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Just wondering if anyone else have ongoing scabs around the drive line my doctor says the site looks good no infections and it would never heal because no matter how secure the line is it still moves. Had my lvad since Aug 2018 doing well even went to my winter camp for ice fishing and my inverter...

It has now been eight weeks since my LVAD implantation and life has been going reasonably well since my surgery. Two weeks in the hospital, one week in a motel adjacent to the hospital, five weeks at home. My caregiver returned to his family last week so I am now on my own. I will be starting back...

Hi my husband has just had his lvad 4wks today we have been having hard time as he has had a few hick ups . Just felt needed to chat to some one in simular situation many thank . Margaret x

I am the proud owner of a Heartmate 3 LVAD. I have had it for 15 months now and have has an interesting ride, but that is for a later post. My issues have been with driveline management and skin rashes. My skin is very sensitive to tape and adhesives and it has been a challenge to find the most...

Just thought I would let y'all know carew medical wear is having a 4th of July sale. I just received a e-mail from them. My coordinators love this lvad shirt, I'm very happy with it too. www.carewmedicalwear.com

I have Heartmate II equipment for sale. It is in STELLAR condition, recently tune up my my LVAD team, cleaned, new power cord added, new batteries given to me, new battery tops..... everything! I also have a gently used LVAD bag. It's like new! And I had driveline site care supplies and LOADS of...

Something that I've been considering doing is getting a embroidered patch made so that my go bag is clearly marked as medical equipment. I feel that this is important since I actually use a LowePro Camera bag with padded compartments and dual shoulder straps for carrying my spare batteries,...

Hello All! My Dad had his LVAD surgery on the 6th of March, 2019. I believe he had an anxiety attack today but wanted to see if anyone else had any of the same symptoms. He's 79 and had a heart attack in 2015. Was told February 6th he had 3-6 months to live if he didn't try to qualify for the LVAD....

I am 65 and my Heartmate III was implanted on March 11, 2019. I was discharged from the hospital 8 days after surgery and came home. I am extremely fortunate to have an excellent caregiver, my wife Carol. We are making the 3 hour one way drive each week to KU Medical Center for follow up visits and...

Hello, I'm new at this forum and have question about generator. I'm planning to use generator when electricity goes down at home and when I going for camping overnight. There are two type of generators : battery and gasoline. Portable Battery Generator will be used at home and gasoline outside the...

my husband is 72 end stage chf he had LVAD surgery fri morn it’s now tues and is still Intubated . Whenever the drs try to wake him up he gets very agitated and stressed. So the have to re intubate him. I am very scared for him. Is the confusion he is experiencing normal. ?

My husband had his LVAD placed on February 11, 2019. Right now we should be experiencing a lot of then things you all are posting about. What to wear, what can he do, what has it been like etc. We had plans. Unfortunately for me, God had other plans. My beloved died on February 13, 2019. See he...

Hi, am I able to ride a bike?, where live now I can ride one around and not worry getting hurt or hit by a car. Thank you for your time and Peace be with you all.

I have recently 'celebrated' 10 years of living with a Ventrassist LVAD here in the UK The machine's performance has been exemplary' I have heart failure again now so life is not at all easy Only difficulties haves been with obtaining batteries, medication and the weight of the machine itself...

Hello everyone. I am just now beginning to discuss the option on an LVAD with my cardiologist. I have had Dilated Cardiomyopathy for 15 years. Life was a breeze, cruising along at 35% EF, up from 20% at dx. However, the last year has been tough. My EF is now back to 20% and I've been hospitalized...

I have recently 'celebrated' 10 years of living with an 'antiquated' Ventrassist LVAD in the UK. Life has not been easy with the heavy batteries and so on, but the 'behaviour' of the pump itself has been exemplary! We are getting to the stage where getting batteries for it can be quite difficult....

Bivad anyone have them? Them?

My husband and I have a motorhome and would like to resume travelling. Since we enjoy state and federal parks which often have no electric hookups we will have problems with charging batteries and using the mobile power unit. There must be others out there who can help us with an answer to this...

Hi. I am new here. I received my Lvad on December 29, 2017 after 20 years with congestive heart failure. In early 2016 my heart started getting extremely worse. in 7 months I was hospitalised 8 times. After 5 days the drs said i was ready to go home. I have had no problems so far. My question is...

This is my first post. My husband has had his LVAD for five weeks now, and I want to share this web site with you all for making your life easier with a LVAD. My husband is so grateful to discover how this shirt gave him freedom to do daily life activities. Take a peek and see if it is something you...