveline Management

Can a lvad recepient change their own driveline dressing

Last activity 2 years
My husband is possibly going to get an lvad shortly. Will he be able to learn how to maintain his own driveline. I like to travel and would like him to be able to do this while I am away.
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Profile picture for user npaul
N P.
Patient and Caregiver Forums

Need advise- recent Lvad experience

Last activity 11 months 1 week
Hello My Aunt got her LVAd around 3 weeks back but unfortunately the recovery is extremely slow. She is in early 50s. she was on ventilator for almost 2 weeks. She is able to breathe on her own now but we have noticed: - she keeps her eyes closed for most of the day and doesnt talk much - she...
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Profile picture for user Rissa1974
CRIs S.
Questions about LVAD surgery

Nervous Wreck

Last activity 2 years
My Husband had LVAD surgery on Friday 1/8/2021. About 10 pm that night they had to put a tube down his throat to see what was going wrong. By 1:00am Saturday Morning I had to consent again for them to go back in him because the right side of the heart wasn't strong enough. Well Sunday the nurse told...
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Profile picture for user egaogao71
Evelyn G.
Equipment

Carry on bag for equipment

Last activity 2 years
Hi all, Just wanted to see if anyone has any recommendation on carry on bag for all the equipment to go in when traveling. Also, anyone had to purchase a generator for backup in case of power outage? If so, what have you found to be most useful? Thanks.
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Profile picture for user SabrinaGG
Sabrina G.
New to LVADs

Temporary LVAD?

Last activity 2 years
Hello, my brother is currently going to get a LVAD. I apologize for bad English as I am still young and Im just very worried. My brother had gone through an operation and needed rehab therapy. However, the state we lived in did not offer him the specific rehab therapy so he needed to be flown out to...
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