Patients and Caregivers Forums

https://www.surveymonkey.com/r/VAD-wearables We are currently inviting Ventricular Assist Device patients globally to participate in an online questionnaire about their experience with their VAD wearable systems. The aim of the questionnaire is to research how Ventricular Assist Device patients feel...

Hello everybody, Just wondering if anyone here has ever had success with Weight Loss Cognitive Behavioral Therapy?. I read that if you can change the way your mind thinks about eating food (then you can lose weight by doing so, by convincing yourself you only need to eat a little instead of alot)...

Now at age 70, living in the USA, I have to let my ten-year level term insurance expire because the rates were set to climb rapidly anyway. I have to search for a new company, maybe with much less coverage to keep my monthly or quarterly fees affordable, but I don't know if any company would take me...

Hello all, So my boyfriend is currently in the hospital due to water retention from congestive heart failure, at first they had discussed putting in a difibulator in. A couple days later he was transfered to a larger hospital to have said difibulator put in. Days later and like what seemed to be a...

Hello everyone. My husband has had two lvads. The first was a heart ware .And the second is a heart mate three. The first one ended up giving him a blood clot inside the lvad. Two strokes and two brain bleeds. He has come back for the most part . Right side weakness, short term memory loss . Doing...

Hi all, well I got "that" phone call the other day and my admission date to the hospital is April 12, 2021. Insurance has approved either/or pumps. Either the LVAD (HeartMate3) or the new LVAS (EvaHeart). I am in the clinical trials for the Evaheart so we will see what they decide to do. Also got my...

Just wondering if anyone else have ongoing scabs around the drive line my doctor says the site looks good no infections and it would never heal because no matter how secure the line is it still moves. Had my lvad since Aug 2018 doing well even went to my winter camp for ice fishing and my inverter...

Many of you have probably seen this. For those who haven’t, Google the title above. All the best!

My husband recently passed away due to many different health issues. I don’t have a lot but I do have some bandaging supplies diabetic paraphernalia including insulin that is good until 2022. I would be more than happy to give it to someone instead of throwing it away. let me know if you’re...

My Husband had LVAD surgery on Friday 1/8/2021. About 10 pm that night they had to put a tube down his throat to see what was going wrong. By 1:00am Saturday Morning I had to consent again for them to go back in him because the right side of the heart wasn't strong enough. Well Sunday the nurse told...

I just want to know if it's normal....when i grow up the stairs... my lvad made a bizarre sound like :crunch... crunch ?? it is normal... ? I am a French person ...sorry for my english language.

I want to know if it's normal to listen the Lvad whwn i sleep

My husband has a lvad and his dementia is getting worse. Has anyone gone through this?

My husband had his Lvad implanted in April 2018. It was a difficult three years but it was three years more that we had together then we would have. he had a heartware VAD. I now have four batteries and the battery charger, two controller AC adapters, various holders and straps, three unused vests...

My husband is possibly going to get an lvad shortly. Will he be able to learn how to maintain his own driveline. I like to travel and would like him to be able to do this while I am away.

Hello My Aunt got her LVAd around 3 weeks back but unfortunately the recovery is extremely slow. She is in early 50s. she was on ventilator for almost 2 weeks. She is able to breathe on her own now but we have noticed: - she keeps her eyes closed for most of the day and doesnt talk much - she...

Hi, my husband passed 10/8/20 he received his Vad 2/20. I have all his equipment extra batteries, wall unit,,bags, vest, book, battery charger, drive line bandages n ect. Would like it to go to someone that can use it. Thx

My Husband had LVAD surgery on Friday 1/8/2021. About 10 pm that night they had to put a tube down his throat to see what was going wrong. By 1:00am Saturday Morning I had to consent again for them to go back in him because the right side of the heart wasn't strong enough. Well Sunday the nurse told...

Hi all, Just wanted to see if anyone has any recommendation on carry on bag for all the equipment to go in when traveling. Also, anyone had to purchase a generator for backup in case of power outage? If so, what have you found to be most useful? Thanks.

Hello, my brother is currently going to get a LVAD. I apologize for bad English as I am still young and Im just very worried. My brother had gone through an operation and needed rehab therapy. However, the state we lived in did not offer him the specific rehab therapy so he needed to be flown out to...