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Profile picture for user Dmitchell95
Darnazia M.
Living with an LVAD

Lvad surgery

Last activity 3 years 7 months
I am schedule to have my Lvad surgery on 11/30/2021, looking for words of Encouragement. I am a 26 year old female with 2 young children.
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Lori C.
Living with an LVAD

Lvad activities after vaccine

Last activity 3 years 9 months
Hello everyone you helped us soo much with vaccine information so I wanted to reach out to you again. We just made one year with his LVAD! I’m very proud.. it’s been very tough, especially with Covid. What kind of activities do you recommend! Right now my husband walks with a cane. We are looking...
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Lori C.
Living with an LVAD

Has anyone had the Covid vaccine yet who currently has an LVAD

Last activity 3 years 10 months
Hello everyone! I was interested to know if anyone received the Covid vaccine and has an LVAD Can you share your story .. side effects and any advice
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Lisa G.
Living with an LVAD

How do you use seatbelts

Last activity 3 years 11 months
I received my Lvad early March and still just using the bag to hold my batteries etc. How do you use your seat belt to support bag and not disturb your driveline?
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Dawn C.
Living with an LVAD

New 2021 EMS Field Guides are Here!

Last activity 4 years 3 months
/medical-professionals/resource-library/ems-field-guides The 2021 EMS Field Guides are Here! Print QR codes to keep with you so you and emergency services can access emergency information quickly! You can also find them on the MyLVAD app! If you haven't downloaded it yet...Check it out!!
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Jessica Lea D.
Living with an LVAD

Reminder - INVITATION TO PARTICIPATE: VAD WEARABLES RESEARCH PROJECT

Last activity 4 years 3 months
https://www.surveymonkey.com/r/VAD-wearables We are currently inviting Ventricular Assist Device patients globally to participate in an online questionnaire about their experience with their VAD wearable systems. The aim of the questionnaire is to research how Ventricular Assist Device patients feel...
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Fred L.
Living with an LVAD

Getting Life Insurance After L-Vad

Last activity 4 years 4 months
Now at age 70, living in the USA, I have to let my ten-year level term insurance expire because the rates were set to climb rapidly anyway. I have to search for a new company, maybe with much less coverage to keep my monthly or quarterly fees affordable, but I don't know if any company would take me...
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Wynne C.
Living with an LVAD

Preference in receiving care - in implanting centre vs local community

Last activity 4 years 6 months
Hello VAD community, I'm a nurse from Vancouver B.C. Canada, and I'm hoping to get a sense from patients and caregivers, in terms of preference in receiving care (VAD or not VAD related), in the community versus back at the implanting hospital. My hope is that your input would help shape the future...
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Brendan B.
Living with an LVAD

How has your life changed since receiving an LVAD?

Last activity 4 years 7 months
Hello! I am a student at the University of Washington in an engineering class project hoping to improve the life for people with LVADs. We have been working on this project for a couple of months, and discussed with VAD coordinators, cardiologists, and industry professionals in healthcare. I would...
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Bill W.
Living with an LVAD

LVAD Implant

Last activity 4 years 7 months
Did any of you get you implant done through the left side ribs?
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Bernie R.
Living with an LVAD

Should I need a walker

Last activity 4 years 8 months
Received my LVAD March 2, 2019, and can not walk any distance without a walker. I truly thought I would be able to function without it, but that has not been the case. I get very short of breath walking without the walker, but can walk a long way with it. Anyone have the same experience?
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Virginia S.
Living with an LVAD

How do you cope with living with an LVAD?

Last activity 4 years 9 months
Hello all, I'm not exactly new to living with an LVAD since I've had mine for two years now, but I'm still adjusting and trying to cope with it. It's a huge change in my life that happened at a very young age. I was only twenty-one years old when I got my LVAD and I've spent two of my birthdays in...
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Barry and Susan (caregiver) S.
Living with an LVAD

Right ventricular dysfunction

Last activity 4 years 10 months
My husband is 74 and also destination LVAD. His breathing has really gone down hill, because of dysfunction of the right ventricular , which creates regurgitation of the Tricuspid, thus fluid retention , thus increase Pulmonary disease. He was just at the hospital , Mayo, to see his Team. So for now...
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Maureen S.
Living with an LVAD

Independent living

Last activity 5 years 1 month
Can a person age 75 getting a LVAD live alone or do they need a 24/7 caretaker?
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Gregory D.
Living with an LVAD

Combating Pseudomonas Infection

Last activity 5 years 1 month
After nearly 4 and a half years I finally got hit with the infection. Until this point nothing. Traveled worked taught. To date been in the hospital twice 4 sets of different IVs while in the hospital. Now at home taking Cipro 500mg twice per day. Feeling ok, however I have yet to find anything...
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kathy S.
Living with an LVAD

Infection

Last activity 5 years 2 months
My husband got his Lvad in September, 2019. Everything was going great without any problems until June, 2019. He came down with a slight fever and was not feeling well. He was still doing his exercises and everyday activities, but sleeping more and a sluggish. His driveline looked good so we knew it...
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Tobi L.
Living with an LVAD

Blood pressure monitoring survey

Last activity 5 years 2 months
Hello We are students at University of Toronto learning about LVAD and blood pressure. We are working with cardiologists and engineers to try and see how we can improve the blood pressure measuring experience for patients and caregivers. If you have a few minutes to answer a quick 10-question survey...
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Kelley A.
Living with an LVAD

Remote Monitoring of your LVAD

Last activity 5 years 3 months
Hello everyone, I am familiar with VADs because I am a cardiovascular perfusionist - the person who operates the heart lung machine. At the hospital I work at were are very involved in VAD implant surgery, but also are responsible for taking care of VAD patients when they come to the operating room...
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John S.
Living with an LVAD

Driveline dressing change

Last activity 5 years 4 months
Has anyone out there in LVAD land been successful in changing their own driveline dressings and if so, please pass along how you do it. I can only get so far before I have to let my wife finish the job. I currently do a sterile dressing change but am having a hard time lining up the tagaderm and...
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Sourabh C.
Living with an LVAD

Physical exercise with LVAD

Last activity 5 years 6 months
If a LVAD recipient is doing some heavy physical activity like running, gyming or playing any sport, how does LVAD, which runs at constant speed, going to match the demand of blood supply. If it doesn't able to fulfill the requirement how does it going the affect the recipient? how dangerous it...
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Facebook Groups

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    The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
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    Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
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