Community Forums

Hi Everyone, Not sure if this is of help to anyone... I have been concerned about my HeartMate plug being accidentally pulled out of the wall socket. Not usually something to worry about. However, I have had another plug separated enough from the scocket to turn off a light when my cat jumped over...

I've got to assume there is some backup equipment out there that one can purchase; whether it be from a heart transplant patient or from someone whose family member has unfortunately passed away? We would like not to lug equipment back and forth between two homes. Does anyone have an information on...

I have an ICD as well as my LVAD. Can the two affect each other. I had three alarms on my control unit but I felt like I do before getting a shock. I am interested in knowing if anyone else is having this outcome ?

My journey began in December 2015. I had to have a pacemaker implanted. I thought that had solved my heart problem. Not until I arrived in GA did I eventually learn that I had chronic heart failure. I was sent to a Heart Failure Clinic in Atlanta. My cardiologist suggested that I get on the heart...

I am writing this in hope of finding someone with some advice. Perhaps someone out there has experienced the following sympoms and has found healing. My father, is currently in the hospital and his team doesn't know for sure what is causing his constant dizziness and low PI. He has also experienced...

My husband got a HeartMate3 on Sept 13, 2018 - his 76th birthday. He went from final stages of heart failure - basically send him home on a drip to die - to a remarkable recovery. Other than his heart, he has always been physically fit. After surgery and adjustment, he went home after 2 weeks, weak...

My brother passed away in November he had a spare lvad I am trying to sell it to pay for his final expenses does anyone need a spare?

I am 48yo male and have completed all the evaluation processes for LVAD and transplant. I am scheduled to have the LVAD surgery in January as a bridge to transplant and I am trying to get me head around the whole process and what will be coming next. I have been reading posts on the site and have...

Hi my husband had an LVAD fitted in July 2018. We travel to India (Goa), every year. However we are having trouble locating a hospital and insurance can anyone help?. After a horrendous year it would be great to get away 😊

This may not be the forum for this question, but who better to answer my questions than those living with an LVAD and the people who care for them. My fathers LVAD (Heart Mate II) was implanted August 2015. When he had his heart attack we were literally told to take him home so he could die, as the...

hey guys! I am 32 years old Female, received my Heartmate 3 2 months ago. Back home for a week now. One question: I recognized that my speed range on the system controller is jumping. Speed range jumps every second from 5200 to 5250 and back to 5200 and sometimes to 5300. I spoke to my surgeon and...

Was in Hospital 4 months, after LVAD, doing OK but walking is very hard yet, how long dose it take to walk again ?

Does anyone with an LVAD have any experience with a plug-in hybrid vehicle? Any issue with electromagnetic waves?

I had my LVAD implanted on March 9,2018 and after six months in and out of hospitals I am finally getting back some energy. I had at least six alarms on my controller and no explanation on the screen. My battery was changed in the controller and the very next day an alarm. I labeled all 8 batteries...

My wife has had an LVAD for three years. She was recently diagnosed with breast cancer. She had surgery to remove the cancer and is now facing chemotherpy. We are wondering if any other women with an LVAD have faced this challenge.

My brother received his LVAD on 8/30/18 and fortunately was also approved for disability; however, we just learned that when SSDI kicks Jan 2019, he will lose Medicaid....leaving him without any insurance to continue care for LVAD and he won't be eligible for heart transplant. This week he learned...

Hello, my name is Chris and I have had my HeartWare LVAD for a little over a year now. Life with the device had gone mostly as well as could be expected although I have experienced one problem that is quite a nuisance and was wondering if anyone had some feedback or advice on how to tackle this...

My brother received his LVAD on 02/02/2015. We went through the same search. The vest he received in hospital was uncomfortable for him. At one of his therapy sessions we found the answer. I replicated an idea a fellow patient's wife devised for him. We use mans tank tops which I modify. Turn shirt...

Hi, Has anyone already had problems with the Battery charger? I had to unplug it from the outlet for a few hours and, when I plugged it back, it did not turn on. There was no electricity problem that could explain that. I do not know what is the half-life of this type of machine, but mine has only 3...

Hi, I'm reviewing my health care and prescription insurance. I'm currently using Medicare and a supplement for my prescriptions. My insurance agent has recommended the Aetna Advantage plan. My understanding is that once I moved to it it's extremely difficult to go back to what I currently have. I...