Profile picture for user bobg
Bob G.
Exercise and Physical Activity

The Electric Cranks Ride Again.....and Again.....and Again

Last activity 1 month 4 weeks
The Electric Cranks are a group of LVAD recipients from across the North of England, all patients at Wythenshawe Hospital, Manchester. A number of us are awaiting a heart transplant. We had all been physically fit and active prior to developing severe heart conditions which required life-saving...
Profile picture for user dgibbons
Devon G.
Clothing Options

Stabilizing belt for jumping recommendations

Last activity 1 month 4 weeks
I am 26, in fair condition, well enough to exercise and want to add jumping to my exercise program but the controller and two batteries aren't held stable well enough with anything I have. Does anyone have suggestions? Thanks
Profile picture for user ccase816
Courtney V.
Inspiration and Encouragement

LVAD 5/25/17 for my Dad

Last activity 2 months
My Dad had his LVAD put in on 5/25/17. He seems to have had a new issue every, single, day, of his recovery so far. Hours after the surgery, they said he had bleeding in his chest and had to take him back and open him up a second time (then couldn't find the cause!). Then had to give him a lot of...
Profile picture for user Rioke
'Rioke" Oghenerioke P.
Equipment

LVAD Equipment to give away.....

Last activity 2 months
Hi. I have some LVAD equipment. I got another heart, three months ago. I would love to give away to anyone who needs it. I have some pictures if you want to see them. I live in Laurel, MD I had a Lvad Heartmate 3. Go Gear Battery Holster 2 Shower Bags one consolidated bag Battery Holster Dressing...
Profile picture for user CarolynnJohnson
Carolynn J.
Research Participation Opportunities

Paid Research Interviews for VAD Patients / Parents

Last activity 2 months
Do you have a Heartmate or a Heartware VAD? Are you the parent of a child implanted with a Heartmate or a Heartware VAD? We want to talk to you! We are conducting a research study in support of a new VAD system and we would like to talk with you about your experiences with your or your child’s VAD...
Profile picture for user Susang
Barry and Susan (caregiver) S.
Equipment

Charger

Last activity 2 months 3 weeks
Would like to donate some of my husbands equipment. He went to rest with the Lord.
Profile picture for user JDStratton
John S.
Clothing Options

Medi-Materials.com now offers LVAD vests up to 5XL!

Last activity 2 months 4 weeks
Medi-Materials now offers the original WHITE Freedom Undervest in larger sizes: 2XL-3XL and the new 4XL-5XL. There is no price mark up for the larger sizes, at all. The 4XL-5XL BLACK Freedom 2 Undervest will be available sometime this Fall.
Profile picture for user lisagraves
Lisa G.
Living with an LVAD

How do you use seatbelts

Last activity 3 months 1 week
I received my Lvad early March and still just using the bag to hold my batteries etc. How do you use your seat belt to support bag and not disturb your driveline?
Profile picture for user Cole@58-
Barbara Cole C.
Medications

HIGH PI

Last activity 3 months 2 weeks
My name is Barbara, I've had my Lvad Heartmate 3 over 3 years. So far I haven't experienced any major issues thank God! My question is regarding medication sensitivity and high PI's. Can anyone share regarding their experience with medicatons and High PI with Heartmate 3?
Profile picture for user chillios
Chris H.
Equipment

GO Bag Backpack

Last activity 4 months
Thought I’d let you know about a new “GO Bag” backpack from VAD Wear®️. It’s on sale for Father’s Day. Holds all equipment securely. Quick battery access port. Plenty of room for additional gear and even a laptop! https://www.etsy.com/listing/1029233329/new-lvad-go-bag-backpack?ref=shop_home_active...
Profile picture for user Ndulaney
Nicole M.
Caregiver Support

Energy and weight loss after LVAD surgery

Last activity 4 months
Hello All, My father just had the LVAD surgery on October 12, 2017. I was wondering if anyone experienced weight loss or loss of energy after the surgery. If so, how long did it take for your weight loss to level out.
Profile picture for user jbertels
Jeff B.
Exercise and Physical Activity

Dry suit and swimming

Last activity 4 months 1 week
To Fellow LVAD users who must swim, snorkel, or dive some questions: 1. Do you participate in all the water sport activities mentioned above? 2. If so, how did you size yourself to best fit in a dry suit and what brand did you buy? I am 5'10" and 210# My device is a Heart Mate III. 3. Did you get a...
Profile picture for user bones66
Jeff K.
Equipment

Heartmate 3

Last activity 4 months 2 weeks
I am looking for a tharotec heartmate 3 holster vest thank you jeff
Profile picture for user Meianna
Tonya E.
Travel

Flying

Last activity 4 months 2 weeks
Hi I was wondering has there been anyone who has traveled/flown since they have had thier l.v.a.d? And if so how did you do it with your equipment ( wall power,battery backups, dressing kits,etc )did you put that in your carry on or stow it underneath. Any help would be greatly appreciated.
Profile picture for user dmcalister72
David M.
Clothing Options

Shirts

Last activity 4 months 2 weeks
I am a new patient to the LVAD and I need or I guess I want some shirts but but they were 100 bucks or close to that, that is far out of my price range
Profile picture for user admin
MyLVAD A.
Research Participation Opportunities

LVAD Wearables Survey

Last activity 4 months 2 weeks
INVITATION TO VOICE YOUR EXPERIENCE IN ORDER TO IMPROVE THE NEXT GENERATION OF LVAD WEARABLE ACCESSORIES This research study is supported by a company currently developing a next- generation left ventricular assist device (LVAD). Are you a current or a former LVAD patient? Would you like to voice...