Patients and Caregivers Forums

My uncle has had his Lvad for 6 years. He doesn't follow any dr recommendations... He smokes, eats and drinks whatever he wants even though he's diabetic. In the last 6 months he has really declined. More recently in the last 6 weeks he's been life flighted 3 times to hospital because he can't...

My 54 year old son has just had an LVAD implanted, along with a new homograft aortic valve. Prior to his heart failure, he had a syncope episode probably related to a small stroke while he was driving. He was involved in a terrible accident and his license revoked. After three months in the hospital...

Hi everyone! My dad had an LVAD implanted in May 2015 and has since being doing really well. We have booked a family holiday away to Turkey this August however having trouble to get my dad insured for his LVAD and Dilated Cardiomyapathy- has anyone got any suggestions? Or what travel insurance...

Dear phillip I would like to get in contact with you regarding hospitals in South Africa with knowledge off the Lvad. My father in law is German and got it implanted in Germany and he wants to come and visit, but obviosly wants the assurance that he will hve a hospital to visit in the case of a...

This morning I have become completely overwhelmed with the size of Irma. I live in Macon Ga and would think I am the program furthest south in Georgia. The inpatients don't bother me it's the evacuation folks on a device. Please post my number for evacuees or for displaced patients who may have a...

Greetings from Macon GA I have major concerns for non-Hospitalized , Mobile ,active VAD patients leaving Florida to seek shelter . Macon as far as I know is the first VAD center north of Florida . I am attempting to mobilize southeast vad coordinators for the weekend in case cousin Tom from Tampa...

I found a long narrow back pack that is perfect for carrying my extra batteries and extra controller. It's a perfect size and is very comfortable. Now when I walk around with the extra gear, I hardly notice I am carrying it, and it helps me to stay more balanced and stand up straighter. I found this...

Henry, my husband, had a massive heart attack, Nov. 2016. We practically lost him and we were devasted at the news that he may not "make" it we were told. No "promises"....I knew it was dire. I knew at that point we had to just pray for the doctors and staff that were treating him. Now....almost six...

Hallo, Wir (Das Contilia Herz und Gefäßzentrum und der Selbsthilfeverein Pulslos leben) wollten gerne zu einer Fahrradtour durch das Ruhrgebiet im Rahmen der grünen Hauptstadt Europas einladen. In den vergangenen Jahren haben wir diese Fahrradtour schon mit Patienten aus Essen und Umgebung...

My Dad had his LVAD put in on 5/25/17. He seems to have had a new issue every, single, day, of his recovery so far. Hours after the surgery, they said he had bleeding in his chest and had to take him back and open him up a second time (then couldn't find the cause!). Then had to give him a lot of...

Has anyone known someone with an LVAD that decided that the LVAD lifestyle no longer is acceptable to them? Has anyone known someone who had their LVAD deactivated?