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Profile picture for user Baz
Babu O.
Equipment

Small Battery Size - Latest Development

Last activity 1 year 3 months
Any news of development of smaller batteries and if so when are they likely to be implemented - Thanks
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Lori C.
Living with an LVAD

Has anyone had the Covid vaccine yet who currently has an LVAD

Last activity 1 year 9 months
Hello everyone! I was interested to know if anyone received the Covid vaccine and has an LVAD Can you share your story .. side effects and any advice
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Dawn C.
Patient and Caregiver Forums

Joe Beretta Foundation Event!

Last activity 1 year 9 months
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John S.
Clothing Options

Medi-Materials.com now offers LVAD vests up to 5XL!

Last activity 1 year 10 months
Medi-Materials now offers the original WHITE Freedom Undervest in larger sizes: 2XL-3XL and the new 4XL-5XL. There is no price mark up for the larger sizes, at all. The 4XL-5XL BLACK Freedom 2 Undervest will be available sometime this Fall.
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Lisa G.
Living with an LVAD

How do you use seatbelts

Last activity 1 year 10 months
I received my Lvad early March and still just using the bag to hold my batteries etc. How do you use your seat belt to support bag and not disturb your driveline?
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Chris H.
Equipment

GO Bag Backpack

Last activity 1 year 11 months
Thought I’d let you know about a new “GO Bag” backpack from VAD Wear®️. It’s on sale for Father’s Day. Holds all equipment securely. Quick battery access port. Plenty of room for additional gear and even a laptop! https://www.etsy.com/listing/1029233329/new-lvad-go-bag-backpack?ref=shop_home_active...
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Profile picture for user Ndulaney
Nicole M.
Caregiver Support

Energy and weight loss after LVAD surgery

Last activity 1 year 11 months
Hello All, My father just had the LVAD surgery on October 12, 2017. I was wondering if anyone experienced weight loss or loss of energy after the surgery. If so, how long did it take for your weight loss to level out.
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Jeff B.
Exercise and Physical Activity

Dry suit and swimming

Last activity 1 year 11 months
To Fellow LVAD users who must swim, snorkel, or dive some questions: 1. Do you participate in all the water sport activities mentioned above? 2. If so, how did you size yourself to best fit in a dry suit and what brand did you buy? I am 5'10" and 210# My device is a Heart Mate III. 3. Did you get a...
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Jeff K.
Equipment

Heartmate 3

Last activity 1 year 11 months
I am looking for a tharotec heartmate 3 holster vest thank you jeff
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Tonya E.
Travel

Flying

Last activity 9 months 3 weeks
Hi I was wondering has there been anyone who has traveled/flown since they have had thier l.v.a.d? And if so how did you do it with your equipment ( wall power,battery backups, dressing kits,etc )did you put that in your carry on or stow it underneath. Any help would be greatly appreciated.
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David M.
Clothing Options

Shirts

Last activity 1 year 11 months
I am a new patient to the LVAD and I need or I guess I want some shirts but but they were 100 bucks or close to that, that is far out of my price range
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MyLVAD A.
Research Participation Opportunities

LVAD Wearables Survey

Last activity 1 year 11 months
INVITATION TO VOICE YOUR EXPERIENCE IN ORDER TO IMPROVE THE NEXT GENERATION OF LVAD WEARABLE ACCESSORIES This research study is supported by a company currently developing a next- generation left ventricular assist device (LVAD). Are you a current or a former LVAD patient? Would you like to voice...
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Tony f.
Caregiver Support

Need a little advice about my dad

Last activity 1 year 11 months
My dad had an Lvad implanted exactly 6 weeks ago today, However the doctors are saying his right side simply is not doing its job, and being that he has been in the hospital so long he is not strong enough to be considered for an Rvad surgery making it a Bivad. Due to his age AND undiagnosed spot on...
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Barry and Susan (caregiver) S.
Equipment

Equipment Available

Last activity 2 years
I lost my sweet husband Nov. 24 th, 2020. He had his LVAD since Oct. 19, 2016. I have all his equipment that I would love to pass on to someone that can use it. Please reply here.
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Thomas F.
New to LVADs

im wondering about somthing

Last activity 2 years
I am a recipient for an LVAD before I decide whether I'm going to do it or not I really wanna know about it and I have some questions here's the first question that comes to mind...... Will I have a pacemaker and defibrillator with my LVAD or will they take the pacemaker and defibrillator out and...
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Jessica Lea D.
Research Participation Opportunities

UPDATE: Just 20 more responses from VAD patients required to meet our research goal! :)

Last activity 2 years 1 month
INVITATION TO PARTICIPATE: VAD WEARABLES RESEARCH PROJECT https://www.surveymonkey.com/r/VAD-wearables We are currently inviting Ventricular Assist Device patients globally to participate in an online questionnaire about their experience with their VAD wearable systems. The aim of the questionnaire...
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Profile picture for user lschoen
Lauren S.
Research Participation Opportunities

Survey about COVID for $5!

Last activity 2 years 1 month
Hi! My research team at Baylor College of Medicine in Houston, TX is working to understand how LVAD patients and caregivers are responding to the COVID-19 pandemic and feel about COVID vaccines. Your responses can help tailor important health information to the LVAD community! We are pleased to...
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William W.
Intimacy and Relationships

Lvad and Dating

Last activity 2 years 1 month
My name is Bill. I have had my VAD for three years and I was wondering if there are any dating sites for VAD recipients. I would like to find out if there is one. Thanks Bill
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Helen P.
Clothing Options

Bib overalls with pockets added for batteries - size 54

Last activity 2 years 1 month
Hi! I recently lost my brother after the LVAD extended his life for 5 years. I had the pleasure of adding pockets to clothing for his batteries. I have a pair of bib overall with the pockets added that he did not have the opportunity to wear. I would love to pass them along to someone. They are size...
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Jenna S.
Equipment

Doppler

Last activity 2 years 1 month
Hi there! I hope everyone is safe and doing well, and for those who are not you are in my prayers. I was hoping I could find out where I could get a reasonably cost doppler for blood pressure checks. Cheapest I have found is $120 but wanted to see if someone was maybe selling one or knew of a...
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Shower bags
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