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Profile picture for user catman100
Kathryn C.
Caregiver Support

Home health for dementia and lvad

Last activity 3 weeks 2 days
My husband has a lvad and his dementia is getting worse. Has anyone gone through this?
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Ann G.
Equipment

Heartware equipment

Last activity 3 weeks 4 days
My husband had his Lvad implanted in April 2018. It was a difficult three years but it was three years more that we had together then we would have. he had a heartware VAD. I now have four batteries and the battery charger, two controller AC adapters, various holders and straps, three unused vests...
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Lori C.
Living with an LVAD

Has anyone had the Covid vaccine yet who currently has an LVAD

Last activity 1 month
Hello everyone! I was interested to know if anyone received the Covid vaccine and has an LVAD Can you share your story .. side effects and any advice
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Barry and Susan (caregiver) S.
Equipment

Equipment Available

Last activity 1 month 1 week
I lost my sweet husband Nov. 24 th, 2020. He had his LVAD since Oct. 19, 2016. I have all his equipment that I would love to pass on to someone that can use it. Please reply here.
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Kathleen S.
Driveline Management

Can a lvad recepient change their own driveline dressing

Last activity 1 month 1 week
My husband is possibly going to get an lvad shortly. Will he be able to learn how to maintain his own driveline. I like to travel and would like him to be able to do this while I am away.
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N P.
Patient and Caregiver Forums

Need advise- recent Lvad experience

Last activity 1 month 1 week
Hello My Aunt got her LVAd around 3 weeks back but unfortunately the recovery is extremely slow. She is in early 50s. she was on ventilator for almost 2 weeks. She is able to breathe on her own now but we have noticed: - she keeps her eyes closed for most of the day and doesnt talk much - she...
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Anonymous
Exercise and Physical Activity

Bicycling

Last activity 1 month 1 week
Hi, am I able to ride a bike?, where live now I can ride one around and not worry getting hurt or hit by a car. Thank you for your time and Peace be with you all.
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Debora L.
Equipment

Heartmate 3

Last activity 1 month 1 week
Hi, my husband passed 10/8/20 he received his Vad 2/20. I have all his equipment extra batteries, wall unit,,bags, vest, book, battery charger, drive line bandages n ect. Would like it to go to someone that can use it. Thx
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Profile picture for user Rissa1974
CRIs S.
Questions about LVAD surgery

Nervous Wreck

Last activity 1 month 1 week
My Husband had LVAD surgery on Friday 1/8/2021. About 10 pm that night they had to put a tube down his throat to see what was going wrong. By 1:00am Saturday Morning I had to consent again for them to go back in him because the right side of the heart wasn't strong enough. Well Sunday the nurse told...
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Profile picture for user egaogao71
Evelyn G.
Equipment

Carry on bag for equipment

Last activity 1 month 2 weeks
Hi all, Just wanted to see if anyone has any recommendation on carry on bag for all the equipment to go in when traveling. Also, anyone had to purchase a generator for backup in case of power outage? If so, what have you found to be most useful? Thanks.
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Profile picture for user SabrinaGG
Sabrina G.
New to LVADs

Temporary LVAD?

Last activity 1 month 2 weeks
Hello, my brother is currently going to get a LVAD. I apologize for bad English as I am still young and Im just very worried. My brother had gone through an operation and needed rehab therapy. However, the state we lived in did not offer him the specific rehab therapy so he needed to be flown out to...
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Profile picture for user cherilee
Sherry B.
Equipment

Lvad alarm for a deaf patient

Last activity 1 month 3 weeks
Is anyone aware of a watch that might be worn that will vibrate if there is an lvad alarm?
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Profile picture for user RichmondLVAD
Henry R.
Tips and Tricks

My Wife Made Me a Wonderful LVAD Vest! Email us For FREE INSTRUCTIONS at hankpattyrichmond@sbcglobal.net New 2021

Last activity 11 months 3 weeks
PLEASE EMAIL US DIRECTLY FOR INSTRUCTIONS at Hankpattyrichmond@sbcglobal.net. We have received and filled hundreds of requests for the LVAD vest instructions. We hope that you were able to make your vest and are enjoying its benefits. My name is Hank Richmond. I received my LVAD on Friday the 13th...
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Profile picture for user gldoble57
Gregory D.
Living with an LVAD

Driveline infections

Last activity 1 month 4 weeks
Lets get to it. The worst thing that can happen to an LVAD user is a drive line infection. It can put you in the hospital many times over and cures with the various antibiotics may or may not work for you. It can lead to extra surgeries for debridement and in some cases make it worse. In my case I...
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Ray H.
Clothing Options

Sleeping with a controller

Last activity 1 month 4 weeks
I have had my LVAD for 2 1/2 years and have devised clothing options for daily use, including vests, fishing vests, LVAD shirts, and concealed tactical shirts that my wife sews a pocket on for the controller. My problem has always been with the belt for the controller. I am fat and have a flat hips...
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Profile picture for user Lgb0250
Larry B.
Clothing Options

Winter Vest

Last activity 2 months
Just wanted to let everyone know about this vest. Vests in general have been a great option for me over the last 4+ years. I even wear one now to play golf in. But other than the high cost ones I’ve not had an option of a sleeveless one for winter wear. I wore this for the first time today. I wore...
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Profile picture for user Marsha
Marsha M.
Travel

VAD care in Ft. Myers/Naples, FL area

Last activity 2 months
Hello, My husband and I are considering spending a month or so in the Ft. Myers/Naples, FL area. I'd be more comfortable if I knew of a hospital/cardiology group located in the area that I could contact in case there would be any type of emergency that could come up with my husband's Medtronic LVAD...
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Profile picture for user bdarden
Bernita D.
Caregiver Support

L-VAD Failure

Last activity 2 months
My husband, Michael had his LVAD implanted in August 2019 after much discussion and lots of defib shocks. He has been in heart failure since his heart attack in 2017... well as of June 2020 it has been determined by his team that a heart transplant will not happen for him. He hasn’t been able to...
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Anonymous
Patient and Caregiver Forums

NEW LVAD

Last activity 2 months
Hi everybody, I got this email this morning and I read there's a new device that is implanted including the batteries. I don't think I want to go through the surgery again,but I would like to find out if the batteries will be replaced with the ones that I have and are lighter than the ones I have...
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Profile picture for user Meianna
Tonya E.
Equipment

Thunder and lighting storms...

Last activity 2 months 3 weeks
Hey good evening have a question....whats the protocol for being on wall power when its thundering and lightning? I know we cant be plugged into a surge protector , we are suppose to be plugged directly into the wall ? Right? I can't seem to find the answer. If anyone has the answer or suggestions i...
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Topics

Intimacy and Relationships
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Most Commented

Attitude is Everything
55 replies
Tactile holster T shirt for carrying LVAD items
54 replies
im wondering about somthing
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Small Battery Size - Latest Development
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Most Viewed

heart transplant
31,953 views
Husband is 74 and getting a LVAD on April 23.
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