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Profile picture for user BruceVad
Bruce G.
Patient and Caregiver Forums

Apple iWatch

Last activity 1 year 3 months
I have a HM3 and recently had some rhythm issues. Has anyone tried using an iWatch to check your HR and rhythms? If so, does it work well?
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Profile picture for user ecoffey
Erin C.
Travel

Travel

Last activity 1 year 3 months
My husband was fitted with a BIVAD (2 Heartmate III) on 10/28/19 and we have had a cruise to the southern Caribbean planned for July of next year since September. We are trying to decide if we should cancel this trip or not. Has anyone cruised to the Caribbean with a VAD if so please share how you...
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Profile picture for user Redjade428
Samantha B.
Caregiver Support

LVAD Failure

Last activity 1 year 3 months
This may not be the forum for this question, but who better to answer my questions than those living with an LVAD and the people who care for them. My fathers LVAD (Heart Mate II) was implanted August 2015. When he had his heart attack we were literally told to take him home so he could die, as the...
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Profile picture for user kpoliquin603
Katie P.
Equipment

Free Changing Kits and misc Supplies

Last activity 1 year 3 months
Hello everyone! My husband was transplanted recently and we have a ton of changing kits. He had the heartmate 3. I know these can be expensive for folks, so I am more than willing to ship to anyone for free. We don't have a huge place so just looking for the storage back, so hopefully send out as...
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Profile picture for user Anonymous
Anonymous
New to LVADs

Massages

Last activity 1 year 3 months
My father just got the heartmate 3 and was recently sent home. He is having some back pains from mostly laying in a hospital bed for the past 3 weeks so I wanted to take him to get a massage but we are afraid that they might mess with the driveline. So ultimately, my question is has anyone gotten a...
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Profile picture for user smeg7
Sonja M.
Clothing Options

HeartMate 3 sizes of batteries and controller

Last activity 1 year 4 months
My father got the HeartMate 3 some month ago. For we have no shop in Germany to buy according shirts and my father dont`t want to order a LVAD shirt online, I want to sew him an appropriate shirt. I would like to surprise him, thus I cannot measure the exact sizes of the batteries and the controller...
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Profile picture for user ashley_jingzhi_xu
Ashley X.
Research Participation Opportunities

Are you a caregiver? Would you like to voice your opinions and thoughts? - Please Participate in The LVAD Caregiver Study

Last activity 1 year 4 months
--Invitation to Participate-- We would like to better understand the experience of providing care to a family member or friend with an LVAD. If you are a caregiver of someone with a LVAD, we invite you to copy paste on the following link to see if you are eligible to participate in our study. https...
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Profile picture for user hammerdown
David H.
Patient and Caregiver Forums

Dementia patient candidate for LVAD?

Last activity 1 year 4 months
My husband has end stage heart failure and has the option to have an LVAD. As his caregiver, I am trying to find information on how well a person diagnosed with mild Alzheimers/dementia would be able to function with an LVAD, especially as his cognitive skills declined. We have talked about what we...
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Profile picture for user mcarthens
maxine C.
Equipment

Centurion VAD Driveline Management Kit, Weekly HM-II and Thoratec battery pack and wall unit.

Last activity 1 year 4 months
Hello, I lost my sister last month and I have her case of Driveline Management kits. I am selling the case for $200.00 plus shipping and Thoratec battery pack and wall unit for $200.00 plus shipping. if anyone is interested you can email me @ maxine66@verizon.net.
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Profile picture for user Mary
Mary E.
New to LVADs

RV Travel

Last activity 1 year 4 months
My husband and I have a motorhome and would like to resume travelling. Since we enjoy state and federal parks which often have no electric hookups we will have problems with charging batteries and using the mobile power unit. There must be others out there who can help us with an answer to this...
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Lissa N.
Patient and Caregiver Forums

Best type of blood pressure monitor

Last activity 1 year 4 months
Hello, we are new to the VAD community. My husband received his VAD (Heartmate III pump) on August 5th. We live in a small town located 5 miles away from a much larger city, and 24 different home health care agencies refused to provide home health care services (blood draws for lab work) because we...
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Dawn C.
Patient and Caregiver Forums

Support Group Links from October 7th 2019

Last activity 1 year 4 months
Link to Article about Data Recorder from Vienna: https://zmpbmt.meduniwien.ac.at/wissenschaft-forschung/cardiovascular-dynamics-artificial-organs/projects/vad-monitoring/ Link to Belly Band: https://www.amazon.com/dp/B07C24WY1D/?coliid=I1TNYOCUGLDJA2&colid=2E8W66B2JHK9W&psc=1&ref_=lv_ov_lig_dp_it...
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Melissa C.
Driveline Management

HVAD Bandages and Equipment

Last activity 1 year 4 months
Hello A dear friend of mine has just received and HVAD and will be coming home from hospital within a week. Some ladies and I are working on moving her bedroom downstairs and wanted to setup an area to store all the bandages, equipment and items needed for driveline management. What has been the...
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Profile picture for user Moprus
Maureen R.
Living with an LVAD

Respiratory secretions

Last activity 1 year 5 months
My husband received his LVAD Oct 2016 and although there’s been lots of highs and lows - we are grateful for the time he’s gained and still gaining ! However he has a lot of phlegm (sorry) and respiratory secretions that are getting worse . Has anybody else experienced these symptoms, he’s kind of...
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Profile picture for user strader
Arlen S.
New to LVADs

8 weeks with LVAD

Last activity 1 year 5 months
It has now been eight weeks since my LVAD implantation and life has been going reasonably well since my surgery. Two weeks in the hospital, one week in a motel adjacent to the hospital, five weeks at home. My caregiver returned to his family last week so I am now on my own. I will be starting back...
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Profile picture for user cjruth58
Cindy R.
Recipient Support

BioPatch protective disk with CHG

Last activity 1 year 5 months
I have had an LVAD for 8 years. The new daily cleaning of my driveline is a pre-packaged kit, which includes an effective infection prevention disk called biopatch. Because of skin issues, I am unable to use them. Every day I have a new disk to add, and have a good-sized bag now. They are packaged...
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Profile picture for user JDStratton
John S.
Clothing Options

Medi-Materials.com now offers LVAD vests up to 5XL!

Last activity 1 year 5 months
Medi-Materials now offers the original WHITE Freedom Undervest in larger sizes: 2XL-3XL and the new 4XL-5XL. There is no price mark up for the larger sizes, at all. The 4XL-5XL BLACK Freedom 2 Undervest will be available sometime this Fall.
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Profile picture for user arieh__
abrol f.
Patient and Caregiver Forums

Had my heart mate LVAD surgery one month ago in the Bay Area

Last activity 1 year 5 months
Hello, I am a very recent LVAD recipient, one month ago today. I just got the ok to go home two days ago. Just starting to get the new lifestyle together. Just thought I would;d introduce myself. I will definitely check out the "bag alternatives', that thing hurts my shoulder, and will be happy to...
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Cherie C.
Patient and Caregiver Forums

Tagader m vs. Glad press and seal

Last activity 1 year 5 months
I was advised not to shower. But I can use a hand held shower. I was wondering if someone knows if it's better to use teg ad er m or if the press and se al is the same or worse? Thanks.
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Profile picture for user Anonymous
Anonymous
Patient and Caregiver Forums

Our LVAD experience

Last activity 1 year 11 months
My husband had his LVAD placed on February 11, 2019. Right now we should be experiencing a lot of then things you all are posting about. What to wear, what can he do, what has it been like etc. We had plans. Unfortunately for me, God had other plans. My beloved died on February 13, 2019. See he...
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Most Commented

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Facebook Groups

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    MyLVAD
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    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
  • LVAD Connection
    LVAD Connection
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    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
  • LVAD Recipients
    LVAD Recipients
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    Created by Kathy & Ron Spotts of PA. Ron is LVAD recipient August 2008.

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