Patients and Caregivers Forums

Hello Everyone! I am a product design student at the University of Cincinnati with a close friend who has an LVAD. Since witnessing her experience as a young 20 year old living with an LVAD, I have been inspired to do my thesis project on trying to address some of the frustrations and pain points...

Hello everyone, i am a new member of this site, a caregiver for my husband. I read a lot of useful Information, but it is all about mostly Heartmate. Is there anyone out there with a Jarvik 2000 LVAD?

Dear fellow heart failure patients, I am searching for answers to reverse my heart failure. Have you heard from anyone who had their heart failure successfully reversed with medication? And if so, what medication was involved. Thank you very much for your advise Hans

Hat demand eine BekleidBek für Jarvik 2000 Does anyone have a shirt or vest suggestion for a Jarvik 2000

How do you handle sporting events with a metal detector? I wouldn’t expect the attendants to know anything about LVADs or to be amenable to a letter about LVADs. Thoughts or experiences? Many thanks.

Hello All! My Dad had his LVAD surgery on the 6th of March, 2019. I believe he had an anxiety attack today but wanted to see if anyone else had any of the same symptoms. He's 79 and had a heart attack in 2015. Was told February 6th he had 3-6 months to live if he didn't try to qualify for the LVAD...

I have batteries heart mate 2. and shower bags and kits. Free !!! If interested contact me by email I got a transplant genkinger336@bellsouth.net

If a LVAD recipient is doing some heavy physical activity like running, gyming or playing any sport, how does LVAD, which runs at constant speed, going to match the demand of blood supply. If it doesn't able to fulfill the requirement how does it going the affect the recipient? how dangerous it...

My name is Larrie and I’m Story Producer for a show called Life on Batteries, as well as an LVAD patient myself. I was hoping you could help me with research for an upcoming episode by sharing your experiences around emergency controller changes. This also may be a good discussion topic in itself...

Does anyone test their INR at home? Was it worth the investment? Were you able to get insurance to pick up any of the cost of the device?

I have Heartmate II equipment for sale. It is in STELLAR condition, recently tune up my my LVAD team, cleaned, new power cord added, new batteries given to me, new battery tops..... everything! I also have a gently used LVAD bag. It's like new! And I had driveline site care supplies and LOADS of...

I've got to assume there is some backup equipment out there that one can purchase; whether it be from a heart transplant patient or from someone whose family member has unfortunately passed away? We would like not to lug equipment back and forth between two homes. Does anyone have an information on...

My father experiences Stage Four (D) Heart Failure, Ischemic Cardiomyopathy, Chronic Atrial Fibrilation, Pulmonary Hypertension (due to left heart disease) and CKD Stage Three. He underwent the LVAD procedure on Friday, April 26. Six days later he remains on a ventilator under heavy sedation. He has...

We thought pictures of the Wildkin Adult Lunch Bags would be helpful...Sue does not go anywhere with out one! They have two compartments...top can be used for regular carry everywhere items and the bottom holds the controller and batteries...each compartment has double zippers. They are water...

I have a HM3 and recently had some rhythm issues. Has anyone tried using an iWatch to check your HR and rhythms? If so, does it work well?

My husband was fitted with a BIVAD (2 Heartmate III) on 10/28/19 and we have had a cruise to the southern Caribbean planned for July of next year since September. We are trying to decide if we should cancel this trip or not. Has anyone cruised to the Caribbean with a VAD if so please share how you...

This may not be the forum for this question, but who better to answer my questions than those living with an LVAD and the people who care for them. My fathers LVAD (Heart Mate II) was implanted August 2015. When he had his heart attack we were literally told to take him home so he could die, as the...

Hello everyone! My husband was transplanted recently and we have a ton of changing kits. He had the heartmate 3. I know these can be expensive for folks, so I am more than willing to ship to anyone for free. We don't have a huge place so just looking for the storage back, so hopefully send out as...

My father just got the heartmate 3 and was recently sent home. He is having some back pains from mostly laying in a hospital bed for the past 3 weeks so I wanted to take him to get a massage but we are afraid that they might mess with the driveline. So ultimately, my question is has anyone gotten a...