Patients and Caregivers Forums

Hi everybody, I'm hope one of you all have or had this problem. I am having trouble getting my doppler to get to 80 to 85 and I'm having trouble to get the right blood pressure meds. I will get some that doesn't work,or I get one that I' m have an allergy to..... that is the problem I am having. My...

I've tried the Yoga CD but I was unable to do alot of the exercises;it was for beginners . So I've decided to do some thing else. I going to my walks again. I was doing two miles a day and it was getting to hot during the summer. I'm going do do my walks in the morning and do some of my leg...

I've tried the Yoga CD but I was unable to do alot of the exercises;it was for beginners . So I've decided to do some thing else. I going to my walks again. I was doing two miles a day and it was getting to hot during the summer. I'm going do do my walks in the morning and do some of my leg...

Hi, my name is Tonya and i have had my vad implanted 1 year and 5 days ago. And since then i have had chronic driveline infections and within the last 2 months i have had 2 diffrent surgery's, 1. Cause i had a brain bleed( just from hitting my head on a cabinet door, ) so i had to have emergency...

https://www.surveymonkey.com/r/VAD-wearables We are currently inviting Ventricular Assist Device patients globally to participate in an online questionnaire about their experience with their VAD wearable systems. The aim of the questionnaire is to research how Ventricular Assist Device patients feel...

https://www.surveymonkey.com/r/VAD-wearables We are currently inviting Ventricular Assist Device patients globally to participate in an online questionnaire about their experience with their VAD wearable systems. The aim of the questionnaire is to research how Ventricular Assist Device patients feel...

Hello! I am a student at the University of Washington in an engineering class project hoping to improve the life for people with LVADs. We have been working on this project for a couple of months, and discussed with VAD coordinators, cardiologists, and industry professionals in healthcare. I would...

Will there be a lighter and smaller battery available for the Lvad heartmatt 111 now or in the future the reson I ask this is when strapped to the body it can effect your posture

First time posting but I’ve been lurking for a while. My husband had his lvad surgery today and although the left side of his heart is responding positively, his right side is functionIng worse than before surgery. He spent a week in the hospital with a balloon pump and his right side responded well...

My husband started on these two recently. Seroquel last Thursday and the Gabapentin on Saturday. They are to help with his delirium/encephalopathy. I have heard negative things about this drug combination- especially Seroquel. Anyone have experience with either of these working or not working? Thank...

One of my best friend has LVAD he's just 42 years old i was shocked when i seen my friend at her home with that device but now it's better he's also giving some time for office work, looking to buy flexible table for doing work at home just seen some sale on Flexispot coupons and they are giving in...

My father just had an LVAD put in on October 9th. The surgery went good and he was taken off the ventilator the following day. He then began to develop extreme breathing problems and was not able to take deep enough breaths and was retaining carbon dioxide and becoming extremely confused due to this...

Did any of you get you implant done through the left side ribs?

Nine years ago today, Prof Phil Spratt and the wonderful, dedicated Heart team from St. Vincent's Hospital in Sydney (Australia) inserted my Heartware LVAD and consequently extended my life another 9 years to date. I have been very fortunate to have used this time wisely and to the maximum with...

My husband experiences involuntary shaking like he had a fever or something. He doesn’t have a fever so I’m wondering what could cause this?

Hello, my name is Chris and I have had my HeartWare LVAD for a little over a year now. Life with the device had gone mostly as well as could be expected although I have experienced one problem that is quite a nuisance and was wondering if anyone had some feedback or advice on how to tackle this...

We have Heartware battery charging station & 6 batteries, like new, only had 6 months. If interested, contact me.

I should have added that we have the new, unused shower bag, as well as the clothing and charging gear.

My husband received his Heartware lvad on Oct 1, 2020. (Stemi heart attack Aug 4, 2020) Monday, (10/5/2020), two nurses & my hubby set off out to walk a few 'laps' around the cicu wing. Having previously walked behind a different 3some on Sat & Sun, rolling his chair directly behind them in case he...

My husband received a heart transplant on September 15, 2020. He had had a Heartmate III Since October 1, 2019. We have nearly a month's worth of dressing change kits from OrthoDynamics, a wall unit, a battery charger and 4 batteries, 2 LAVD shirts and a waist band for sleeping. I would like to give...